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iomjax

Help scary symptoms

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iomjax

Hello hope you are all ok and sending you all loads of strength and love. Need to ask a question I have primary progressive and have had a scary worry and bloody awful new thing happening for about five months now my right eye has been hard to open after sleeping even if I am not sleeping and just shut my eyes my right eye is hard to open, well for about a month both eyes are doing this I cant open them at all for about ten mins if I try force them open its so so painful so have to lay there massaging around the eye and will finally open but will be so painful for about an hour or so, Does anyone else have this is this a ms thing? need some help as its horrible and very scary. thanks sorry if my spelling and punctuation is bad but eyes are rotten today thanks again jax x

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Skippysprite

Hi

 

Welcome to the forum, lovely people on here always willing to offer advice when they can.

 

I also have ppms, but have no experience of the problem you have, sorry.

 

The only thing is if they are weepy or sticky, could it be conjunctivitis? I maybe completely on the wrong track here, but thought it maybe worth mentioning.

 

Perhaps someone else who has had this problem will be able to advise.

 

Wishing you all the best.

 

Pam x


Live for today.......never have regrets

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iomjax

Hello and thank you for your reply it is a very scary I do not have conjunctivitis or anything like that they do not weep or get watery they are just not budging its horrible. My GP says it must be MS as its the muscle around the eyes which are doing it. My MS nurse was useless saying she has never heard of it?! but they were the ones who said you cant get neuritis in both eyes at eh same time?! it took my eye consultant to shout them down lol my neurologist again is pretty crap have to wait a year to see him as we live on a small island and they only come over from Liverpool every now and then and isle of man government only have a review/annual appointments contract with the waltons in Liverpool so we are very alone here.

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sammyj

I experience something a little similar although not to the extent you are suffering.

when I am tired my right eyelid droops and will not open wider. it is also the case when I wake up. if I wake in the night it doesn't get better but when I get up in the morning it isn't causing me any problems.

it looks like I'm having a stroke!

 

I imagine it is very difficult when you are getting limited support from MS specialists.

I am lucky and the consultant and the MS nurses are fantastic

 

hope things improve for you.

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