Is it normal for MS to make usually unflappable people into screaming panickers?
Five years ago I was a professional person juggling all sorts of crises. But now, the smallest changes in plans leave me angry, annoyed and miserable. Why??
With my sensible head on I know cars break down, it rains occasionally , my favourite TV is cancelled. But, New loony head just can't cope...
Dont read if you dont want to listen to a whinger.
I have spoke before about mum not accepting my ms and her ongoing age problems.
I am an only child,
I visit once a week or more, She is 92.
I do her washing, I do her online shopping, I do her wiltshire food online. I do her banking and post etc.
She cant open tins or bottles anymore.
She is registered blind.
she is partially deaf.
she cannot walk well, shuffles and uses a wheelie walker.
She is borderline vascular dementia.
She cannot use an ordinary oven or phone she just presses the button to get me.
She is a bit incontinent urinary and i buy her pants.
She insists on washing her own underwear and I have seen them hanging in the bathroom and they have allsorts of stains on them.
I have told her wash them dry them and then I will put them through a proper wash, talking to myself there.
The only good thing is she is in sheltered housing.
We had seen her on sunday, then she fell monday cannot get up when she falls. So she shuffled and shuffled on her bum she said she had probably worn holes in her knickers shuffling on the carpet. So she pressed my button on the phone, to go and get her off the floor. I said have you got your alarm button round your neck yes she said so I said press it they will get there quicker than us 60 mile away So she did and they sorted her quickly.
I keep bursting into tears because I dont know what to do , I was a bit nasty this morning telling her if she didnt sort her knicker hygiene out she will have to go and be looked after somewhere. We are taking her for a CT scan tomorrow. I dont think they will find anything, her BP is better than mine her heart rate better. I look fine with my MS so people expect more from me.
She does not have any carers coming in. She has a cleaner once a week. I feel more resentful and nasty than when I first started looking after her. Thank goodness I dont live with her, think I would do something really really nasty.
Thank you for anyone who has read this, you cant help no one can the memory clinic put her forward for a social service assesment to get some care. still waiting
Now, here's a good lesson that I picked up from Facebook :-
"Apparently:
A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they'd be asked the "half empty or half full" question. Instead, with a smile on her face, she enquired: "How heavy is this glass of water?"
Answers called out ranged from 8 oz. to 20 oz.
She replied, "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, it's not a problem. If I hold it for an hour, I'll have an ache in my arm. If I hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn't change, but the longer I hold it, the heavier it becomes."
She continued, "The stresses and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them a bit longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed – incapable of doing anything."
Remember to put the glass down."
Ive had a really stressful and worrying weekend regarding my 19yr old son.Hopefully tomorrow alot of things will start to be sorted out.ive had woorsening of ms symptons i know stress can be a factor in this,is it possible for the stress to have a effect so quickly ? or just one of those things ? take care peeps,have a good day xx
hi all
i have posted a topic in the lounge but this is connected to that, my left eye is not seeing yet and i finished my steroids 12 days ago. should i be seeing yet? my other topic explains the stress i am having but could it delay my recovery? my eye is improved but nowhere near towhat it was before.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
