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A dream life

Last night I had a dream. I went to 'my other life' – my dream life.

I have this recurring dream; where I go to a place which is so familiar to me I know it really well. I always get there by bus, get off at the top of a hill and walk down and turn left into a big museum. It's a huge building – partly circular where the entrance...
I must be something of a split personality. It may surprise you to know that I'm actually pretty stoical. I don't mind a bit of pain; I take painkillers as a very last resort and sometimes feel pain is a big part of life and makes us who we are. I've had 3 children, and as any mother can testify childbirth, whilst it's a natural...

Don't change a thing

A great deal has been voiced recently on the open forum regarding limbolanders, the advice they receive, the reasons for being on the forum, etc. I just wanted to talk about that in my blog, that way if people have read enough of it already they can overlook this, but I’d like to add my feelings on the subject if that’s ok.

I came to this forum...

Sick of living in fear

I woke this morning with limbs feeling tingly and asleep, my ear loud and rattling. A knock on the door at 7:45, when all I wanted was to stay in my bed after a very broken night’s sleep. I staggered downstairs to receive a parcel from the post lady. Staggered back up and just lay there for ½ hour trying to stop the room swirling around...

Life in 'limbo' - still...

I’m hoping that my blog title, ‘life in limbo’, is a temporary phase of my life, and not a lifelong sentence. As you probably know, I have had my test results, and been informed by letter that the MRIs were reassuring that I don’t have MS. I have nerve conduction studies coming up on 16th January which I’m hoping and praying throw some light on...

The Darkling Thrush

The Darkling Thrush
I leant upon a coppice gate
When Frost was spectre-grey, And Winter's dregs made desolate The weakening eye of day. The tangled bine-stems scored the sky Like strings of broken lyres, And all mankind that haunted nigh Had sought their household fires.
The...

Joni Mitchell

'It's coming on Christmas,
And they're cuttin' down trees
They're puttin' up reindeers
And singing songs of joy and peace
Oh, I wish I had a river I could skate away on!'

This is probably my favourite song ever. Whenever I feel anxious or down I reach for this song. It's on Blue by Joni Mitchell, and...

A day in the life

All in all I manage quite well. I have good and bad days, but most are somewhere in between those extremes. I still get done what really needs to be done. My lot have always had clean, ironed clothes, full tummies, a listening ear and plenty of love. So, the important stuff. And the house is too cluttered and untidy, but it's clean, and I...

Tread softly

I've not done my blog for a few days. I'm kind of ok at the moment. Loads of symptoms, mood a bit up and down, but positive after the Neuro appointment mostly. A bit nervous about the results of the upcoming MRI and VEPs, either way if I'm honest. Need them to find something, but scared they do. Well, you know what I...

Tears

I know I've only just done my blog, but this is a slightly different subject.

As my Neuro appointment nears I'm beginning to think ahead. I'm so scared either way.

If it turns out that I have MS I don't know how I'll handle it, but I know I'd have the forum and the best friends I've made to help me through.

If it...
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May 2012

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