Two weeks ago the diagnosis came through. After months of tests and being told different diagnosis (including that it could be in my head) part of me was, dare I say it, relieved.
Now though, reality has set in and I am trying to face it, but I'm really struggling. Every time I sit down to research it, I last around five minutes before shutting down the computer and crying.
Aside from that, my biggest decision is revolving around what DMD to go on. I have talked with my neurologist and she is talking about putting meon Rebif. Although she is a great support, I have been given so many leaflets and so much information that its just a complete overload! But she really is pushing rebif, and to be honest I do like the sound of the rebismart machine, if I have to use a needle everyday, I really don't want to have to see it.
If anyone could provide me with any advice or help I would really appreciate it. Is anyone on rebif? Or used to be ?
Thank you.
Hi all. Thought I would bring you all up to date with me.
Had my rebif training today and did the 1st injection which I might add BLOODY HURT!!
had the injection about 11am once I did it the nurse couldnt get out of my house quick enough lol.
Felt very woozy about 5 minutes later but luckily enough cleaner turned up and took my mind off it. Wen she left I felt instantly shattered plus injection site still hurting. Still feel woozy and tired after an afternoon nap.
Well next next injection on friday.
Vanessa xx
Hello mateys
I have been taking Rebif 44mcg for 7 weeks now. My blood test results came back last week with my IgA level high at 4.34 g/L (The optimum range is: 0.8-2.8 g/L)
Anyway my nurse told me to stop taking the rebif until they figure out what else is going on.
Saw my old neuro yesterday who was less than helpful, wasn't interested in my blood test results, had no interest in finding the cause and just said 'so when are you starting copaxone?' Despite the fact that up until now i have had very little problem with the drug. Anyway i told him i would like to see the specialist, so hopefully i won't have to deal with him again!
So my question is, has anyone else on rebif ever had high IgA levels and if so what happened, did you have to stop the rebif completely? Anyone know what else could be going on? I refuse to google it as i know i'll just freak myself out!
Thanks in advance
Laura x
I am starting treatment on Monday, I am starting on rebif which involves 3 injections a week, I have a massive phobia of needles so I am really nervous, but trying to stay positive.
Is there anybody on here that is on, or has tried rebif that can give me any advice?
Any help would be much appreciated.
Thanks
prdg xo
Hello,
I have an MS nurse visit on friday (18th) where i have to decide what to start jabbing myself with. I have been reading through lots of old forum posts with regards these two but couldnt find many direct comparisons in one place.
I know the basics but how have people found these two? Hoping to read something which helps me make a decision either way.
I originally liked the natural idea of Copaxone and the fact it doesnt cause liver damage but its seems it's effect on reducing any disability chances are not proven?
Thank you very much for any advice/ experiences in advance.
P.s. can you inject Rebif in your bum?!
P.p.s. needles and injecting myself doesnt bother me at all so i am trying to pick the best option for slowing things down hopefully....
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