Hi all,
Haven't been on for ages but wanted to ask about nerve pain, I came off plegridy during covid and have been ok until I acquired more numbness in my right torso and it is sore sometimes, I originally acquired numbness on my left torso in 1990 but with no pain, wanted to see if anyone has anything similar, the pain is primarily more noticeable when moving in a certain way, it might not even be that but thought I'd ask, I'm 55 yrs.
Hope everyone is keeping the best that they can.
Cheers Stephen
Just been reading some old threads on here about Gabapentin vs Pregabalin.
I've been on Gabapentin for 2 years and have put on a lot of weight, the Gabapentin is also good for helping with sleep and when I've left them off, I've found getting a good night's sleep impossible, leading me to think that I'm already dependent on them. So my GP suggested switching to Pregabalin, however on reading up on them, it seems they are just as bad as Gabapentin for weight gain and becoming dependent. I've tried Amitriptyline in the past for neuropathic pain, but am very sensitive to meds and they just make me feel awful.
Does anyone know of anything else I could try, or is it a choice between weight gain or being in pain and not able to sleep?
Hi to all haven't been on here for a while, just been plodding on with life with a few hiccups along the way, i've been on Gilenya for 6year's come April well taken alternative day's been ok till last few week's my leg's feel so heavy and hurt all the time, I have episode's of feeling like my leg's are cold inside so weird feeling, from the minute I get up I ache then when I stand pain in my leg's start is this normal? this sight has alway's been great for help xx
I recently saw my NHS medical records for the first time and was quite surprised to see I'd apparently had a minor op that I'd never had, amongst other inaccuracies. However, my GP told me that these can't be removed or amended. Apparently, all they can do is add a note to say something along the lines of that I've disagreed with that particular entry, after I've put it in writing to them.
Maybe not all GPs are fully aware of what's in the following link, and/or of the reference "1" at the bottom of the page?
Amending medical records - what are patients' rights?
WWW.GPONLINE.COM
Practices could find themselves fielding more queries from patients about the contents of their medical records following the introduction of the GDPR. The MDU's Dr Carol Chu...
As an example: sometimes, incorrect data might the result of a doctor or specialist not hearing properly. Eg, I once had a specialist (not MS related) enter on his report letter that I'd had symptoms since 1974, which wasn't at all true. When I told him it was more like 1997, he insisted it was 1974 because that's what I told him. I had quite an argument with him before he amended his letter, as he kept insisting that what he "heard" must be correct.
Have any of you seen your medical records and found any errors or inaccuracies? If so, were you successfully able to get them amended?
Hi there, I have a symptom but I dont know if its ms related. My arms ache when trying to lift things. Even a cup of coffee or a book feel like a ton weight. Sometimes I just cant do it at all.
I walk up my stairs with the help of a bannister either side but last week the pain made me fearful of falling and my arms also felt weak. It gets better then worse.
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