Hi
I'm new here and sorry to ask a potentially stupid question. My wife was recently diagnosed with RRMS. As part of the work up her EDSS has been recorded in the notes and in letters. Because of her fatigue she rarely can manage 500m walking. There are some concentration issues and word finding issues which worsen with fatigue. Here swallow is ok most of the time but she cannot manage red meats without care. When we questioned the score given (0) we were told it is correct as fatigue isnt taken into account. Is this right, it seems bonkers to me?
Thanks in advance
The worse thing now is the spasms of back pain I experience when standing for any longer than a couple of minutes. These disappear the moment I sit down. Has anyone any experience of this or any idea why it happens and what I can do about it? Thank you!
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any advice really dont know where to turn right now, Hubby has worked for the same company for 17 years, his job has recently changed and there has been several months of conspiracy to get him out, Instead of looking at what adjustments they could make they have been on a mission to prove he cant do the new job with nothing short of lies.
The company appears to have followed correct procedure but have lied and fabricated questions to get the answers they require, one of them being can he walk 3 miles. of course he cant but a motorised vehicle had already been discussed with his immediate manager.
Its all about the work hours changing and they sold this to him, his consultant and the works doctor as being working 4x12 hour shifts together when the actual hours are mainly 2 on 2 off with the most days together being 3 days and only 2 instances of this in a month! a HUGE difference!
Everyhting that could incriminate them is missing from the case management package,( but we do have copies of the majority of them) he had the final stage meeting last week and was given 12 weeks notice, dont actually know what reason it is because he has asked the union rep about going for unfair dismissial and according to him he hasnt been dismissed. According to the case management package he should have been told how to appeal at the meeting and he wasnt, and still dont know ( time is ticking away fro he 14 day deadline)
He has said all along that he doesnt want to take early retirement but will be forced into something we cant live on the pension let alone nothing! and being capable of doing a job with the employer that is bound to make adjustments and keep you is very different to getting another job!
Hes now been told to apply for IHR although it looks like this should have been done before the final stage meeting came about, I cant see how he can be trying to prove he should have IHR and prove he can work 12 hour shifts at the same time?
He was asked to sign a disclaimer at the meeting and offered his notice pay to be paid tax free, he refused they apparantly were quite shocked. From what I can see they wernt actually giving him anything as aits just a different way of paying notice pay.
I really think he has more than enough to take this for discrimination
I cant believe you can work for an employer and come out of it with nothing but the pension you have paid for and be forced to have no job because of a disability.
any help and advice, tired local disability place before he actually lost his job they gave him the phone number of a good laywer and havent been able to contact.
he has secondary progressive and in the last 5 months its made him worse than the last 5 years have MS nurse does say its stress, making him worse.
Got this email last night from the open university:
The OU community have been given exclusive live access: to the 'Disability employment conference - working together' online event and we would like to invite you to attend.
The conference is hosted by the Department for Work & Pensions and is a unique opportunity for business and government to come together and identify the challenges that others are facing and provide innovative solutions to be able to tap into this underemployed pool of talent and reap the benefits that this can bring.
Confirmed speakers are:
• Ashok Vaswani CEO Barclays
• Sir Andrew Witty CEO Glaxo Smith Kline
• Secretary of State for Department for Work and Pensions RT Hon Iain Duncan Smith
• Secretary of State for Business Innovation and Skills Rt Hon Dr Vince Cable
• Ruby McGregor Smith CEO MITIE
• Sir Stelios Haji-Ioannou, easyGroup
• David Abraham Channel 4
The conference will be co-hosted by the Minister for Disabled People, Esther McVey and Frank Gardner, BBC and entertainment by Chicken Shed and Abnormally Funny People.
Been watching since 9am, seems like a great chance to make some real positive steps forward, wish i could ask them all questions though....especially IDS! Although probably for the best!
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If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.