CCSVI diary section? |
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CCSVI diary section? |
 11 Jun 2010, 19:33
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#1
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 Home away from home  Group: Member Posts: 523 Joined: 11 April 08 From: West sussex Member No.: 746  |
Just had a thought that it might be nice (if those concerned wanted to do it of course!!) to do a diary section for those people having the ccsvi treatment. We are considering it as a treamtent and curious to how over time the people having it find it helps and improves their MS.
debz xx -------------------- Mark has PP MS but I am his partner and do the posts as he cant use the computer!!
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11 Jun 2010, 21:31
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#2
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 Home away from home Group: Member Posts: 254 Joined: 15 June 07 From: knutsford England Member No.: 504 |
I'm up for it ( but then I'd need to be really, Ive gobbed off so much about it on here.)
I go to Poland on 22/06/2010 back 27/06/2010 Then I will give it to you all straight, never was any good at pulling my punches. colmmc |
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11 Jun 2010, 22:15
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#3
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 Home away from home Group: Member Posts: 1,528 Joined: 15 June 08 From: Ireland Member No.: 807 |
-------------------- LindyLoo xx
" This moment will pass " (Bono U2) |
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12 Jun 2010, 08:32
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#4
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 Home away from home  Group: Moderator Posts: 1,001,977 Joined: 20 January 08 From: Southampton, Hants Member No.: 656 |
Hi guys,
Just letting you know that I've flagged the request up to the other mods for discussion 
-------------------- Cara x
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12 Jun 2010, 17:48
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#5
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 Home away from home Group: Member Posts: 906 Joined: 16 August 09 From: Kent Member No.: 1,234 |
I think this would be a very good idea.
Tania x |
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14 Jun 2010, 15:04
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#6
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 Founder + Admin  Group: Admin Posts: 2,540,130 Joined: 16 July 04 From: Bucks Member No.: 1 |
Before I decide if and how to do it
 may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).Obviously, Colm would want to write about it  . Who else is having the treatment who would want a diary?Once I know, I might be better able to see about how to integrate it admin-wise 
-------------------- Marina
(belated DX June in 05, SPMS) |
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14 Jun 2010, 16:11
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#7
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Home away from home Group: Member Posts: 254 Joined: 15 June 07 From: knutsford England Member No.: 504 |
QUOTE (Marina @ 14 Jun 2010, 15:04 )  Before I decide if and how to do it may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).Obviously, Colm would want to write about it . Who else is having the treatment who would want a diary?Once I know, I might be better able to see about how to integrate it admin-wise 'O' go on then you've twisted my arm,If you insist,You know I'm the shy quiet type but I will do my best. 8 Days to go. And this is my100 posts, So many thing to celebrate. Colmmc |
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 14 Jun 2010, 18:32
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#8
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 still here Group: Member Posts: 545 Joined: 26 April 10 From: Dublin Member No.: 1,490 |
thanks for this, Colm, we're all agog..... may well take over from W.C.!!!!
got your dates ringed on my calendar and willing you to good health  
-------------------- Lottie, x
LIVING IN THE MOMENT |
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14 Jun 2010, 20:29
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#9
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Home away from home Group: Member Posts: 254 Joined: 15 June 07 From: knutsford England Member No.: 504 |
Thanks Lotti
I really am getting quite Giddy about the whole thing. Did I mention It's only 8 Days to go? Or 8 more sleeps. |
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14 Jun 2010, 20:43
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#10
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still here Group: Member Posts: 545 Joined: 26 April 10 From: Dublin Member No.: 1,490 |
vaguely remember something... in passing!!!!!!! Can't stop grinning on your behalf!!!!!!!!
 
-------------------- Lottie, x
LIVING IN THE MOMENT |
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15 Jun 2010, 08:13
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#11
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still here Group: Member Posts: 545 Joined: 26 April 10 From: Dublin Member No.: 1,490 |
7 SLEEPS!!!!!!!
QUOTE (colmmc @ 14 Jun 2010, 21:29 ) Thanks Lotti
I really am getting quite Giddy about the whole thing. Did I mention It's only 8 Days to go? Or 8 more sleeps. -------------------- Lottie, x
LIVING IN THE MOMENT |
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15 Jun 2010, 09:00
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#12
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Home away from home Group: Member Posts: 254 Joined: 15 June 07 From: knutsford England Member No.: 504 |
QUOTE (brainless @ 15 Jun 2010, 08:13 ) 7 SLEEPS!!!!!!! Who's been counting? As the week go's on not sure I'll be sleeping at all. |
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15 Jun 2010, 09:10
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#13
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still here Group: Member Posts: 545 Joined: 26 April 10 From: Dublin Member No.: 1,490 |
QUOTE (colmmc @ 15 Jun 2010, 10:00 ) Who's been counting? As the week go's on not sure I'll be sleeping at all. who cares????? think of the wonderful, contented nights you'll enjoy afterwards!! -------------------- Lottie, x
LIVING IN THE MOMENT |
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15 Jun 2010, 12:07
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#14
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Founder + Admin Group: Admin Posts: 2,540,130 Joined: 16 July 04 From: Bucks Member No.: 1 |
May I please ask if we can keep on topic here, so's I can try to follow how many people, if any, would like a Diary. Thank you!
 QUOTE (Marina @ 14 Jun 2010, 16:04 ) Before I decide if and how to do it
may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).Obviously, Colm would want to write about it . Who else is having the treatment who would want a diary?Once I know, I might be better able to see about how to integrate it admin-wise -------------------- Marina
(belated DX June in 05, SPMS) |
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26 Jul 2010, 11:45
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#15
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still here Group: Member Posts: 545 Joined: 26 April 10 From: Dublin Member No.: 1,490 |
Marina
can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests. -------------------- Lottie, x
LIVING IN THE MOMENT |
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26 Jul 2010, 12:52
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#16
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Home away from home Group: Member Posts: 906 Joined: 16 August 09 From: Kent Member No.: 1,234 |
I think a Diary section is a good idea.
Tania |
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26 Jul 2010, 19:12
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#17
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Founder + Admin Group: Admin Posts: 2,540,130 Joined: 16 July 04 From: Bucks Member No.: 1 |
QUOTE (brainless @ 26 Jul 2010, 12:45 ) can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests. Done Re diaries, I'm afraid it would need quite a few people wanting to have diaries as there's quite a bit of work involved to set each one up and, so far, nobody has said they'd like one. It would also not be worth it unless they kept a running diary rather than just describe the day they had the procedure and any after-effects which can be put into one post (rather like Colm's already done). Sorry about that! In the meantime, we'll just see how it goes and if enough people eventually ask for one
-------------------- Marina
(belated DX June in 05, SPMS) |
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Lo-Fi Version | Time is now: 9th September 2010 - 12:56 |
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