http://ms-people.com/forum/index.php?app=blog Fri, 18 May 2012 11:39:52 +0000 forum_admin@ms-people.com (MS PEOPLE UK Forum) IP.Blog 60 http://ms-people.com/forum/blog/15/entry-323-clipboard-and-pen/
Take this morning, 6.55am, hammering on my front door!
I waited to make sure i wasn't still asleep and dreaming, but no, there it was again. By the time it took me to get out of bed,find my dressing gown and get to the door there had only...]]> Fri, 18 May 2012 10:43:00 +0000 http://ms-people.com/forum/blog/15/entry-323-clipboard-and-pen/ http://ms-people.com/forum/blog/53/entry-319-as-if-ms-isnt-enough/ My GP finally diagnosed a bladder infection (mainly because I thought it might be) and prescribed me some antibiotics. They seem to have done the trick and my mood seems to be pretty much back to normal. At least it was, until this morning, when I had to go back to the GP for the results of my bone density test (done a month or so ago). Now she... Wed, 16 May 2012 11:34:00 +0000 http://ms-people.com/forum/blog/53/entry-319-as-if-ms-isnt-enough/ http://ms-people.com/forum/blog/8/entry-315-learning-to-adapt/ I have been continuing my attempts to rejuvenate some very old rush bottom chairs. Two weeks ago saw a disastrous occurrence. I had been scraping off the old varnish when I took an unexpected fall of the MS variety. I landed with unerring accuracy straight across the one I was working on. It broke my fall, which was useful, but in the process... Mon, 07 May 2012 11:22:00 +0000 http://ms-people.com/forum/blog/8/entry-315-learning-to-adapt/ http://ms-people.com/forum/blog/10/entry-314-not-heeding-ones-own-advice/
Let me explain a little.

Some of you will be aware of a blog I posted a few months ago, about listening to our body's and, more importantly, listening to our 'MS lodger'......

I have failed to listen for several reasons,

1) my lovely 92 year old Mother in Law manged to fall down her flight of stairs. She...]]> Mon, 07 May 2012 09:23:00 +0000 http://ms-people.com/forum/blog/10/entry-314-not-heeding-ones-own-advice/ http://ms-people.com/forum/blog/53/entry-313-im-chucking-out-the-naudicelle-forte/ Fri, 04 May 2012 11:40:00 +0000 http://ms-people.com/forum/blog/53/entry-313-im-chucking-out-the-naudicelle-forte/ http://ms-people.com/forum/blog/53/entry-310-hello-to-all-you-lot-out-there/ Wed, 02 May 2012 12:45:00 +0000 http://ms-people.com/forum/blog/53/entry-310-hello-to-all-you-lot-out-there/ http://ms-people.com/forum/blog/50/entry-308-infusion-number-2/
I had my second infusion on Tuesday. It all went smoothly. Ididn’t get that fog descending over me this time, and I didn’t feel extra tiredof flu like after either. Am very glad to have the second one out the way as itis the second one that has the highest risk of allergic reaction. I think thatnext time I won’t have to wait...]]> Thu, 26 Apr 2012 18:51:00 +0000 http://ms-people.com/forum/blog/50/entry-308-infusion-number-2/ http://ms-people.com/forum/blog/40/entry-307-could-be-exciting-news-for-all-of-us-please-read-this/ http://www.theaustralian.com.au/news/breaking-news-old/discovery-could-halt-ms-progression/story-fn3dxity-1226338953415




MELBOURNE researchers may have found a way to block the progression of multiple sclerosis (MS).

