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  1. Last week
  2. Stumbler

    fasting diet

    @Happymama , Baclofen can be prescribed by your GP. for spasticity.
  3. Happymama

    fasting diet

    No access to those meds, not DX yet. But I know what I have.
  4. Stumbler

    fasting diet

    @Happymama , great news on the weight front. And what a bonus to be saving money too. Shame about the spasms. Have you ever tried Baclofen?
  5. Happymama

    fasting diet

    Didn't get the job, but I've lost a stone since November when I weighed myself on the scales last weekend, and put a pair of size 14 jeans on. These went through the wash and next time, they were looser, noticeably so, just a week later. On the downside, spasms in my glute, quads at the top, and groin have reduced me to walking with a stick at times, and I have to go up stairs on all fours. I don't think the diet is going to stop my MS but I do think losing weight will help my knees and rebuilt-twice ankle. I gained it during the menopause and now that it's done I clearly don't need three meals a day any more which is a lot cheaper too!
  6. Earlier
  7. Marina

    Getting about at home

    Fran, this sounds absolutely awful for you and, as Stumbler says, quite ridiculous. Might either PALS or Healthwatch be of any help? Both have links on their sites to their local authority offices for your area. What is PALS (Patient Advice and Liaison Service)? - NHS WWW.NHS.UK Find out more about the Patient Advice and Liaison Service (PALS), which offers confidential advice, support and information on health-related matters. Help to make a complaint | Healthwatch WWW.HEALTHWATCH.CO.UK We understand that making a complaint about NHS or social care services can feel daunting. Check out our top tips and guidance to help you through the process. I do hope you can manage to get this sorted out!
  8. Stumbler

    Getting about at home

    Fran, you don't need me to tell you that this is a ridiculous state of affairs. Contact your GP's Practice and ask to speak to the Practice Manager. You can just read out your post above to recall the sequence of events. Let them know that you hold them responsible for where you find yourself and demand that they rectify the situation. Just be assertive, but stay polite. Hope this helps.
  9. Softsqueezy

    Getting about at home

    Hello Stumbler, Last July you recommended I contact my Ms nurse which I did straight away... my neurologist and Ms nurse both rang me and after a chat said I should have a powerchair and Ms nurse would contact wheelchair services.. in time I received a letter saying my gp would need to complete an assessment.. it turns out my gp received a form on 1st dec.. all the time I'm thinking it was getting filled in and returned to wheelchair services.. After a few weeks I rang wheelchair services to see how things were going.. they said we've not had your doctors report back yet! So my daughter repeatedly rang gp surgery to see what was happening.. eventually approx mid feb gp said I should go in and see her.. Well I did.. what a farce.. she held up fingers to test my sight., (twice) then I had to recite the months then again backwards..she gave me a fictional name and address to recite back to her at end of 'test' I had to push her hands up when she pushed down on mine.,did I know what day and date it was...then I had to count up and down from 20... end of test.. she forgot to ask me the address she'd asked me to remember... it was all a doddle.., oh and as I was leaving she added I need to go to an optician and get an eye test before she'd send form back to wheelchair services.... feeling like I might be getting somewhere now few days later I received a letter from wheelchair services saying as the gp questionnaire had not been returned in time I had now been discharged. Feeling so let down.. not sure I can go thru all that again.. Fran x
  10. Stumbler

    fasting diet

    It sounds like it works for you, @Happymama, and that's the main thing. There's only anecdotal evidence that dieting is beneficial to MS, but if it introduces a healthy lifestyle that makes you feel better then it's win-win. Well done and good luck with the new job.
  11. Happymama

