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Support, help, advice & information for Multiple Sclerosis. Ask questions & share experiences with people affected by MS.

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Stick to the point

Posted by Heste in Heste's Blog, 29 August 2011 · 2,174 views

You would think there was not much you could say about a walking stick. It's just a stick that helps you walk. But I have found my stick to be so much more than that.

Let me start at the beginning. I had two problems with walking. First there is the 'foot drop' thing that makes me trip up a lot. Then there is my balance...

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Update

Posted by miapia in miapia's Blog, 01 July 2015 · 349 views

Well hello my MS people friends. Long time since I posted something. I just read Scully's comment about summer, heat and discomfort.

I’m really sorry and I feel sad that a lot of you can’t enjoy the real hot...

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Natalizumab Trial

Posted by Nick in Nick's Blog, 03 April 2015 · 460 views

Yesterday I very nearly fell asleep in an MRI Machine.  Well it had been a long day and two years into my drugs trail, and after numerous times filling in the same old MRI questionnaire I was apparently getting pretty relaxed about it all.  A long day yesterday, arriving after a car journey at the hospital, just before eight in the...

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News from inside your head

Posted by Tabbycat in Tabbycat's Blog, 11 February 2015 · 603 views

My husband has hidden my latest MRI scans. Is this control freakery or care? Working myself up to be slid in that damn tube with my head in the visor, was bad enough and I understand that he doesn't want me to get more up set as the neuro said there will always be some new activity , but still!!
So somewhere hidden beside a piece of furniture so...

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New member

Posted by Reb in Reb's Blog, 25 November 2014 · 524 views

Good morning everyone

I was diagnosed in October 2014 with RRMS. I would like to have contact with another newly diagnosed RRMS individual to find out what help they have found. I am currently taking 50mg Pregabalin twice a day which is to increase to 150mg.  Thank you

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From the Start

Posted by Spares Fairy in Spares Fairy's Blog, 20 October 2014 · 614 views

Well, here goes, never done this before so bare with me.

My name's Claire, i'm 32 & am lucky enough to live in Cornwall, i was diagnosed in 2008 at the tender age of 26, my life fell apart as i imagine it does for most people beeing told that they have a life changing illness, notice i say 'changing' not 'limiting' I learned...

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Siponimod Clinical Trial

Posted by Rama in Rama's Blog, 11 October 2014 · 682 views

Hi All,

Well I have enrolled for a clinical trial, efficacy of Siponimod for secondary progressive MS -

http://clinicaltrials.gov/show/NCT01665144

I hope that link works as it saves me having to describe the trial to you all. I have been on the drug, or placebo, for about three weeks. Nothing to report yet!! Except to say that I feel so well...

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MS affects everyone differently!

Posted by april12 in april12's Blog, 22 April 2014 · 661 views

Hi Everyone,

I am back again! Its been a few months since I have been here. I am still doing my masters course and is feeling more optimistic about it. It has not been easy but I am happy that I persevered. I haven't had any relapses but is still bothered by MS fatigue and right sided spasms.

How is everyone else doing?

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Is this the end?

Posted by Tim Molloy in Tim Molloy's Blog, 19 March 2014 · 697 views

I'm not sure if this is the beginning of the end or just a transition in the symptoms that will change into something else. The pain in my legs, mostly my left leg are getting worse and affecting my mobility. I wish my car was an automatic as it is, to say the least, painful operating the clutch. Other symptoms seem to have eased, fatigue has eased, to...

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I'm trying to rid myself of MS using the Wheldon Antibiotic Protocol

Posted by supaguy in supaguy's Blog, 17 February 2014 · 1,070 views

Hey ...

I'm trying to rid myself of MS using the Wheldon Antibiotic Protocol.

I was amazed that neither my MS nurse had heard of this when I asked about it last spring.  The fact that people have already been cured of MS and they didn't know of it made me wonder what the point of them is.  I kept wondering and have come to the conclusion that they...

