Hi,
has anyone had neuro physio? I can't seem to find a single post about it...just wondered what peoples experiences of it were? did it help? I've recently started it and it seems to be making me considerabley worse...all across my upper back is agony and my 'walking' is nothing but a very slow shuffle now...I'm inclined to give up on it.
Fran x
Hi everyone
I do not know whether any of you have received the following request from the MS Society.
Just in case you have not, I am posting this email I have received to ask you to contact your MP to try to make a difference.
Great Dane x
Off-patent Drugs
Right now, researchers are investigating whether drugs that exist to treat other conditions can also be used to treat MS. These are drugs like Simvastatin, a drug normally used to treat high cholesterol.
Research shows this drug has the potential to slow the worsening of disability in secondary progressive MS. If further research confirms this, we’d want this drug to be made available on the NHS, but there are currently significant barriers that would prevent this. You can read more about the process onour blog.
How can we change this?
An MP, Nick Thomas-Symonds, has introduced a Bill in Westminster to tackle this problem and improve access to low-cost treatments for a range of conditions including multiple sclerosis.
Take action
To ensure the Bill is successful, we need at least 100 MPs to go along and vote for it on Friday 6 November. And we need you to contact your MP and encourage them to back the Bill.
The vote is on a Friday, when most MPs return to their local constituencies, which makes it more difficult to convince them to be in Westminster. Your email could make all the difference – please email them today.
We are supporting this Bill to ensure people with MS have access to the right treatments at the right time. Please ask your MP to do the same.
Thank you for your support,
Emma
MS Society Campaigns Team
I received the neurologists letter earlier this week.
He clearly listened and understood me very well and relays that in the letter.
He says that I fulfil all the criteria for CFS. He says he is unsure if the pain etc would fall within the spectrum of Fibromyalgia but in view of the severity he would like me to be referred to rheumatologist to exclude a significant rheumatological condition.
He said there were inconsistent distal sensory changes to pinprick and temperature.
He says in view of the patchy, unilateral nature of the neurological symptoms he is referring me for an MRI of the brain.
He's recommending I try Duloxetine?
Any comments appreciated.
Generally though, I feel that at least I am being taken seriously and they are covering all areas.
I saw the neuro today and he did some tests while I was there and has pretty much ruled out MS.
I have to go for brain MRI to be sure but then a rheumatologist and a psycologist.
Feel a bit numb, stunned and confused, don't know much about these and what happens next.
Hi Everyone,
My neuro appointment has finally come around. My biggest concern is not being taken seriously as I know many of you have had to go back numerous times. I was also not really taken seriously when I saw the neuro 5 years ago.
Any advice?
Thanks,
Katie x
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
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