Working with MS ?, Are you still / when did you have to stop |
The MS People UK Forum - Online Community and Support for people with Multiple Sclerosis
Guests may View/Read but to be able to Post/Reply you need to Register.
ContentSome of the polls are "Vote only" which means you can't reply. You can use the "reply" feature in some of the polls where stated in order to add some information to your vote. When replying, please strictly keep to the topic of the poll giving your additional information, but don't invite discussion or replies or start "chatting" about all sorts else. If you wish to discuss any part of a poll, please open a new topic in the "MS Discussion" area or elsewhere as appropriate. Thanks.
Please Note - Advertisements for or links to competing or commercial products/sites/forums, spam, chain letters, electronic petitions, pyramid schemes, and solicitations are forbidden. If you would like to add a link to your product or forum, please see the Forum Rules.
  |
Working with MS ?, Are you still / when did you have to stop |
 5 Jan 2007, 19:16
Post
#1
|
|
 .  Group: Member Posts: 675 Joined: 15 March 05 From: Staffordshire, UK Member No.: 77  |
Out of personal curiosity I was wondering how many of us are still able to work as I fall into "still at work full-time but struggling to keep going" category at moment
 . Thanks for taking part 
-------------------- "One man's hell is another man's paradise"
|
 |
 
|
|
5 Jan 2007, 20:38
Post
#2
|
|
|
Home away from home Group: Member Posts: 4,478 Joined: 25 November 05 From: South Wales Member No.: 151 |
Quite shocking results...so far!
 Michelle 
|
|
|
|
|
6 Jan 2007, 18:34
Post
#3
|
|
 Founder + Admin  Group: Admin Posts: 2,540,130 Joined: 16 July 04 From: Bucks Member No.: 1 |
I'm moving this to the Polls section
 Except that I've just realised one can't reply? (not too sure now how I set it up!) If you can't reply, please let me know. -------------------- Marina
(belated DX June in 05, SPMS) |
|
|
|
|
13 Jan 2007, 13:38
Post
#4
|
|
|
Founder + Admin Group: Admin Posts: 2,540,130 Joined: 16 July 04 From: Bucks Member No.: 1 |
I've changed the settings for this Polls section so that one can reply when a comment might be requested or useful. However, replies in polls will only be when there is a question that requires you to comment.
-------------------- Marina
(belated DX June in 05, SPMS) |
|
|
|
|
22 Nov 2007, 18:07
Post
#5
|
|
 Just popping in...  Group: Member Posts: 24 Joined: 13 August 06 From: Barry, South Wales Member No.: 290 |
Eh oh
I gave up work about 2 months BEFORE I was diagnosed as I was too ill to carry on running my business. I have been unemployed for five years up until June of this year when my mother and I decided to run a public house. I struggle with the late nights and early mornings but I love feeling a part of something again so I plan to keep going for as long as I can. I take some time off in the week and leave the early starts to my mum as I am better at night. Take care, Sian 
-------------------- You need both the sun and the rain to make a rainbow appear
|
|
|
|
|
4 Mar 2008, 17:08
Post
#6
|
|
 Just popping in... Group: Member Posts: 34 Joined: 28 February 08 From: North Derbyshire Member No.: 694 |
I was working on a temporary basis but had to stop work BEFORE diagnosis
-------------------- ppms, diagnosed 1992
|
|
|
|
|
5 Mar 2008, 17:54
Post
#7
|
|
 Simply CANNOT stay away  Group: Member Posts: 206 Joined: 10 January 08 From: Lydbrook, Gloucestershire Member No.: 639 |
still working full time but struggle to do some things at work.
If i dont work im homless, simple. plus its my own business. cat nap in the afternoon works wonders! -------------------- Please ignore my spelling.. I struggle at the best of times!
|
|
|
|
|
7 Mar 2008, 22:12
Post
#8
|
|
 Simply CANNOT stay away Group: Member Posts: 174 Joined: 27 January 08 From: Lancashire Member No.: 666 |
I work part-time and sometimes when its heavy going, I DO struggle. Luckily I have a couple of good co-workers who share the burden.
Everyone in our department works hard except the boss!!! Says it all really doesnt it? |
|
|
|
|
9 Mar 2008, 22:26
Post
#9
|
|
 A bit of a regular!  Group: Member Posts: 54 Joined: 30 January 07 From: Manchester, UK Member No.: 384 |
My employers really good, they allow me to work from home and only turn in for meetings etc.
So I still work full-time. -------------------- Tracy
-------------------- There is a fine line between hobby and mental illness! |
|
|
|
|
31 Jul 2008, 23:49
Post
#10
|
|
|
Just popping in... Group: Member Posts: 27 Joined: 22 July 08 From: southamptom Member No.: 843 |
I still work full time but struggle at times as i work in a shopping centre it all depends on what time of year it is .My boss is understanding about the amount of time i take off.There are things that i can't do at work but also things i'm not aloud to do due to health and safety i an going to stay at work for as long as poss as believe it or not i enjoy my job and i feel guilty if i don't go in because i feel like i am letting other people down.
|
|
|
|
|
1 Aug 2008, 05:48
Post
#11
|
|
 Home away from home  Group: Moderator Posts: 1,001,977 Joined: 20 January 08 From: Southampton, Hants Member No.: 656 |
Still working but have cut my hours now to 30per week from home. I CAN work full time but it leaves me shattered & I have at least a day a week when I'm useless!!
