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  3. Staceyann1989

    More new symptoms...experience/advice?

    @Stumbler Thanks so much for your reply and all the info. Really appreciate it 😊
  4. Stumbler

    More new symptoms...experience/advice?

    Hi @Staceyann1989 , Teeth clenching is called Bruxism. It might not be a direct symptom of MS, but MS can be indirectly responsible. More details here:- Teeth grinding (bruxism) - NHS WWW.NHS.UK Read about teeth grinding (bruxism), which is the habit of grinding the teeth and clenching the jaw. It's usually stress-related. The "eye-scrunching" may have a similar cause. There are some details below regarding a "Facial Tic", which may, or may not, be the problem. But, there is one common cause for both of these conditions, Bruxism and Tics, and that is anxiety/stress, which is something that can be caused by MS. It might be worthwhile having a chat with your GP about these two issues. More about Tics here :- Tics - NHS WWW.NHS.UK Tics are unintentional, fast and repetitive muscle movements. Find out how long they last, when to get medical advice and how they can be treated. Hope this helps.
  5. Hi all. Hope everyone is doing as okay as can be! I've had these new symptoms for about .. 2-3 months now.. they're driving me insane.. My jaw/teeth clenching together. I'm not knowingly doing it. Just happens. Starting to really hurt my jaw and teeth from the strain and pressure of it. Also my eyes have been automatically squeezing closed. Sort of a similar feeling to when cutting onions (minus the tears and stinging) but that urge to squeeze the eyes shut. Does anyone else experience these? Thank you!
  6. Earlier
  7. Marina

    Have I got ms????

    Following on from Stumbler's comment above, you can find links about these various other conditions, in case it helps, in our Resources section here: https://ms-people.com/forum/links/category/15-conditions-that-are-similar-to-linked-to-or-mimic-ms/
  8. Stumbler

    Have I got ms????

