Jump to content

  • Log in with Facebook Log in with Twitter Log In with Google Sign In
  • Create Account

The MS PEOPLE UK Forum
Support, help, advice & information for Multiple Sclerosis. Ask questions & share experiences with people affected by MS.

Activity Feed

See what's happening on the forum, and follow your friends.


  • Nindancer%s's Photo
    Nindancer replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Also a lover of House MD
  • Scully%s's Photo
    Scully received a "Like".
  • LollyW%s's Photo
    LollyW received a "Like".
  • Scully%s's Photo
    Scully received a "Like".
  • Stumbler%s's Photo
    Stumbler received a "Like".
  • KristyMartin%s's Photo
    KristyMartin registered as a new member.
  • Scully%s's Photo
    Scully replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Well, according to the Tv series 'House' ....Hugh Laurie, playing the Neurolgist Dr, House....always used to say " It's never Lupus"...! Over the past couple of years I've had 2 positive Lupus tests....only to be told..." they are probably false Positives"....Doh! Scully. PS. I used to get call...
  • LollyW%s's Photo
    LollyW replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Thanks Scully, me too! I don't yet have an appointment with my Neurologist but I've just emailed his secretary asking she books me in mid to end July. My Neurologist said he will need to see me in 6-8 weeks time, this was 3 weeks ago when he did my LP so works out to be about mid to end July....
  • Scully%s's Photo
    Scully replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Glad it's all done now Lolly. Have you got your neurologist appointment as yet? If not you could call and explain all tests are now done, as it will probably be a good few weeks before they can find you an appointment? Scully
  • Scully%s's Photo
    Scully replied to the topic "Summons for jury service...thoughts please ?" in General Discussion about MS.
    I think you may be right about that. In an ideal world I'd be happy to do it. I guess when I told them I'd need to pee often and needed an afternoon nap.....lol Scully
  • Stumbler%s's Photo
    Stumbler replied to the topic "Summons for jury service...thoughts please ?" in General Discussion about MS.
    Scully, on , said: 'So they will probably get me next time !!!' If there is a next time. My wife has never been called and she'd love to do it.
  • LollyW%s's Photo
    LollyW replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    All done within an hour :-) nurse said I had 'good waves' whatever that means lol. Think she meant the tests went smoothly. Results will take 1-2 weeks before they reach my Neurologist. Had LP 3 weeks ago and bloods before that so I'm thinking leave it 2 weeks then chase my Neurologist for my f...
  • Softsqueezy%s's Photo
    Softsqueezy changed their profile photo/avatar.
  • Scully%s's Photo
    Scully replied to the topic "Summons for jury service...thoughts please ?" in General Discussion about MS.
    'Scully, they probably won't call you again. They'll probably record you as permanently excused on health grounds ! Not sure about being permanently excused Stumbler....the letter that arrived says... 'We have excused your attendance on this occasion'...... So they will probably get me next ti...
  • LollyW%s's Photo
    LollyW replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Thanks Fran and Scully :-) At the hospital now. Quick coffee and up to Neurophysiology. Little bit anxious even though it's not scary lol. Will let you know how it goes. Lolly x
  • Scully%s's Photo
    Scully replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Hello Lolly, Evoked Potentials are really nothing to worry about. Visual evoked are, as above pads attached to your head, and you watch a moving checkerboard screen. It doesn't take long. NB. If you wear specs for any reason, even just for reading, take them with you as you will be asked to wea...
  • Softsqueezy%s's Photo
    Softsqueezy changed their profile photo/avatar.
  • Softsqueezy%s's Photo
    Softsqueezy replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    LollyW, on , said: Hey, Hope everyone's ok. Just checking in with a quick update. Decided to swerve the Duloxetine and continue with the higher dose Gabapentin. Evoked potentials tomorrow morning. Bit nervous. Any advice on what to expect? Should be last of the tests for a while and hopefully...
  • LollyW%s's Photo
    LollyW replied to the topic "Help! Anyone else have these symptoms?" in General Discussion about MS.
    Hey, Hope everyone's ok. Just checking in with a quick update. Decided to swerve the Duloxetine and continue with the higher dose Gabapentin. Evoked potentials tomorrow morning. Bit nervous. Any advice on what to expect? Should be last of the tests for a while and hopefully will get some ans...
  • ptlike%s's Photo
    ptlike received a "Like".
  • Marc%s's Photo
    Marc replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Marina, on , said: I might be wrong but I think I once read somewhere that this thing about looking at the able companion of someone in a wheelchair is something to do with the able person being at roughly the same height, eye-level wise, as the person talking to them. Totally wrong to do so, and...
  • Marina%s's Photo
    Marina replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Scully, on , said: I found it awful the way the staff, on entry, ONLY spoke to my husband, even telling him, not to use the red routes as I may tip out and full in the lake....she didn't even glance at me. ... In the queue, my husband caught up with me and although I handed over the dress and my...
