Hello to everyone. I am very new to this. Don't quite no how to work things here but I'll give it a try. It's one week since I was told I had Secondary progressive MS. I have been to doctors periodically, though I am certainly not one to hound them. I go and explain my symptoms, and they do lots of blood tests. They always come back normal and I'm left feeling like a time waster. I can go back at least 20 yrs when I first felt my feet were going numb. It so happens at that time I had also trouble with my back. My doctor did send me for an MRI scan then, but it was only concentrated on my lower back. So no abnormality was spotted then. Then I started to feel exhausted all the time. So back I go to the doctors. I got a new doctor this time. She commented on my balance and asked me if I drank a lot. Just days earlier someone had asked me if I had a liquid lunch. I must confess I burst into tears and told the doctor I feel as though I'm drunk all the time. So she checked my balance and wasn't very impressed with it, and looking at my notes said I think it's time you have an MRI scan. So 100mile journey to Glasgow to get an MRI scan. nearest place for me. About 8 weeks later I got a phone call back saying it looked as if I had MS. So another 100mile trip to Glasgow to see the specialist who asked me to go back and have a lumbar puncture done. So six weeks later I had to go for the lumbar puncture. Another 100mile trip. Then I had to go for the results. You've guessed it. Another 100mile trip. The specialist said it was positive for MS, but I had gone through the relapsing/remitting stage undiagnosed, and was now into the secondary progressive stage. I'm still waiting for an appointment to see an Ms nurse. I just hope it won't be in Glasgow. That journey is so exhausting. Does everyone have this trouble getting diagnosed? I don't know what should happen next. I'm just at a loss just now.
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