CCSVI diary section?

[debzsanderson]

Just had a thought that it might be nice (if those concerned wanted to do it of course!!) to do a diary section for those people having the ccsvi treatment. We are considering it as a treamtent and curious to how over time the people having it find it helps and improves their MS.

 

debz xx

[colmmc]

I'm up for it ( but then I'd need to be really, Ive gobbed off so much about it on here.)

I go to Poland on 22/06/2010 back 27/06/2010

Then I will give it to you all straight, never was any good at pulling my punches.

 

colmmc

[Lindyloo]

[Hezza]

Hi guys,

Just letting you know that I've flagged the request up to the other mods for discussion

[Tania B]

I think this would be a very good idea.

 

Tania x

[Marina]

Before I decide if and how to do it may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).

 

Obviously, Colm would want to write about it . Who else is having the treatment who would want a diary?

 

Once I know, I might be better able to see about how to integrate it admin-wise

[colmmc]

Before I decide if and how to do it may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).

 

Obviously, Colm would want to write about it . Who else is having the treatment who would want a diary?

 

Once I know, I might be better able to see about how to integrate it admin-wise

 

'O' go on then you've twisted my arm,If you insist,You know I'm the shy quiet type but I will do my best.

8 Days to go.

And this is my100 posts, So many thing to celebrate.

Colmmc

[brainless]

thanks for this, Colm, we're all agog..... may well take over from W.C.!!!!

 

got your dates ringed on my calendar and willing you to good health

 

[colmmc]

Thanks Lotti

I really am getting quite Giddy about the whole thing.

Did I mention It's only 8 Days to go?

Or 8 more sleeps.

[brainless]

vaguely remember something... in passing!!!!!!! Can't stop grinning on your behalf!!!!!!!!

 

[brainless]

7 SLEEPS!!!!!!!

 

 

 

Thanks Lotti

I really am getting quite Giddy about the whole thing.

Did I mention It's only 8 Days to go?

Or 8 more sleeps.

[colmmc]

7 SLEEPS!!!!!!!

 

Who's been counting?

As the week go's on not sure I'll be sleeping at all.

[brainless]

Who's been counting?

As the week go's on not sure I'll be sleeping at all.

 

 

who cares????? think of the wonderful, contented nights you'll enjoy afterwards!!

[Marina]

May I please ask if we can keep on topic here, so's I can try to follow how many people, if any, would like a Diary. Thank you!

 

Before I decide if and how to do it may I please ask how many people would want a diary of their own? Would it be a running diary with several entries like the LDN ones or just a single entry describing the experience itself and how they felt afterwards? Remember, that diaries can only have posts in them by the person whose diary it is and no replies from other members (so that it doesn't go off-topic and whatever else).

 

Obviously, Colm would want to write about it . Who else is having the treatment who would want a diary?

 

Once I know, I might be better able to see about how to integrate it admin-wise

[brainless]

Marina

 

can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests.

[Tania B]

I think a Diary section is a good idea.

 

Tania

[Marina]

can I suggest we remove sub heading re Ireland on CCSVI thread? As you have now combined all the CCSVI threads it is a little misleading for any newbies/ guests.

Done

 

Re diaries, I'm afraid it would need quite a few people wanting to have diaries as there's quite a bit of work involved to set each one up and, so far, nobody has said they'd like one. It would also not be worth it unless they kept a running diary rather than just describe the day they had the procedure and any after-effects which can be put into one post (rather like Colm's already done). Sorry about that! In the meantime, we'll just see how it goes and if enough people eventually ask for one