  • Marc%s's Photo
    Marc replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Scully, on , said: How extraordinary was that! We went to a local NT place just recently, I had my walker with me, and a very helpful chap asked me if I'd like to make use of the electric one, as they keep several for patrons use! My husband turned very pale when I said yes please....telling th...
  • Scully%s's Photo
    Scully replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    How extraordinary was that! We went to a local NT place just recently, I had my walker with me, and a very helpful chap asked me if I'd like to make use of the electric one, as they keep several for patrons use! My husband turned very pale when I said yes please....telling the chap that there w...
  • Marc%s's Photo
    Marc received a "Like".
  • Marc%s's Photo
    Marc replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Scully, on , said: Hello All, I found the first use of a manual wheelchair just dreadful. First trip out my husband pushed me when we wisited a national trust place... I found it awful the way the staff, on entry, ONLY spoke to my husband, even telling him, not to use the red routes as I may ti...
  • Marc%s's Photo
    Marc replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Nick, on , said: My Action 2000 was provided by wheelchair services around 5 years ago. I find appropriate exercise is also very important. The old, over used adage, of 'use it or lose it' is very true. When first diagnosed with MS I was told by an MS Nurse 'not to put myself into a wheelchair...
  • Scully%s's Photo
    Scully replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Hello All, I found the first use of a manual wheelchair just dreadful. First trip out my husband pushed me when we wisited a national trust place... I found it awful the way the staff, on entry, ONLY spoke to my husband, even telling him, not to use the red routes as I may tip out and full in t...
  • Nick%s's Photo
    Nick replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    My Action 2000 was provided by wheelchair services around 5 years ago. I find appropriate exercise is also very important. The old, over used adage, of 'use it or lose it' is very true. When first diagnosed with MS I was told by an MS Nurse 'not to put myself into a wheelchair' There is a lot...
  • Marc%s's Photo
    Marc replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Nindancer, on , said: I can only use a pedal bin with the help of a crutch so I'm a 100% with you on that. I haven't used my walker in ages but I should try it again. I got a Musmate and I somehow felt crutches were probably safer with that as I'm sprung loaded! But yes, the brakes are easy to h...
  • Nick%s's Photo
    Nick replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    Hi Marc I have an Action 2000 which I only use when I have to! I suppose that if I was at work I would use it all the time but prefer to use two sticks. The disadvantage being the limited 'range' and of course damage to shoulders. The incline problem is a big one with a wheelchair when you h...
  • Nindancer%s's Photo
    Nindancer received a "Like".
  • Nindancer%s's Photo
    Nindancer replied to the topic "Experiences of a Newbie Wheelchair User" in General Discussion about MS.
    I can only use a pedal bin with the help of a crutch so I'm a 100% with you on that. I haven't used my walker in ages but I should try it again. I got a Musmate and I somehow felt crutches were probably safer with that as I'm sprung loaded! But yes, the brakes are easy to hold so maybe I'll have...
  • Nindancer%s's Photo
    Nindancer replied to the topic "Summons for jury service...thoughts please ?" in General Discussion about MS.
    It's funny but it actually occurred to me the other day that I had no idea what'd happen if I was called up for jury service - I always thought it'd be interesting but don't think I could do it now! Relieved to hear these snippets Sonia x
  • Scully%s's Photo
    Scully received a "Like".
  • Stumbler%s's Photo
    Stumbler received a "Like".
  • Scully%s's Photo
    Scully received a "Like".
  • Scully%s's Photo
    Scully received a "Like".
  • Scully%s's Photo
    Scully received a "Like".
  • Skippysprite%s's Photo
    Skippysprite received a "Like".
  • Nick%s's Photo
    Nick received a "Like".
  • Stumbler%s's Photo
    Stumbler received a "Like".
  • Nindancer%s's Photo
    Nindancer replied to the topic "positives about having ms" in General Discussion about MS.
    Saving a bit of money on make-up & perfume as I don't go out every day! On flip-side, couldn't afford it now anyway Sonia x
  • Marc%s's Photo
    Marc received a "Like".
  • Stumbler%s's Photo
    Stumbler received a "Like".
  • Scully%s's Photo
    Scully received a "Like".
  • Stumbler%s's Photo
    Stumbler received a "Like".
  • Marc%s's Photo
    Marc updated their signature.
  • Marc%s's Photo
    Marc replied to the topic "Computer Mice (Mouses)" in General Discussion about MS.
    Will do, thanks again.
  • Marina%s's Photo
    Marina replied to the topic "Computer Mice (Mouses)" in General Discussion about MS.
    Going to test the MX Master out in a store sounds like a good plan! Whether you get an MX Master or not, please let us know what you end up doing?


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
Messages posted within the Forum express only the views of the author of the message and do not necessarily reflect the views of MS-People.com.
MS-People.com nor any person or entity associated with them will be held responsible for the contents, accuracy, completeness or validity of any information posted on the site.