    fasting diet

    Since the kids went to uni, I started having porridge for breakfast, and of course this fills you up for hours (as well as those betaglucans sorting the cholesterol out) and then eat a large meal at 2-3pm and then not at all. 12 hours later I go into metabolic switch to keto, as my liver has run out of glycogen to power my body. This burns fat and sugar. So I'm keto for around 6 hours. I've lost a size since November. This is a 6/18 fast, so I eat in the six hours and fast for 18. I can do this every day, it's a bit of a struggle getting enough veg so I have a portion of fruit juice (with the bits) with breakfast, so that's one. I have weekends off (wine) , croissants for breakfast and only ever feel hungry in the afternoon when it's time to cook. Within the six hour thing I can fit in a slice of Genoa with Cheshire cheese too. Two meals and a snack is a day's worth of calories. They do say don't eat for a few hours after you rise, which works for me, as I just don't want to even though my blood sugar is non existent. I walk the dog, make a pot of tea or coffee, feed the cat, empty the D/W/put washing in etc and then sit down with my breakfast. Fasting can reduce inflammation as well, which with our problems can only be a good thing. Also it's good for dementia as it raises a hormone in your brain that builds nerves, plus diabetes of course because insulin is reduced, and blood pressure can benefit too, apparently. You can do longer - 8/12 is common. Don't forget the fast is also overnight when you are asleep. Breakfast like a King - porridge with cream and muscavado sugar on, or a lavish cooked breakfast, Lunch like a prince - the main meal - and dine like a pauper - nowt bar herbal tea and the occasional tot of the good stuff for moi. I've applied for a job with the DWP, and will have to get up earlier to walk the dog. I might have the porridge before I go and then hope I can have my midday mealtime quite late, should be able to schedule that myself around clients.
  12. Well, that's a pretty comprehensive and technical explanation. Is that it now, or have you got a follow-up? As for the car, don't ignore that warning light if it persists.........
  13. Back with news. Went at two to see an expert, back at five. Not a migraine, I know what visual migraines look like. I had a wide field photo of both eyes, at the hospital, and a jelly loaded mirror lens pushed against my left eye directly, which was odd. Oh and three lots of pupil dilating stuff as sat around waiting for the photo for so long they had to use some more and it wasn't the stuff you wait 20 mins for it to work, either. As you age, from around 30, your Vitreous Humour (the jelly bit behind the lens, and iris etc, but before the retina. The retina is at the back.) starts to dry out and shrink (made of collagen), once it shrinks so far, usually beyond 50 and in short sighted people, people who've had bangs on the head, people who've had retina surgery before and unlucky folk like me, it pulls away from the retina. It can do this quickly as my right eye did. Or slowly, with stubborn bits stuck down bleeding, and when the tug happens when you turn your eye, you get electrical impulses that turn to light. They are around the eye, any across the eye is an emergency. I have blood in my VH. There is a bruise too, and bleeding going on, on the stressed retina, which will clear. I have some fearsome floaters, sticks thicker than usual, these should clear as they're made of blood. Still can see ok. No one knows what the other thing is. No one's ever heard of it before. I'll keep a diary (yet another lol). Warning signs: flashes across the eye, not around, and a veil of brown across the eye - both emergencies, go to A&E. You need retinal surgery urgently. It can affect your sight untreated. Glad I persisted in looking for a parking space (in a local street, not permit only, a rare beast indeed!) because where I thought of parking, there was another car and it has a ticket. I was ten mins late though. Took half an hour to find that space. Now having a pot of herbal tea, before I find something to eat. Not had anything since two mince pies at lunchtime. Fasting gap has now vanished but you can't win them all. Oh and the engine management light has come on in the car. No idea why, runs ok.
  14. @Happymama, this may or may not be related to what you’ve been having? In my case, the “dancing crystals” in my vision (as I call them) tend to be multi-coloured or they can be just sort of white:
  15. Let's hope the Optometrist has a view on this (See what I did there!). And let's hope you can get to see a Neurologist, who will look at your case history and reach a decision for you.
  16. Ha, no, that's not what it was. It definitely was in my eyes, or in front of them. Happened from the top a few days later, when I was dozing, I saw it on the back of my eyelids and it went in and out, and I opened my eyes and saw it then too, looking at the ceiling. It was MOVING. Eye burn does not. Told you it was odd. It looked like powder, literally so I could see through the outer reaches but not the base, where it was thicker. And retracted again, to come out again in a reaching cloud across my sight towards my nose, and back. Several times each time. The Photophasia is probably vitreous detachment which causes internal bleeding, hence the increase in much thicker floaters than usual, and many more than I had before. I was asked if I had a dark veil across, which isn't exactly what I experienced, a heavy bleed would NOT have retracted. That is a serious detachment if it was across all of it. Surgery. Optical neuritis I hope. Neat explanation and a referral to my GP who will refer it to a neurologist (given my history) as soon as possible. Christmas cake - loads left. Love Genoa, it's delicious, not as heavy as Christmas cake and still works with crumbly cheese. I have Christmas cake left over from last year and it's perfectly good to eat now. I've been putting it out for the birds. Have worked out that reading with head down means the floaters are in the way all the time, I keep brushing my face to shift hairs that aren't there. Reading head up so as looking at the TV lets them all drop down a bit out of the way. My eyes are a bit bloodshot, too.
  17. Wow, you're sure over-dosing on MS fun at the moment, @Happymama . I can only use my sense of logic on this latest ocular conundrum. I think it may be to do with the fact that you were staring at your bookcase. If there are books of contrasting colours, your eyes would see the brighter colours as "dazzling" compared to the darker colours. This would cause a temporary "screen-burn" of the bright images on your eyes. this screen-burn would move as your eyes move. That's my best take on this issue. It may be complete b******* (please insert your favourite word!) but it's the best I can do! Christmas cake? That was ages ago............... Take care
  18. Hi all. Am seeing the optometrist tomorrow within a 24 hour timeframe from report of symptoms (so serious) for flashes in the corners of my eyes when I move them, and a huge crop of really thick floaters. This is ok, there's loads of info online. I know what it is. This is different: Laid in bed (insomnia due to full moon interference, a story in itself) staring at the bookcase, I had a dark spot in the outer of my eye, which spread like powder in a cloud shape across my eye to the other side - I could see through the outer reaches of this, it was thinner there, so the powder analogy works. Then it retraced very smoothly, and then came again three times in that eye, and twice in t'other. A week or so later happened from above. I can SEE this, as in close my eyes and it's in reverse colour. There is nothing online about this, which is extraordinary in itself I think. Also how else likes Christmas cake (or Genoa - my fave) with Cheshire or Wensleydale cheese? I like them thickly sliced both. The creaminess and acidity of the cheese, plus the same texture as the rich, sweet and fruity cake, makes them perfect flavour partners.
  19. Stumbler