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Feeling rather low

Posted by Adele in Adele's Blog, 09 January 2014 · 1,003 views

Hey Everyone,

I'm new to the forum and currently off work having literally just had another relapse which began on boxing day! I had my first attack in 2003 and was misdiagnosed at that point in life when I was just 21. I later went on to experience a "relapse" in 2007 when it was a short time later I was given the dreaded news...I had...

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Thoughts from my bed.......

Posted by Crafty Cow in Crafty Cow's Blog, 31 October 2013 · 896 views

So...... Here I am, need to ramble, not so much rant, as I don't think I have the energy for a rant right now.

After a week or so of feeling 'good' and almost normal (although, that's subjective, as I have not really been normal since my discs prolapsed around two years ago) I have tried, during this 'normal' period to be as active...

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A pint of positivity!

Posted by Muirie in The joy and amusement of MS , 04 October 2013 · 882 views

"Happiness is like an orgasm, if you think about it too much it disappears" (courtesy of Tim Minchin)

We MSers have a cracking life all in all!

We have a condition that affects approximately 2.5 million people around the world (about 0.035% of the population if there are 7 billion of us....rough figures....forgive me for god sakes I've...

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Mixed emotions

Posted by cazza in Cazza's Blog, 25 September 2013 · 755 views

So i've part-exd my mobility scooter, for a neater,lighter and nippier version, one that i can more easily lift in and out of a car and i love it.

Been trying it out at our local beauty spot and round and about the estate, so i felt ready to tackle the supermarket. Off i went, parked up in the disabled park and began to gey out my scooter from the car,...

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Photography project about MS

Posted by kris_calvo in kris_calvo's Blog, 11 September 2013 · 722 views

Hi,
My name is Cristina and I was diagnosed with MS about 2 years ago. I am 31 years old, originally from Spain, I moved to London 7 years ago. After months of thinking I will finally start my treatment in...

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holiday

Posted by angeltess in angeltess' Blog, 26 July 2013 · 615 views

Well, got back yesterday.  Had an amazing time.  We were in a lovely, quiet resort with miles of almost deserted beaches, great restaurants and a massive apartment with all the home comforts.  I felt really well mostly, just normal tired, not drained and ill like over here.  I've decided I'm allergic to Britain!!!

Since getting home the...

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1 week since diagnosis

Posted by carolmac57 in Into the unknown, 27 June 2013 · 789 views

Hello to everyone. I am very new to this. Don't quite no how to work things here but I'll give it a try. It's one week since I was told I had Secondary progressive MS. I have been to doctors periodically, though I am certainly not one to hound them. I go and explain my symptoms, and they do lots of blood tests. They always come back normal and...

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Mum trying to cope with diagnosis

Posted by Mum in Mum's Blog, 22 June 2013 · 613 views

Are there any mums out there who are coping with their child being diagnosed with MS?  My daughter has recently been diagnosed but I'm not sure if she has accepted it yet and I don't want to make every conversation with her to be about her health, so I don't want to ask.  She is very independent but I think she may be too independent in dealing...

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One step forward...two back

Posted by lala in lala's Blog, 03 June 2013 · 756 views

Hi, I am going to have a ramble, hoping it might lead me to the cause of my woes.

Just got back from a week in Cornwall, beautiful time, great weather, kids had a blast and i got to spend some quality time with the husband. Come back and after two days BUMP i am feeling low again.

So i don't know what is going on. It could be holiday blues, having to...

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Onwards and upwards

Posted by bertdent13 in bertdent13's Blog, 31 May 2013 · 735 views

Hi everyone
Well it is reallity, met with neurologist today and she has confirmed me with MS. I suppose it is nothing that I had'nt realised for myself over the last few weeks and to be honest it did'nt come as a shock. From having my 1st symptomatic attack on Good Friday things have got a lot better and nueroligist is very pleased with my recovery....

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Hello, new here !

Posted by rosepetals in rosepetals' Blog, 06 February 2013 · 720 views

Hi everyone !!!

I am new here.  In 2009 I was dx. with MS officially.  My symptoms started about 15 years ago when I received the hepatitis A and B vaccines along with the flu shots.  All of a sudden I was thrown into turmoil with neurological issues, balance problems, dizziness, weakness, fatigue, memory issues, etc.  I managed to finish my...



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