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Support, help, advice & information for Multiple Sclerosis. Ask questions & share experiences with people affected by MS.





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From the Start

Posted by Spares Fairy , 20 October 2014 · 604 views

Well, here goes, never done this before so bare with me.

My name's Claire, i'm 32 & am lucky enough to live in Cornwall, i was diagnosed in 2008 at the tender age of 26, my life fell apart as i imagine it does for most people beeing told that they have a life changing illness, notice i say 'changing' not 'limiting' I learned quite early on that i need to adjust my life a little (or a lot in places!) but on the flip side it was also a relief, I'd been plagued with un explainable symptoms since i was about 13 or 14 i think, they'd gone down the good old process of elimination route finally ending up with Fibromyalgia, which even now,i might have, i might not?!
one day I got a letter asking me to have an MRI, which i thought was strange but then realised iy was to do with the eye problem i'd suffered with a while ago, so i went, having spent a good while removing my piercings (my thing?!) had my MRI, Christmas was coming up & i was getting excited, got another letter in the post 'we've found some changes in your scan' & all i can hear is the little boy from a film 'it might be a tumour...' phoned a GP & he explained to look out for numb patches & explained that they'd found demylination & said 'DONT GOOGLE IT' I work in front of a computer, what was i supposed to do??!! :whistle:

Anyway, time went on & i started with the numb patches, dodgy balance etc, finally in the September i was told, you have MS, not what type, not what to expect, nothing.

My fear was that my life would change, what would work say? What would my new boyfriend say? my friends, my family??? All of this started spinning around my head, then a few things happened, my family were there to support me & my boyfriend when i said to him 'look, we haven't been together long, if you want to leave, i won't blame you, we can stay friends, I just dont expect you to take this on'
looked at me & said 'Why would i do that? I love you & i'm staying' i think that's when i realised I can do this!! I can live a life, not so easy & with a few changes, i can live with this.



That bought a tear to my eye.. Not the diagnosis, the last paragraph!

:moonieman:
Well done Claire !

Your story on diagnosis is a common one.  We think ' hell, my life is over!', but after a while we realise that it's just a case of re-inventing ourselves and changing a few things to suit.

People often surprise us don't they.  I said to my husband pretty much the same thing that' you didn't dign up for this'.....to which he replied  'well, neither did you!'

Keep up your great positive attitude

Scully
x
Beautifully described,  and  a sure fire descrpition to help others understand that the world is full of surprising things. It may be a common description of peoples experience of MS diagnosis but that makes it no less marvellous when such things happen unexpected to you.

Nick
Wow Claire

You are amazing and have a fabulous boyfriend too. I am disappointed for you that it took so long for someone to pay attention and investigate your symptoms properly.

I was diagnosed in 2008 by MRI with aura migraines and demylination of the optic nerve. I asked about the white patches on the MRI but was told "Oh you don't need to know about that you aren't showing any symptoms" Well if he had the courtesy to ask and explain what he meant by this Yes I had.  Out of the blue pins and needles in both feet and legs. Whether moving or at rest.
In October 2014 I was diagnosed with RRMS from the MRI in 2008. My symptoms had progressed to  be unable to walk properly due to the pins and needle taking by breathe away when at there worst. New MRI shows the previous areas have decreased but I have a whopper of demylination at the back of my brain.
Hope you are well and enjoying these crisp frosty mornings.
Reb

Scully, on 23 October 2014 - 07:10 AM, said:

Well done Claire !

Your story on diagnosis is a common one.  We think ' hell, my life is over!', but after a while we realise that it's just a case of re-inventing ourselves and changing a few things to suit.

People often surprise us don't they.  I said to my husband pretty much the same thing that' you didn't dign up for this'.....to which he replied  'well, neither did you!'

Keep up your great positive attitude

Scully
x
I love your guy !!! He makes me smile :)

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