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CCSVI diary section?
debzsanderson
post 11 Jun 2010, 19:33
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Just had a thought that it might be nice (if those concerned wanted to do it of course!!) to do a diary section for those people having the ccsvi treatment. We are considering it as a treamtent and curious to how over time the people having it find it helps and improves their MS.

debz xx


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Mark has PP MS but I am his partner and do the posts as he cant use the computer!!
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brainless
post 26 Jul 2010, 11:45
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Marina

can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests.


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Marina
post 26 Jul 2010, 19:12
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QUOTE (brainless @ 26 Jul 2010, 12:45 ) *
can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests.

Done flowerface.gif

Re diaries, I'm afraid it would need quite a few people wanting to have diaries as there's quite a bit of work involved to set each one up and, so far, nobody has said they'd like one. It would also not be worth it unless they kept a running diary rather than just describe the day they had the procedure and any after-effects which can be put into one post (rather like Colm's already done). Sorry about that! In the meantime, we'll just see how it goes and if enough people eventually ask for one hippy.gif


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Marina
(belated DX June in 05, SPMS)
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