New symptoms...

[Eastendgirl]

In the absence of being able to see GP which I am having trouble with at the moment, also waiting for lumbar puncture results and Neuro appointment - in the past month I have been experiencing symptoms which I've not had to this intensity before. Burning / stabbing / electric shock type pains in my arms, hands, legs and feet. Skin feels very sore to touch although nothing visible. Last week also lost my balance while standing up and if it weren't for the furniture around me, I'd have ended up on the floor.

I am taking Ibuprofen for the pain.

 

Just wondering if anyone else experiences this?

[Nindancer]

It's difficult to say when we're all so different, they don't all it a snowflake disease for nothing

If you're seeing your neuro soon then you could discuss with him/her but if the appointment isn't too soon, then I'd try to speak to your MS nurse.

Is the ibuprofen working? Usually neuro pain would need neurological painkillers. So it sounds unusual to me, to have all those different sensations in multiple places but I'm PPMS have some numb bits, some occasional electric shocks but only down my back (l'hermittes) etc. If the ibuprofen is working, you should probably see your GP.

Sonia x

[Marc]

Those symptoms are certainly not unusual with MS, I've certainly suffered from them at times. As Nindancer says, you should see your neuro as soon as possible if you can. I'm not sure Ibuprofen is a long term solution, it designed to be used for a short period at a time.

[Derick]

Half the battle with MS is finding a good GP who has experience of MS. It is not unusual to have a GP who has never encountered a patient with MS so ask around locally and do not be be afraid to change your GP. Ask questions to check out any potential new GP getting answers where you feel satisfied. It is your right.

 

I was once told, when these funny sensations developed in the hands, it was the nerve ending over firing. Made me feel like a sparking plug which have a habit of burning out!! Ask your GP or Neurologist if you can have a prescription for a transcutaneous electrical nerve simulator to relieve your pain. It will be trial and error finding the nerve path but once found the relief will be tremendous.

 

But the problem with MS, as with any treatment, is for some people it works and with others it does not so do not be disheartened