    Hi @Totley and welcome. That question is frequently asked of us, usually as a result of some amateur diagnostics by Dr Google. Dr Google is a bit too enthusiastic in providing a diagnosis on limited clinical evidence and must be taken with a pinch of salt. what I am saying in that MS is a notoriously difficult condition to diagnose. Symptoms of MS also present in various other conditions, from a simple vitamin deficiency all the way through to quite serious conditions. In the first instance, your symptoms need to be assessed by your GP, as your Primary Care Provider. It would be a useful if you could previously prepare a short list of these symptoms, with date and duration. This may be useful for your GP. If your GP feels that there may be a possibility of MS, or other neurological-type problem, they should refer you onto a Neurologist. The Neurologist is the only medical professional that can determine whether it is MS or not. This process will take a physical examination, various blood tests and an MRI Scan, for starters. It really is a case of eliminating the possibles, then investigating the probables. So, not something that can be decided quickly. Hope this helps.
  9. Hi there's something not right with me, it's been building for months now, iv had many symptoms but this tingling prickling and numbness is stopping me sleeping now, need some advise please, don't know what to do??
  10. Advice from the Association of British Neurologists has been updated again, dated 22 March. Link to PDF: https://cdn.ymaws.com/www.theabn.org/resource/collection/6750BAE6-4CBC-4DDB-A684-116E03BFE634/ABN_Neurology_COVID-19_Guidance_22.3.20.pdf
  11. Thanks Marina, I am one of those currently waiting for an update on my reassessment for PIP, looks like we just have to wait! I can't help but repeat to everyone the value of subscribing to the Benefits&Work website.............so very very useful. Keep safe everyone Nick
  12. The Benefits and Work website has a page listing changes to PIP, ESA, UC and DLA. There’s also a FAQs section at the bottom of the page, made up of queries sent to them about benefits. Coronavirus updates WWW.BENEFITSANDWORK.CO.UK Get the benefits you're entitled to: help with employment and support allowance (ESA), personal independence payment (PIP), universal credit (UC), disability living allowance (DLA). Claims...
  13. I don't think MSers who are on DMDs are in the "extremely vulnerable" group, Nick, it probably depends on which DMD they're on. It would be best for MSers to check the links to the Barts MS Research Blog in this linked topic, including the one to their new Coronavirus Q+A site, as I think the opinions on which DMDs might be OK or not keeps changing: Yes, those of us who aren't "extremely vulnerable" are still "vulnerable" and the advice is still to "stay home" (according to the statements in this evening's PM's news briefing). That's partly where the confusion lies, as both groups are advised to stay home, (or "self-isolate" or however you want to phrase it). The "extremely vulnerable" group will be receiving a package of additional help and will have community "hubs" for extra help, etc. There is definitely still a lot that's unclear when it comes to the "vulnerable"... which, unfortunately, only risks creating more anxiety.
  14. Good point Marina, Ive just been trying to decipher this myself. I take it that those with MS who are using DMD's are in the "extremely" category, and those of us who aren't will be "vulnerable" but of course that is only my assumption based on what I have read. To be fair the government is running with maximum force at all this so there will be loads of things which will be unclear.
  15. The government couldn't be more confusing even if they tried... There's "vulnerable", which applies to all MSers; and there's now "extremely vulnerable", which doesn't apply to all MSers: Guidance on shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19 - GOV.UK WWW.GOV.UK It's the "extremely vulnerable" who are the 1.5 million who'll be receiving letters advising them to "shield" themselves for 12 weeks: The "vulnerable" (eg, not "extremely") are advised to be "particularly stringent" with social distancing for "some weeks", as per the link at the top of this topic:
  16. Some of the best information about MS and the coronavirus, especially if you’re on a DMD, comes straight from the horse’s mouth by Professor Gavin Giovannoni and his team at the Barts MS Research Blog. Comments in articles can also be informative. Please check it regularly as advice may alter from day to day. Multiple Sclerosis Research Blog – A blog for people affected by Multiple Sclerosis. Interpreting good, bad and other research news MULTIPLE-SCLEROSIS-RESEARCH.ORG A blog for people affected by Multiple Sclerosis. Interpreting good, bad and other research news The Barts MS Research Blog has also started what they call a “micro site”, which specifically deals with COVID-19 and has a Question and Answers section: MS-Selfie - COVID-19 & MS SITES.GOOGLE.COM
  17. There is updated advice from the Association of British Neurologists, dated 18 March, about the use of DMDs and MS on the MS Register website here: ABN Guidance | UK MS Register WWW.UKMSREGISTER.ORG
  18. For anybody interested in the "previous reference", @Stumbler posted it here:
  19. For those of us NOT on DMD's I thought the symptoms of pseudo exacerbation was a most interesting previous reference. It's the thing I'm kind of dreading. It is a difficult time but the more you know the better prepared you can be. It is only a few years ago when such things happened with no warning. Our generation in Western Europe have never experienced such uncertainty.
  20. Just to try to clarify further. There are two aspects for MSers and the coronavirus: 1/ The term "vulnerable". This to do with what restrictions etc the government puts in place. If you're 60+ yrs-old, or younger with one of the conditions listed in the link posted above, you are therefore entitled to an annual flu jab - which is what puts you in the "vulnerable" group. 2/ DMDs. If you're on a DMD, you may have a higher risk of catching the virus and/or of having more serious effects from it, depending on which DMD you're on. The link in the post below goes to a PDF from the Association of British Neurologists, which lists which DMDs may affect you:
  21. Good clear advice and thanks for posting it Marina. Of course it is a bit worrying but you can only do your best.
  22. Thanks for that Marina. Previous understanding was that people with MS were only considered vulnerable if they were on DMD's. It's good to have further clarification, albeit a bit worrying.
  23. MS is officially listed as one the of “vulnerable” conditions for the coronavirus (COVID-19)- regardless of whether we’re on a DMD or not - which means we should follow the advice for social distancing, and which the government link below says “is likely to be in place for some weeks” or which they said on TV would be 12 weeks... Guidance on social distancing for everyone in the UK and protecting older people and vulnerable adults - GOV.UK WWW.GOV.UK Stay safe everybody!
  24. Nick

    DLA to PIP

    Face-to-face health assessments for benefits suspended amid coronavirus outbreak - GOV.UK WWW.GOV.UK Claimants on disability benefits will no longer be required to attend face-to-face assessments. The change also covers health checks for Universal Credit.
  25. Jez-benign

    Corona risk

  26. Marina

    Corona risk

    A bit of semi-humorous advice here: Breakfast COVID..You will be Socially Distanced – Multiple Sclerosis Research Blog MULTIPLE-SCLEROSIS-RESEARCH.ORG Early morning Light breakfast reading…..It seems the UK Government want to use to “herd immunity”, so enough people get infected, recover and have immunity such that the chance...
  27. Jez-benign

    Corona risk

    Good advice, thanks
  28. Stumbler

    Corona risk

    @Jez-benign , if you were to receive an answer to this question, I, personally, wouldn't trust the answer. It's best to ask a medical professional, who probably won't know the answer too! Just generally, we are immuno-compromised, so our immune systems don't work properly. Our immune system can attack us, causing inflammation and nibbling away at the myelin sheaths that protect our nerves. Our immune systems can be activated when we're fighting an infection, for the duration of the infection. This can cause a flare-up of our MS symptoms, referred to as a "pseudo-exacerbation". This is not therefore a proper relapse, just a temporary flare-up until the underlying infection is cleared. Let's hope that that's as bad as it might get for those of us, who don't take Disease Modifying Therapies (DMTs). For those taking DMTs, they should review the advice from the MS Society and MS Trust, or the Bart's MS Research Blog. The following may be useful too:- Just keep washing your hands and take care.
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About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.

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