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Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

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  2. Marina

    Holiday of a lifetime

    Wow, Peter, what an absolutely horrendous time you've had! It must've been quite frightening to have been stuck all alone like that for 3 whole days, thank goodness for your friend! I'm very glad, though, that you really enjoyed your cruise, even if was cut short, to help recover from those two awful years and all that time in hospital. When on the cruise, were you able to go out and about and view any sights, etc?
  3. ptlike

    Holiday of a lifetime

    Hi John, yep I managed to reduce my bucket list by 1 ha Best wishes Peter
  4. ptlike

    Holiday of a lifetime

    Hi Marina P&O staff on the ship were fantastic, the only thing they don't do is dress you lol. I got celulitus in my leg one year then I fell on the floor another due to shingles and ms. I was stuck for 3 days, I had kidney failure, shingles mainly on my face and head and a large pressure sore. I felt so sick I couldn't reach my mobile or landline. I was lucky that a friend rang several times, became worried I hadn't answered so rang 999, there ends my tale of woe. How arse you? Best wishes Peter
  5. Marina

    Where are people from

    PS - I hope you won't mind, @Trace , if I move this to the "Lounge" section, as it would be more appropriate there
  6. Marina

    Where are people from

    Ah... Just to explain something for the sake of those using mobiles... When using a desktop browser on a computer, the name of the member who's posted is on the left of their post and not above it like on mobiles. Below their name on the left is a section that shows some profile stuff, including “Location” - but this doesn’t show on mobiles (or in portrait view on tablets) as there isn’t space for it on the smaller screens. Websites on mobiles are very often cut-down or simplified versions of what people see on desktop computers, so there might be bits that are visible in desktop browsers but missing on mobiles. For those of us on desktop computers, this is how we’d see that section below the member's name, with their "Location" if they've chosen to enter it in their profile: That said, not everyone wishes to enter their location, so the "Location" bit may not show for all members, although one can see all profile details if one goes to someone's actual profile page (by clicking on their name or avatar).
  7. WobblyGreg

    Where are people from

    Milton Keynes My wife and daughter go to Birmingham a lot. Or did before lockdown
  8. Trace

    Where are people from

    I’m from Birmingham
  9. Stumbler

    Where are people from

    Down on the Costa del South Coast here, near Brighton.
  10. Trace

    Where are people from

    Hi was just wondering what part of the country people are from!
  11. Trace

    Type of ms

    Thanks 🙏 I really appreciate your responses
  12. Marina

    Type of ms

    @Stumbler, I think that may depend on the individual MS centre or group. For instance, my local centre say they'll be restarting exercise classes in mid-September. @Trace, the MS Society also have a list of various types of groups. If you go the their main home page in the link below, then scroll down till you get to "Find support near you" and enter a postcode, it'll show a list of possible places that might be open for some things during these virus times. MS info, research, news and support WWW.MSSOCIETY.ORG.UK We’re the MS Society – a community of people who understand what life’s like with MS. Together, we're strong enough to stop it in its tracks. If you haven't yet got an MS nurse, it might be an idea to try to get yourself one as they might have some ideas too.
  13. Stumbler

    Type of ms

    @Trace , that wouldn't be possible under the present Pandemic Lockdown.
  14. Marina

    Type of ms

    Hi Trace and welcome! Have a look at the MS Trust’s link below. Put a tick in “Local support centres / groups” and it should hopefully tell you where your nearest MS centre is. Some of them have things like group exercise sessions or even coffee meetings, etc. The "map" can also tell you who and where your nearest MS nurse is. MS services near me | MS Trust WWW.MSTRUST.ORG.UK Use our map to search for an MS service that is near to you Good luck and I hope you find something that's reasonably open during these coronavirus times...
  15. Trace

    Type of ms

    Yeah zoom has become a big part of interaction now I want something to get me out the house and to talk to ppl about their ms etc
  16. Stumbler

    Type of ms

    @Trace , I am aware of some London meet-ups. In the present climate, they're using Zoom for virtual meet-ups.
  17. Trace

    Type of ms

    I was looking for meet up groups for ppl with ms but because of the covid they are not meeting in person atm.
  18. Stumbler

    Type of ms

    @Trace , I've been better, I just can't remember when.....
  19. Trace

    Type of ms

    Wow ok so u definitely know what your talking about! How u doing?
  20. Stumbler

    Type of ms

    @Trace , it does take time to realise what you're up against. As for me and my MS, I estimate 35 years from my first definitive relapse. Time flies when you're having fun.......
  21. Trace

    Type of ms

    Yes I understand.thanks still getting to grips with it all and understanding it. How long have you had me?
  22. Stumbler

    Type of ms

    @Trace , relapses can leave some residual damage. If it "flares" occasionally. this is where your body is talking to you.......
  23. Trace

    Type of ms

    Yes I’m recovered from that major relapse just have times where it feels like mini relapses if that makes sense
  24. Trace

    Type of ms

    Thank you. No lumber puncture had a few mri scans I was diagnosed with clinically isolated syndrome then had another mri which showed changes in the brain. My ms nurse is ok but only seems interested if I have a major relapse 🤷‍♀️.
  25. Stumbler

    Type of ms

    @Trace , so you recovered from the majority of your 2018 relapse? If so, you can assume that you have RRMS. Can I also assume that you've met, or been contacted, by your MS Nurse? They should be your first point of contact for all things related to your MS - GPs just aren't that experienced with MS. In particular, you should contact them for any suspected relapse activity. The following link will explain what is, and isn't, a suspected relapse:- Managing relapses | MS Trust WWW.MSTRUST.ORG.UK A multiple sclerosis relapse is a sudden onset of symptoms that commonly lasts for a number weeks. You will learn to "listen to your body" for any signs that your MS is "unhappy". You will then be able to consider whether there have been any specific trigger points. These could be being over-tired, being stressed, dealing with a run-of-the-mill infection, change of diet, the list could go on..... Can I ask who diagnosed you, title not name? Was it a Neurologist, following an MRI scan and, possibly, a lumber puncture? And has the subject of a specific MS treatment been mentioned? There's a lot to get your head round when you get given a diagnosis of MS. Acceptance can actually take a year or more, so be patient with yourself.
  26. Trace

    Type of ms

    I had my first and only major attack in 2018 they thought I’d got labarynthitis sorry can’t spell lol. Was diagnosed just before Xmas however no major attacks since but I have minor changes on and off. Seem to be suffering a lot with achey legs more than anything and tbh I think I’m still accepting it.
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About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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