hi not diagnosed waiting for mri Options

[miss daisy]

hi

i really don't know where to start, but here it goes i am 38 and in a really bad way, i will try to explain as alot of these individulethings come and go or may not re-appear for several months.
my head has weird sensations: numbness, feels swollen but isn't, pins and needles kind of feeling(come and goes)
my brain has periods where it just shuts down thats the only way i can explain it, so when i try and think i just can't think straight and my speech doesn't pronounce the words i want to use properly or i say the complete wrong word.
(comes and goes)
my ears have occasional ringing
my vison blurrs every now and again and i get white floaters.
if its is noisy like if your in a room and too many people are talking at once i go dizzy, sometimes i go dizzy listening to my own voice.
perfume and bright lights particularly those in supermarket make me feel ill(can't explain this one)

i have overall pain in my body, but it is not the same type of pain, each day i struggle to get out of bed cos im so stiff and achy, then throughout the day for periods of weeks or at this moment months, i get stabbing pains, throbbing pains, a deep grinding ache in various
parts of my body at different times.
my legs get like a numbness feeling as if they are not there and i really have to concentrate to walk properly particularly going downstairs as my legs shake uncontrolably, when i have the numbness feeling. also get jelly leg feeling, with dizzyness.
sudden onset of a vertigo type thing.

am tired every day, however i also have sudden waves of extreme total exhaustion and weakness this can last from a couple of minutes or sometimes till i have a rest.

my hands shake , i wouldn't say its noticable most of the time unless i am reaching for something or doing something that requires fine motor skills and it doesn't happen all the time.

i have recently been diagnosed if fibromylgia after many years of blood tests, xrays ect and being told it has been down to depression/anxiety, so i know alot of my issues can be related to fibro, i seen a rheumatologist today who confirms fibro but suggests i go see a neurologogist for further investgation regarding the numbness and cognitive issues, he didn't express any opinion on what the cause might be.
also i have been. diagnosed as having tmj(tempemiralda joint spelt something like that) , had xrays ect and a cast done to be fittined with a mouth guard which i go back and get in two weeks, however the dental consultant has requested the an mri to see if there is any nerve damage as the numbness in my lip and side of my face, plus the wind causeing extreme pain in my face is not typical of tmj.
i get severe headaches right behind the eye which can last for days the pain is so severe i can't sleep or if i do get to sleep with the aide of painkillers when they were off the pian wakes me up.

i am sorry for rambling on, i just don't know whether i am coming or going at the moment
i have no idea whether it is ms or not or even whether i am getting carried away with trying to find as cause for the pain and the way i am feeling.

i guess i have posted really to let it all out i hope you don't mind. :) the list is never ending with things that come and go i hope i have made some sense .

take care

[jeni]

Hi Miss Daisy.

It does sound like a big deal for you with claustraphobia going into the MRI.

So Well Done You
I hope that you do not have to wait to long for the results.

Take Care.

Love Jeni xx

[Hezza]

Well done Miss Daisy

[Tania B]

Well done for persisting and suceeding Miss Daisy!



Tania

[Christina]

Feels like a massive achievement doesn't it Miss D? Well done you - I know how scary that must have been for you and YOU DID IT!!

Chris x

[Akorah]

Well done! now just relax and wait for the results.

[miss daisy]

hi all

thank you so much, i am really chuffed with myself

akorah, i love your new hair do by the way, really suits you.

not too long to wait for results, 6th october is my appointment, as you know this mri was not done through a neuro, it was requested by dental hospital due to face pain. but i am guessing it would be the same as a neuro would request.

take care

This post has been edited by miss daisy: 26 Aug 2010, 17:49

[Dianni]

Hi Miss Daisy

No wonder you are proud of yourself and so you jolly well should be!

It was a HUGE deal for you going through with the MRI so you give yourself a big pat on the back and I'll keep my fingers crossed that your neuro appt will finally shed some light on what's going on for you!

Hugs
Di
xxx

[miss daisy]

hi all

not heard anything from mri yet, its only been one week, seems like forever. and due to one of my children having an appointment come through the same day as my follow up at the dental hospital, i have changed my appointment so its not till the 20th october now.(i hope if there is anything of significance found on the mri they get in touch before then)

anyhow after 3 days of leg tingling and numbness, which nearly landed me on the bedroom floor when i got up yesterday morning and that ghastly tight band round my ribs again, i decided enough is enough so off i went back to gp(thinking of moving my bed in the surgery i go that often ).

seen a completely different gp, and she was interested in what i had to say, i took a list (great idea), so i went back over a period of ten years, and then concentrated more on the last 4 years, where symptoms have been alot more problematic.

i was upfront with the gp, and basically said i know it is probably fibro and cfs, but i need to know for sure to put my mind a rest and then i can make a plan when i know what i'm dealing with.

she asked me if any family members have ms, which they don't, and went on to say my symptoms are a mixed bag, some fit cfs and some appear to fit ms, so she can't say for sure its not ms, so she will make a refrral to a neurologist just to be on the safe side.


take care x

[Stumbler]

Hey, Miss Daisy,

Sometimes it's a bit torturous, but I think you've made some good progress towards getting an understanding of what is causing these symptoms.

It can make it so much easier, if your enemy has a name.

Good luck with the neuro.

[Dianni]

Hi Miss Daisy

It makes such a difference when we are listened to by the medics doesn't it? Did your 'new' GP offer any meds to help you deal with the symptoms?

Hopefully you won't be waiting too long for your neuro appt and I'm sure the MRI you've had will prove useful (but don't be surprised if your neuro wants another!)

20th October seems like forever away, but I'm sure it will fly by! (I don't know where this year has gone!)

Hugs
Di
xxx

[miss daisy]

hi all

yes indeed it makes a big difference when a gp listens, especially when she says she believes i should have had a referral before any definite fibro and cfs diagnosis was made, to check there is no other underlying cause.

its a bit harsh to say, but i suffered post-natal depression after my last chlid 15 years ago, and i'm sure since then every time i have been the gp he see's the word depression on my file and thinks oh yeah that must be it.

the gp doing the referral, said she wouldn't be sure what medication to give me regarding the tinglin and numbness, and she didn't really want to give me any if i was ok with that, as she didn't want any symptoms to be masked before seeing a neuro, i think i understand what she means?

i am struggling with those 2 symptoms at the moment, its not painful , but sure does have an effect on my mental wellbeing, especially the numness or tingling in the undercarriage and legs.

thanks for all your support

take care x

[Akorah]

Hi miss Daisy it really sounds like your GP is listening to you and really shes right in not masking your symptoms before the nuero sees you as when he does certain tests they use your reaction to help with the diagnosis so unless it gets unbearable i think its better to wait plus your nuero will be better to advise her on which medications to prescribe. I know my GPs always wait for the nuero to send them a letter detailing medications he advises for me before they prescribe. Good luck with your appointment