Hi all
I have been diagnosed with MS for 18 months (remitting relapsing) and the last five weeks I have had muscle twitching! This has me really worried about motor neurone disease!! Seeing neurologist in 3 weeks!! Seen 4 different drs and they have tried to reassure me but it hasn't!! They all said it would be highly rare. Spoke to ms nurse and also said it would be extremely rare. Does anyone else have twitches. Grateful for any replies
Good afternoon everyone.
I started on my copaxone last August and have felt so well since I wished I had done it earlier. At my previous rate I should have had two relapses since then but I am relapse free and life feels good
But, I am getting increasing pain in both legs and, sometimes my arms. The muscles feel weak and without strength - for example when I was doing my daughter's hair the other day I had to keep lowering my arms due to pain. My walking is now affected and the muscles hurt at rest. They are particularly bad when I first wake up.
They feel stuff and achy but not really "spastic" if you know what I mean. The MS nurse suggested baclofen and my GP has prescribed it but I wondered if anyone had had similar symptoms to these and if the baclofen (or anything else) worked.
Any words of wisdom would he gratefully received.
Thanks, Sam
Having had a bad shoulder for nearly 5wks i did ring drs 2wks ago but as i know theres not alot you can do for a pulled muscle,i was taking pain killers and putting ice pack on it did seem to be getting better,but last couple of days its been really bad to the point its like a shooting pain coming from the my the left side of my back going up towards my ear and face?the worst thing is i don't even know how i did it i litteraly woke up 1 morning in absolute pain and couldn't move of my pillow was so bad i just lay there crying,then i started with pain killers, cold pack, icespray, its now nearly 6wks and it's getting me down a bit as i can't even move properly for it,so had to ring drs again,now im waiting of there call
susan x
Hello All,
Nighttime as I posted before are a bit of a trial right now, as I do seem to wake with leg pain a lot, although its been better of late with increased doses of Baclofen, Gabapentin, and amitriptyline.
A second problem has been very severe and constant muscle twitching and spasm. The twitches are all down the whole length of my legs, and the pain spasms seems to affect my calves and feet.
If we cuddle up close ( which is fab for both of us) when my legs are against his legs. My partner commented that he could feel all my leg muscles 'going crazy' with twitches and movements that he could feel, constantly. The permanent movement causes him to have to move away as they are now driving him nuts!
Anyone else have this troublesome twitching and spasm problem?
Scully
x
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