Considered stable, But am I? Options

[Tania B]

Last week I had a review at the MS nurse led clinic and yesterday I received a copy of her letter to my GP.

The nurse considers that I have experienced some exacerbations (last month) due to a UTI and the current hot and humid weather conditions and no definite relapses of my MS, which has remined stable.

I can contact the MS nurses at any time for them to make arrangements for me to start DMT. I have an appointment in twelve months at the MS nurse's clinic and was due to see the neurologist in a year only if I take the drugs. In the meantime, I have the opportunity to attend a fatique management workshop in September.

However, my condition doesn't feel stable and I know I'm certainly not the same as last year. The fatigue I feel is not just that of a normal middle-aged woman and I can't put all my symptoms down to other causes as I did even last year. Still I look well or so I'm told and I tire myself more out trying to hide my condition to the outside world.

Although my nurse is certainly not high on empathy, she does appear to have listened to what I told her and answered some direct questions. When I told her what I understood about DMT, she confirmed what I said was correct. However, I think I really need to improve my communication skills, as she appears to think I've cut down my working hours when I'm just spreading them more evenly over my three days as I no longer have to work a long day into the evening, which is good.

As you can tell, I've rather lost the plot here. I'm sorry. I just needed to talk.

The uncertainty of having MS feels quite pernicious some days. Yesterday I was very perky.

Tania

[Tania B]

I'm really pleased that you've found something that hits the spot and thanks for the pm. Worth thinking about certainly.

Tania