Made the decision to reduce hours to allow me to manage my fatigue better & have more energy for fun outside of work 
-------------------- Cara x
|
|
|
|
 21 Oct 2008, 13:48
Post
#12
|
|
|
Simply CANNOT stay away Group: Member Posts: 206 Joined: 10 January 08 From: Lydbrook, Gloucestershire Member No.: 639 |
Now down to part time due to my MS
 , company is now struggling  been to job centre, waiting on an appointment with the disabled employment advisor! -------------------- Please ignore my spelling.. I struggle at the best of times!
|
|
|
|
|
5 Jan 2010, 09:29
Post
#13
|
|
 Home away from home Group: Member Posts: 906 Joined: 16 August 09 From: Kent Member No.: 1,234 |
I've been working part-time for nearly 7 years but not because of MS. I was only diagnosed just over a month ago and had been coping quite well I suppose until relatively recently, maybe because I do work part-time. However, on on one of my 3 working days, I work from 10 am until 7.30 and this is the hardest for me. The neurologist who diagnosed MS suggested that I talk to my employers and readjust my working hours. Fatique seems to hit me in the late afternoon/ early evening. I am contracted to work 20 hours a week. My immediate boss is lovely and has mentioned arranging to speak to HR about making any adjustments I may need. Adjustments have already been made in the hours for 2 colleagues, one of whom has ME/CFS. So far I've only taken time for medical appointments and tried to work different days so I don't miss work.
Tania 
This post has been edited by Tania B: 5 Jan 2010, 09:34 |
|
|
|
|
5 Jan 2010, 23:48
Post
#14
|
|
|
Home away from home Group: Member Posts: 744 Joined: 24 November 09 From: Yorkshire Member No.: 1,329 |
QUOTE (Wnella @ 5 Jan 2007, 19:16 )  Out of personal curiosity I was wondering how many of us are still able to work as I fall into "still at work full-time but struggling to keep going" category at moment  . Thanks for taking part  Hi Wnella Yes still working as many hours as I can but weather, economy and my mobility restricting my hours, I work in the building trade as a self employed builder. I can't carry anything heavy or walk far without stopping but I am hanging in there at moment with help, I guess I will have to stop very shortly though All the best Peter |
|
|
|
|
6 Jan 2010, 16:11
Post
#15
|
|
 A bit of a regular! Group: Member Posts: 143 Joined: 9 July 09 From: Aberdeen, Scotland Member No.: 1,185 |
I've been carrying on as much as possible since diagnosis in the summer. But I can't seem to add two responses. I work full time and part time to pay the bills. Is there a way to add this to that it would reflect it acurately? But I do sometimes struggle but just rest as much as I can when I get home. I'm fortunate enough that my MS isn't too bad right now, but I still have my limits and know when i've gone too far. Lucky for me that both my employers understand and always make sure that I'm feeling ok and not doing too much.
-------------------- Terri
Ohana - Where nobody gets left behind or forgotten |
|
|
|
|
28 Jan 2010, 12:11
Post
#16
|
|
|
Just popping in... Group: Member Posts: 15 Joined: 28 January 10 Member No.: 1,385 |
I was made redundant from a home-based job at the end of 2008, and I've not really looked for anything else (especially in this economic environment and living in the country)
Ben |
|
|
|
|
3 Feb 2010, 15:40
Post
#17
|
|
|
Simply CANNOT stay away Group: Member Posts: 155 Joined: 16 October 09 From: Kent Member No.: 1,292 |
I continued working for 5 and a half years after first getting MS, as I recovered completely and not much happened in the way of relapses.
I only gave up work to go on maternity leave, and I wasn't intending to return to work anyway, but I have deteriorated since then, and doubt I'd be able to work, unless there was a job right on my doorstep! Anyhow, being a housewife and mother is work enough. :D |
|
|
|
|
6 Apr 2010, 23:24
Post
#18
|
|
 Just popping in... Group: Member Posts: 23 Joined: 29 March 10 From: Suffolk Member No.: 1,466 |
I've got the perfect job really as I'm self-employed, working for a text question service from home (www.63336.com). I only work when i want to, there are no contracted hours. It means that if I'm tired, I have a nap... if my brain is fuzzled, I have a nap !!
Of course it does mean that as I've got worse, the amount I earn lessens and that's a problem. I tried to claim for disability benefit, but was turned down. -------------------- Beverley
xox |
|
|
|
|
29 Jun 2010, 13:28
Post
#19
|
|
|
Home away from home Group: Member Posts: 263 Joined: 26 June 10 From: South Coast Member No.: 1,535 |
Some 7 years after a formal diagnosis, I was offered an early retirement option. The Company was having a bit of a mass cull at the time.
I was just turning 50, my career was going nowhere and the office, where I was working, was being sold. So, having read the writing on the wall, I went quietly.......... -------------------- John aka Stumbler (as I do fall over!)
“Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!" |
|
|
|
|
26 Aug 2010, 13:25
Post
#20
|
|
 Simply CANNOT stay away Group: Member Posts: 231 Joined: 7 April 09 From: Bucks UK Member No.: 1,099 |
Managed to keep working full time as a Paramedic for a year after DX but after having my son in April this year I am not sure that I will return to my part time job that I have been doing since January this year, as since having little man some strange things have been happening with my MS
--------------------  |
|
|
|
|
|
Lo-Fi Version | Time is now: 9th September 2010 - 12:45 |
DISCLAIMER
The MS People Website and Forum contains information supplied by members. MS-People.com is not responsible for advice or information made by members and we suggest you seek medical advice before trying anything. MS-People.com reserves the right to delete any messages or pictures that are considered unsuitable for this site. Messages posted within this entire Forum express only the views of the author of the message and do not necessarily reflect the views of the MS-People.com Forum/website. Neither the MS-People.com Forum/website nor any person or entity associated with them will be held responsible for the contents, accuracy, completeness or validity of any information posted in them.
