Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
steve-b

Motability advice, need help

6 posts in this topic Last Reply

Recommended Posts

steve-b

Hey all,

 

I was wondering if you could help me at all, mum currently has a electric wheelchair from Route2mobility, she has had it for 9 months and it has caused us nothing but trouble, 2 battery packs, one suspension strut and 7 different callouts later and its still junk with a supposed capacity for 15 miles (that has never done more that 3 and a half without running out of power)

The NHS has now decided that mum is entitled to a chair, which is more suitable for her needs, and mum and her doctor think a motability car would be more benefical in the long term, but is it possible to change over?, because route2mobility is giving us no information whatsoever.

 

Thank you for any advice you may be able to offer

Share this post


Link to post
Dianni

Hi Steve

 

Have a look at www.motability.co.uk

 

The site is brilliant. I've also had nothing but help from the people on the other end of the phone when I've rung, so don't be scared to ring.

 

I have an NHS elctric chair. It was literally made to measure, and again, they have been really helpful. It weighs a ton so I've not been able to get out and about in it yet because it wont fit in our current motability car, but I get my new one on Wednesday with a hoist. Motability helped me decide which car would be suitable, and helped with a grant towards the Advanced Payment and cost of the adaptations.

 

I can't praise motability highly enough. I'd be completely stuck without their help.

 

Hugs

Di

xxx

Share this post


Link to post
steve-b

Hi Di and thanks for the reply

 

Ive contacted Motability today and theres a issue. They have said there is no reason why a exchange onto another plan wouldnt be allowed, BUT Route2Motability have mums contract, as they do for anyone who joined before may 2010 (motability only provide the chairs from then, before that they left it to R2M)

 

She said that if mums contract was with Motability, they could do all the paperwork and sort it out, but she said openly that R2M were not known for understanding and are not keen on transfers, since it means they lose custom to Motability.

 

Any advice on how to deal with R2M

 

For info on the issue of R2M see here: http://www.mobilise.info/changes-to-motabi...scooter-scheme/

Share this post


Link to post
Dianni

Hi Steve

 

Does your mum have a social worker who might be able to support your request to change from R2M? If your mum has an MS nurse, they might also be able to help, as I'm sure this situation will have occurred before in some form or another. To be honest, I've never heard of R2M so maybe someone else will be able to offer more advice.

 

If your mum doesn't have a social worker, her GP can make a referral and you would both then get a lot more advice and support that can be accessed through them.

 

Sorry to not be more helpful.

 

Hugs

Di

xxx

Share this post


Link to post
steve-b

Well theres no social worker, but the MS nurse has hit a wall too.

 

I spoke with motability and R2M today, Motability were great and said that if we cancelled with the scooter we were welcome onto the car scheme, no problem, which was good, they gave me some advice on how to deal with R2M.

 

R2M were not good at all, they basically said, we had signed for 3 years so thats it, they said the only way we can cancel is if we have been with them for more than 18 months and give them a months notice and a termination fee and a permanent ban from the motability sceme. NONE of this was explained to mum when we signed up to the scheme, paying a fee doesnt bother me, its a fair agreement in that respect and since ill be paying it so mum doesnt have to, i can accept but adding lots of terms and conditions and not informing us is not good.

 

This chair has been a nightmare, too big to fit though some shops, cannot go as far as town and back without losing 85% of its battery, keeps breaking down, plus R2M are about as helpful as a kick in the face!

 

Im sorry if I sound like im moaning, but this has been a 3 month saga and its distressing mum more than its upsetting me. Im really grateful to have somewhere to vent my fustration at the system with people who understand, thank you,

 

(and for Dianni ill explain R2M, Motability didnt used to have its own wheelchair scheme so contacted out to R2M to do it on their behalf, In early 2010 Motability bought out R2M and took over all new contracts, but old ones still run through the old company and is run as a separate entity) Hope that helps :hugs2:

Share this post


Link to post
Christina

I wonder if it might be a good idea to get some further advice on this, maybe from Citizen's Advice or a Consumer advice line.

