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inkworks

Looking for some opinions

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inkworks

Hi everyone. I am hoping for some advice.

 

I went to the doctor a few weeks ago because I had noticed that I couldn't use my hands as well as I used to. They seem to shake slightly and I find it more difficult to do small things like put in my earrings and turn the page of a book.

 

At the time I had also been experiencing dizzy turns.

 

The doctor took some blood tests and so far it has been revealed that I have low b12 levels. He also said that my CRP level is high at 59.

 

Is any of this an indication of MS? I had a look at the symptoms of MS and I feel I have quite a few of them including-

 

Tiredness, Weakness, double vision (I have a prism in my glasses to correct this), numb hands and feet when I wake up in the middle of the night, needing to urinate a lot and sometimes having difficulty starting to urinate.

 

I know I cannot be diagoned over the internet but I would be grateful to hear any opinions. I am a 22 year old girl.

 

Thanks

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davidtaylor603

I personally think that diagnosis is where neurologists earn their keep. MS is a difficult disease to diagnose and there is no absolute test for MS so even neurologists get it wrong sometimes. When my wife was diagnosed in 1986 the misdiagnosis rate was about 20% (information taken from re diagnosis figures for drug trails at the time). This may still be as high as 15% now but since no one is going round deliberately miss diagnosing people then how could we derive an accurate number.

 

You symptoms could indicate MS but equally it could be something else and your best chance of knowing is to push for a diagnosis.

 

Clearly however you have a problem and even if you can not get a diagnosis there are things you could try like homoeopathy or acupuncture and maybe even LDN. One of the great thinks about alternative health is they treat the whole person so a formal diagnosis is not so important, they are generally a lot safer so whilst you risk spending money on something that may not help you do not run the often huge risk of the prescription pill culture so prevalent in western medicine.

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Hezza

Hello & :happy2:

You're quite right in that some of the symptoms which you describe could be MS but they could also be related to a number of other things. I know it's hard but please try not to panic and think the worst as you'll just become more worried and stressed and that's a bit of a vicious circle.

 

David is right when he says you should push for a diagnosis. It sounds like your GP is already on the case and my advice would be not to take no for an answer. You know your body best and you know that things aren't right so keep pushing for answers. You could mention your concerns about MS to your GP when you next see him/her.

 

I'm sure some of the others will be along with their own thoughts soon. Make yourself at home here, we're a friendly bunch :juggle:


Life is short. Eat dessert first. Jacques Torres

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debzsanderson

:happy2:

welcome!! Feel free to look around and ask as amny questions as you need to!!

I hope you get a diagnosis soon-keep us posted

 

debz xx


Mark has PP MS but I am his partner and do the posts as he cant use the computer!!

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inkworks

Thanks for the warm welcome!

 

Some of my blood results aren't back yet so hopefully they'll paint a clearer picture of what's going on. I just hate all the waiting around not knowing what's happening.

 

Does anyone know anything about CRP levels? My doc says mine is high which indicates inflammation in the body. Can this be used to diagnose or indicate MS?

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Michelle

Hi and Welcome,

A high crp obviously indicates severe inflamation. I'm not sure about this being indicative of MS. However, I do know that it is linked to rheumatoid arthritis,lupus etc. Plus low b12 can cause neurological problems. Maybe this is why you're have having problems putting your earrings in.

It's always bewildering when you're wating to find out what wrong with you. Hopefully, your doctor will be able to find out what's wrong with you via the result of your bloods. He/she might need to refer you to a specialist.

Let us know how you get on

 

Michelle :happy2:

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Gaynor

Hi there and welcome to the forum.

 

I understand the waiting must be the hardest part but you're in good company here as many members have gone through the same waiting game. As far as I know inflammation could be used to indicate MS.....but as Hezza (Cara) says it could be as a result of other causes perhaps too.

 

Keep strong and hope you get some answers soon,

 

Gaynor

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inkworks

I think I'll call the doctor on Monday to find out exactly what my b12 levels are. He has meon pills for the low b12 but I have read that some people have to have injections for it to have any affect. The pills are not helping so far anyway.

 

Does anyone have double vision? I've had it for about two years and my optician has put a prism in my glasses to correct it. I have recently been referred to the eye clinic at the hospital to have it checked out. MS has never been mentioned as a possible cause.

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debzsanderson

My partner has something called Optic Nueritis which I believe is a sympton of MS for some people. Saying that there are so many symptons that mimic MS so waiting for the correct test results and the expert opinion from a specialist is vital.

 

Good luck

 

Debz xx


Mark has PP MS but I am his partner and do the posts as he cant use the computer!!

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inkworks

Well I called the doctor again today and here's what I know so far.

 

My B12 is low at 52 although my doctor doesn't think this has anything to do with my symptoms.

My CRP level is high at 59.

And today I found out that the results of an anti nuclear antibody test was positive.

 

My doctor definately thinks there is something going on so he is going to refer me. To who I don't know. These tests have just raised more questions and I feel like I've still got no answers.

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Gaynor

Sorry to hear your still left in a dilema....here's hoping the referral appt will be soon as.

 

Gaynor

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