My wife says the when she wakes me in the morning it looked very dazed, like I am coming out of a coma - don't know how she knows what that looks like. Is that just the fatigue or does everyone else feel really refreshed after a good night sleep? I don't have insomnia now, sleep is very good, very deep.
Not good news for those who may have pinned their hopes on DMDs. http://www.overcomingmultiplesclerosis.org/News-And-Events/Whats-New-Out-There/Detail/Interferons+have+no+effect+on+progression+of+disability+in+MS/
hi again , hope i am replying in right bit , not only does the ms slow me down, i am new to internet so 1 hand typer lol ! so bear with me if i do not reply to you all individualy at mo.i will do as i get faster { is that the time , started this reply last night ha ha } will get some pics up of my self , when i work out what to do ! recent ones too, not ten years ago oneslol! so that question, they say i have rrm ms , when i was 40 had really bad do , never really recovered , and feel i am just slowly , ever so , getting worse. does that mean progression ? currently on
no drugs. had my first relaspse at 33 , but ony dx 2 half years ago . any way coffee time now . like to leave a positive a bout ms . get to chat and share experiencies of ye lovely guys . keep smiling , if u feel u can not , sending one from me
Hi Everyone,
I have recently started getting MS symptoms (tingling, numbness, pricking, burning of skin, muscle weakness and vertigo). I am not yet diagnosed but have been suffering for 6 months or so now. I have no lesions but do you get lesions if in the very first stages of MS? who knows, maybe you do??
Either way I am presenting symptoms that hurt and are uncomfortable so until I get a dx, I will continue to try and find natural treatments that might help. Read this and see what you think, I have been drinking aloe for years on and off and since reading this, I have started again......
Therapeutic approach by Aloe vera in experimental model of multiple sclerosis.
Mirshafiey A, Aghily B, Namaki S, Razavi A, Ghazavi A, Ekhtiari P, Mosayebi G.
Source
Department of Immunology, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.
Abstract
Multiple sclerosis (MS) is an autoimmune disease of the central nervous system (CNS) that leads to an inflammatory demyelination, axonal damage, and progressive neurologic disability that affects approximately 2.5 million people worldwide. The aim of the present research was to test the therapeutic effect of Aloe vera in experimental model of MS. All experiments were conducted on C57BL/6 male mice aged 6-8 weeks. To induce the experimental autoimmune encephalomyelitis (EAE), 250 microg of the myelin oligodendrocyte glycoprotein 35-55 peptide emulsified in complete freund's adjuvant was injected subcutaneously on day 0 over two flank areas. In addition, 200 ng of pertussis toxin in 100 microL phosphate buffered saline was injected intraperitoneally on days 0 and 2. The therapeutic protocol was carried out intragastrically using 120 mg/kg/day Aloe vera from 7 days before to 21 days after EAE induction. The mice were killed 21 days after EAE induction. The brains of mice were removed for histological analysis and their isolated splenocytes were cultured. The results indicated that treatment with Aloe vera caused a significant reduction in severity of the disease in experimental model of MS. Histological analysis showed 3 +/- 2 plaques in Aloe vera-treated mice compared with 5 +/- 1 plaques in control group. The density of mononuclear infiltration in the CNS of Aloe vera-treated mice (500 +/- 200) was significantly less in comparison to 700 +/- 185 cells in control group. Moreover, the serum level of nitric oxide in treatment group was significantly less than control animals. The level of interferon-gamma in cell culture supernatant of treated mice splenocytes was lower than control group, whereas decrease in serum level of interleukin-10 in treatment group was not significant in comparison with control mice. These data indicate that Aloe vera therapy can attenuate the disease progression in experimental model of MS.
PMID: 20233107 [PubMed - indexed for MEDLINE]
With my weight I could do with being a lot taller.
Alternatively I could just lose some weight.
However, there are a few things that make this difficult.
Firstly I am Vegan. I already have a healthy diet.
Secondly, since being dxed I have further restricted my diet to cut out saturated fats and various other things that are supposed to be bad for MS.
Thirdly, to avoid the healthy exercise of falling over I now move about fairly slowly. Fourthly, Because my legs ache and I wear out quickly I tend not to move about for very long either.
I am not actually getting any fatter. I am actually a consistent weight. I just need it to be a lighter consistent weight.
So, rather than just guessing at how I might do this I thought I would try asking some experts. I called my ever helpful MS Nurse. She is doing to refer me back to an MS physio to see what she suggests. The Physio had previously given me exercises to help balance and posture but it will be interesting to see what she suggests as regards burning fat.
The nurse will also refer me to a dietitian (this may take a while to get an appointment apparently). This too will be interesting. I can't just cut the pasta (I would starve to death). Perhaps I could eat smaller portions but I need to eat to eat enough to sustain myself. Its tricky. That's why I am consulting the experts.
Archery just doesn't burn the fat even if I do have to walk to collect my arrows
I will let you know what they come up with.
OK, I guess I will need to tell you. I weigh 15 Stone, 5 pounds and I am just under 6 foot. I should probably be about 12 Stone.
Watch this overweight space,
Regards,
John.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.