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The MS PEOPLE UK Forum
Support, help, advice & information for Multiple Sclerosis. Ask questions & share experiences with people affected by MS.

Rama's Blog



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Siponimod Clinical Trial

Posted by Rama , 11 October 2014 · 663 views

Hi All,

Well I have enrolled for a clinical trial, efficacy of Siponimod for secondary progressive MS -

http://clinicaltrials.gov/show/NCT01665144

I hope that link works as it saves me having to describe the trial to you all. I have been on the drug, or placebo, for about three weeks. Nothing to report yet!! Except to say that I feel so well...


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Feeling sick!

Posted by Rama , 06 June 2013 · 506 views

Hi!
I have been feeling particularly cr*p all day today. Waves of nausea keep crashing over me but I was never actually sick. Then I'd gets a pain in my stomach. At first I thought it must be something I've eaten. But I haven't eaten anything that could have been dodgy and my husband is fine.
Then I wondered if it could be the Baclufen that...


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Gardening

Posted by Rama , 02 June 2013 · 363 views

Feeling very pleased with myself! Managed about half an hour weeding in the garden before I had to drag myself indoors. Mind you I've only made a tiny dent in the jungle that is masquerading as my garden! Ah well it's better than nothing!


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New to this blogging!

Posted by Rama , 31 May 2013 · 376 views

Hi,
I am new to this blogging so thought I would introduce myself and tell you a bit about myself.
I was diagnosed with MS in 2001. For the first 9 years I suffered only very minor relapses - pins and needles, a little numbness. In 2010 I suffered a horrendous relapse which left me unable to use my hands and to only shuffle a few steps. Steroids helped me...





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