Blocking a specific protein responsible for nerve damage acted as a hand brake to progression of the disease, researchers...]]> Thu, 26 Apr 2012 07:51:00 +0000 http://ms-people.com/forum/blog/40/entry-307-could-be-exciting-news-for-all-of-us-please-read-this/ http://ms-people.com/forum/blog/15/entry-306-something-in-the-air/ Tue, 24 Apr 2012 10:42:00 +0000 http://ms-people.com/forum/blog/15/entry-306-something-in-the-air/ http://ms-people.com/forum/blog/40/entry-305-ms-life-2012-manchester/ Anybody gone or going this year ? I am hoping to pop along later today .............. Sat, 14 Apr 2012 23:49:00 +0000 http://ms-people.com/forum/blog/40/entry-305-ms-life-2012-manchester/ http://ms-people.com/forum/blog/8/entry-304-some-old-chairs/ The bare boards of the small functional room ware their age well. In the air a lingering scent, unaccountable like some old Victorian house. There is nothing modern here. Its 1964 and one frosted glass window depicts the word ‘Second Class’ spelt out backwards in a satisfyingly curved but somewhat forlorn pattern. It brings in a diffuse light... Thu, 12 Apr 2012 18:48:00 +0000 http://ms-people.com/forum/blog/8/entry-304-some-old-chairs/ http://ms-people.com/forum/blog/15/entry-303-horizontal-world/
Woke up feeling more tired than when i went to bed,made ot to the bathroom (just), then on way back..CRASH...on the floor,why? what? how? i don't know,other than i stumbled and hit the deck.
Been here before i thought, options? I can scream until someone hears me?? I can struggle...]]> Thu, 12 Apr 2012 10:34:00 +0000 http://ms-people.com/forum/blog/15/entry-303-horizontal-world/ http://ms-people.com/forum/blog/9/entry-302-a-dream-life/
I have this recurring dream; where I go to a place which is so familiar to me I know it really well. I always get there by bus, get off at the top of a hill and walk down and turn left into a big museum. It's a huge building – partly circular where the entrance...]]> Thu, 05 Apr 2012 11:31:00 +0000 http://ms-people.com/forum/blog/9/entry-302-a-dream-life/ http://ms-people.com/forum/blog/8/entry-299-making-sense-of-it-all/ An experience I had last week reminded me of the complexity of fully understanding our own situation after a diagnoses of MS. These days I meet and know quite a few people who have MS and in every case the way this has affected that person is different. The way it has progressed is also very different. I recall myself, on being diagnosed and... Thu, 29 Mar 2012 16:05:00 +0000 http://ms-people.com/forum/blog/8/entry-299-making-sense-of-it-all/ http://ms-people.com/forum/blog/50/entry-298-infusion-number-1/
Today I had my first Tysabri infusion. It all went very smoothly. I was most nervous about them getting the cannula in but the nurse was obviously a pro, even that was fine. The first and second...]]> Thu, 29 Mar 2012 11:25:00 +0000 http://ms-people.com/forum/blog/50/entry-298-infusion-number-1/ http://ms-people.com/forum/blog/40/entry-297-new-study-on-booze-coffee-fish-ciggys-and-its-effect-on-ms/ http://onlinelibrary.wiley.com/doi/10.1111/j.1468-1331.2011.03596.x/full



A recent European study had some interesting findings about alcohol, wine, coffee and fish consumption and how it impacts disability progression in people with relapsing-remitting MS (RRMS).

1372 people registered with the Flemish MS Society in Belgium answered a survey...]]> Wed, 28 Mar 2012 15:56:00 +0000 http://ms-people.com/forum/blog/40/entry-297-new-study-on-booze-coffee-fish-ciggys-and-its-effect-on-ms/ http://ms-people.com/forum/blog/15/entry-296-leaning-on-a-lampost/
I live in a cul-d-sac, and each morning i am trying to take a little walk,out of the estate,onto the main road,to the corner of the high street and back down into the estate.It works out i walk in a sort of circle back to my front door. I am marking the length of my...]]> Mon, 26 Mar 2012 09:55:00 +0000 http://ms-people.com/forum/blog/15/entry-296-leaning-on-a-lampost/ http://ms-people.com/forum/blog/10/entry-294-the-shipping-forecast/
Radio on this morning and I heard the Shipping Forecast, which reminded me of a sailing occasion..........