 

Chris x :hearts_circle:


Not waiting for the storm to pass, but learning to dance in the rain ....

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • DLA/PIP Reassessment : Motability Update

      Here's the latest from Motability regarding transitional support if you fail to be awarded enhanced mobility in the upcoming PIP reassessments:-   http://www.motability.co.uk/about-us/news-and-information/motability-announces-transitional-support-package  

      in General Discussion about MS

    • motability car/informing DVLA

      Hello! Newbie alert :)   Hoping you can help meon this one - apologies in advance, it may be a long one!   Think I will do this in bullet form, as I do tend to go round the houses to explain things, and will probably confuse you as well as myself lol   9th Nov 09 white floater in my left eye, terrible headache, never had one like it or since. Over the course of 4 days lost sight completley in left eye.   13th Nov 09 went to walk in eye clinic - sent for an MRI scan. Optic Neurotis mentioned - of course looked up on the web and made the MS connnection!     Sight came back over about 3/4 weeks. I then had a numbness from chest down to my legs - as tho I was coming round from an op, sometimes feel like theres a very tight belt round my stomach - My feet also felt very strange - as tho I wouldn't know if I was wearing socks or not.   Early Jan 10 went to GP to see if he could speed up the neurologist appt, as I now had this numbness. He did write to the Neuro, who replied that he could not bring the appt forward, but suggested GP refered me directly to MS Clinic to speed things up. It seems very likely MS   18.2.10 Appt to see MS neuro (MS Clinic) Different Hospital, so didnt have access to the MRI scan. Sent for chest xray to eliminate anything else, also blood tests. Neuro to get copy of scan. In the meantime MS nurse will contact me this week.   With hindsight I am very sure that 2/3 separate episodes of not being able to walk properly - thinking I had a virus during 09 must have been some sort of 'attack'.   Today, I went to the orginal appt, and thankfuly the neuro, who is not MS specific, had a copy of the MRI scan - he is going to send a copy to the MS Neuro. Each of my symptons on their own would not point to MS but all of them together do.   Since yesterday afternoon, my tounge has gone numb and this morning woke up and my lips/chin numb and tingling.     Onto my question re DVLA   My 13 yr old daughter receives the higher rate mobility and care. I am looking into getting a motability car. I have more or less made up my mind that we will go for a Renault Grand Scenic, and have test driven an automatic, (never driven one before in my life lol) I know I have to inform DVLA, but is that when I have the official diagnosis? Am worried the DVLA would take my licence, then I'd be in a right mess, as I need a car to be able to take my daugher out and about, and for me too! Also I don't want to sign up to get the mobility car, only for DVLA to say I can't drive! Think I may be overreacting, as from reading on here, I think I am right in saying they would prob write to the neuro and let me carry on driving... and possibly give me a 3 year licence?   I am sposed to be getting back to the motability bloke to let him know what I'm doing.... should I go for it!   See, told you I went round the houses lol Any advice welcome ;-) Thankyou x

      in General Discussion about MS

    • Motability

      My Toyota Yaris had a little oil leak and I took it in to Toyota under warranty. It also has a little water leak from the rear screen washer so its going to go back in at the end of the month too. While I was waiting around in the showroom, I started looking at cars and their motability rep started talking to me. I said I was thinking about Motabiliy but would probably run my Yaris for a couple of years. He pointed out that I would get more for my Yaris if I sold it and got a Motability car now.   OK he's a salesman and really only wants to sell another car but at the same time he has a point. In a couple of years I will have about 72,000 miles on the clock. Not only that but he thinks I would do better with a Diesel Yaris rather than the Petrol I have now. They do about 50-60mpg. I am currently getting 42mpg.   The only downside to this idea is that I do 27000 miles more than the Motability people allow. They will charge me about

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×