    Relapse

    @Happymama , see if your GP uses "E_Consult". It's an online questionnaire and you should get a response by the next day. Alternatively, call your local MS Nurse. I know you probably don't have one yet, but you can find their details on the link I'll provide below. Explain the situation and see if they'll assist. They might be able to refer you straight to the Neuro, whose ear they have. MS services near me WWW.MSTRUST.ORG.UK Use our map to search for MS services such as MS nurses, treatment centres as well as therapists and rehabilitation services near you.
  20. Happymama

    Relapse

    Stumbler, I can't get the GP to answer the phone - it just rings out. You have to go and bang on the desk, and I'm so fed up with things I might say something I shouldn't.
  21. Stumbler

    Relapse

    You're needy, @Happymama . Chase up the GP to find out why the referral hasn't been made yet!
  22. Happymama

    How We With MS Feel...

    I've had this, it's sluggish bowel, and you can get lactulose cheap from your chemist, i take two big swigs a day. This encourages bacteria in your gut to produce lactic, formic and some other acid to proliferate, so the body throws water at it to cure the problem by thinning the acids out (Citric!) and the water softens the stools. When I had sluggish, I tried to go after a week and tore horribly. Took a laxative dose once a week and would crap a whole week out in one go. Then twigged what was going on and moved to Lactulose. Now I keep a diary to spot it coming sooner. OK so 'went, ok' isn't a great addition to a diary but it might just help me track difficulty. I once lost my shin. It's a funny thing to lose a shin. Your leg has this palpable conversation with the brain and then gives up. I had to hop.
  23. Happymama

    Relapse

    Hi stumbler, no. Hitiris the neuro would not see me. Said I'd canx the visit and six months after I received the letter and went for the appt I found this out. He'd canx the visit the day the appointment letter date had on it. I was in tears. Rang the GP was in tears to her, she said he'd said I was not bad enough, she'd find me a different one and then Covid struck. So here I am. Need to ring the GP but I'm sure there are people more needy.
  24. Happymama

    It's all gone quiet!

    Well it was 14 and I've left. For suggesting that some people find relief from cystitis take cranberry which was told to me by my GP and is still recommended by GP's. Apparently it's been debunked but still works for some people. Binned as a moderator, but only after someone dug something up from the past. All that free time gives me time with the online paper (the FT) and on discord with the twins, and in the garden.
  25. Stumbler

    Relapse

    @Happymama , are you still on a Neuro's books and see them at all?
  26. OMG thank you. I thought I was going mental, or dementia - I have to cycle through words to find the right one and though it was a perimenopausal thing, now I think it's because I'm in a relapse.
  27. Happymama

    Relapse

    Fine. To be honest, I'd love to get optical neuritis, might mean someone takes notice of my symptoms. I get flashes in the corner of my eyes, too, the outer corners. Muscle spasms, trying to take hold but I fight them if I can and sometimes head them off. It's a relapse and I'm six weeks in, or around there.
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