Many years ago, when I was a really active sailor, I joined a great friend of mine, Bernadette (Bernie) on her 26foot Gibsea sailing yacht for a weekend of sailing, fun, beer and cake! An all girl crew, just the...]]> Sun, 25 Mar 2012 12:30:00 +0000 http://ms-people.com/forum/blog/10/entry-294-the-shipping-forecast/ http://ms-people.com/forum/blog/8/entry-293-kinky-knickers/ Fri, 23 Mar 2012 19:07:00 +0000 http://ms-people.com/forum/blog/8/entry-293-kinky-knickers/ http://ms-people.com/forum/blog/8/entry-292-worst-day-ever/
Truth is I am not good, but am laughing myself at the very thought that its certainly not a bad day! The sun is shining through a light sea mist and here on the coast the air remains cold. Tucked up behind...]]> Thu, 22 Mar 2012 13:52:00 +0000 http://ms-people.com/forum/blog/8/entry-292-worst-day-ever/ http://ms-people.com/forum/blog/48/entry-289-piped-at-the-post/
I have lived in my little bedsit in Halifax town for over 13 years now and get on very well with my landlord Peter, over the years I have only had to say these windows are letting in water and before 2 week were up double glazing installed, I wont bored you with all the updates but there has been a lot, the last one being a full new...]]> Mon, 19 Mar 2012 04:52:00 +0000 http://ms-people.com/forum/blog/48/entry-289-piped-at-the-post/ http://ms-people.com/forum/blog/8/entry-287-getting-the-lid-off-the-branston-pickle-jar/ Wed, 14 Mar 2012 11:12:00 +0000 http://ms-people.com/forum/blog/8/entry-287-getting-the-lid-off-the-branston-pickle-jar/ http://ms-people.com/forum/blog/15/entry-286-world-of-my-own/
So today started crap, with a mammoth effort to get out of bed,wobbly legs staggering to the bathroom, and putting on knickers and socks was like a round in the crypton factor.
Couldn't face any breakfast(or...]]> Mon, 12 Mar 2012 18:19:00 +0000 http://ms-people.com/forum/blog/15/entry-286-world-of-my-own/ http://ms-people.com/forum/blog/9/entry-285-drama-queen-yep-stoic-yep/ Sat, 10 Mar 2012 20:58:00 +0000 http://ms-people.com/forum/blog/9/entry-285-drama-queen-yep-stoic-yep/ http://ms-people.com/forum/blog/48/entry-284-the-radio-ham/ I thought to myself one day, what can i do, should one day need to use a wheelchair, I thought back to the days when I used to go on CB radio, I looked on the net and started to read up about becoming a radio ham, well I was surprised to find a lot had changed and there was now a three tier system woooo hooo easy I thought, so I phone my local... Sat, 10 Mar 2012 12:47:00 +0000 http://ms-people.com/forum/blog/48/entry-284-the-radio-ham/ http://ms-people.com/forum/blog/8/entry-283-ability-calibration/
I’m in one of those peculiar ‘spaces’...]]> Thu, 08 Mar 2012 21:00:00 +0000 http://ms-people.com/forum/blog/8/entry-283-ability-calibration/ http://ms-people.com/forum/blog/8/entry-281-looking-for-potential/
I was lucky as a child that my Grandmother lived only a short distance away from a local stream called the Ant. I suspect it may not be the reason the river goes by that name, but it does possess many...]]> Mon, 05 Mar 2012 12:47:00 +0000 http://ms-people.com/forum/blog/8/entry-281-looking-for-potential/ http://ms-people.com/forum/blog/8/entry-280-laughter-in-the-shower/ Sun, 04 Mar 2012 10:03:00 +0000 http://ms-people.com/forum/blog/8/entry-280-laughter-in-the-shower/ http://ms-people.com/forum/blog/40/entry-278-i-think-i-have-definitely-nailed-it-on-my-rebif-injections/ Fri, 24 Feb 2012 23:11:00 +0000 http://ms-people.com/forum/blog/40/entry-278-i-think-i-have-definitely-nailed-it-on-my-rebif-injections/ http://ms-people.com/forum/blog/40/entry-276-accused-of-pretending-to-have-ms/
Now I have to find somebody who was actually there rather than rely on `somebody said that they heard from someone that.....`

Saf]]> Thu, 23 Feb 2012 00:36:00 +0000 http://ms-people.com/forum/blog/40/entry-276-accused-of-pretending-to-have-ms/