Hi I have had various health problems over the past 8 years. (Migraines, cluster and thunder clap headaches). last few years have hands cramping, tiredness, muscle pain, burning lower legs and few, severe feet and legs cramps, tightness in lower rib cage, feeling cold water running in ankles/legs, spot of vibrating in thigh. I thought I might have fibromyalgia. GP has now referred me to neurologist to 'rule out ms'. My sister and cousin both have ms. I am not afraid I just would like a diagnosis but know it can take years. Can anyone please advise if my symptoms are more fibro or ms? Thank you.
Hi!
My name is Scarlet and I am a year 12 student who was diagnosed with MS last October. Because I am in year 12 I have been offered the opportunity to complete an EPQ (extended project qualification) which is where I choose a topic that I am interested in to complete an independent project on. As MS has recently become a very big part of my life I thought that this would be the perfect opportunity to find out more about it.
I would love to hear your stories from your diagnosis to more recent. I am especially interested in all your thoughts and experiences with MS treatment and research and how it has impacted your prognosis and lifestyles.
I would love to hear from anyone who is willing to share, this doesn't mean you need to have MS, it can just be someone you know who has it. I am still interested in your side of the story. Please also urge others you know to get into contact with me because I would love to talk/interview as many people as possible. If you would like to remain anonymous in my project that is absolutely fine, I will only use the information you give me if I have your consent.
Hi I'm being referred to a neurologist from my gp as she seems lost now as to what is wrong and after a chat today she suspects it's ms.
For 12 weeks now I've had tingling in my lower half with numbness/wet feeling in my knees but over the last 6 weeks ish it is now in my arms and face. I've been on every pain relief going and nothing is stopping it plus With my vision it's as if I'm in a trance all the time and with some new tabs I feel drunk . I've had neck and lumbar X-rays and an bloods done for nearly everything and they were all fine. I've had over 4 weeks ago a lumbar mri and still waiting for results but the doc has said today if I had a herniated dics I would of heard back by now so she has to think of what step to take next. She said for a while she has thought it has been early ms signs but didn't want to worry me. She now is going to see if I need to go for a brain mri before seeing a neurologist as I could be waiting months for an appointment.
I'm scared but unsure what to think at the moment.
These seem to be my main symptoms,
Tingling all over
Get pins and needles very easily
Feels like Sciatic pain mainly right leg
Vision seems like I'm in a trance
Sometimes feel very woozy
Go light headed quite abit
Ringing in ears(tinnitus)
Left Eye twitch on and off
Slight hand tremors but worse in the morning
Stiffness in my lower back
I do get rather low in myself quite abit but would not say depressed and I can't handle any kind of stress, I seem to loose my temper very quickly.
Any kind of advice would be appreciated. Thanks
Hi.
So I have my appointment. My doctor wrote that it's urgent, so I am being sent to a hospital quite far away, because the local hospitals has a 6 months plus waiting list. I'm being seen in July, the 12th. There was a closer date, but it was during one of my exams, which I can't miss.
What can I expect? This is my first appointment with a neurologist, though I have had an MRI before because about 15 years ago they thought I was epileptic. They found something on my brain then which resembles a lesion, but nothing ever came of it and I was diagnosed with type one diabetes which kind of took over.
All my symptoms after I've put down to diabetes, or over working, or whatever. (I did wrote all this in the introduction). But I am on the insulin pump now so I don't hypo all the time like I used to, but I still get dizzy spells and vertigo. And I've been tested for damage to nerves from diabetes, and my pulse and reactions and that are fine. Diabetic consultant says I haven't been diabetic long enough or had bad enough control to cause damage, and the tiny blip on my eye (one burst blood vessel) wont cause my blurry vision.
Thing is, I've been scared to tell anyone that I've been getting numbness, pins and needles, and pain, in my right arm and hand, because I was scared I would be told it's diabetic damage.
I've been seen by rheumatology because they thought I had rheumatoid arthritis, but the only thing the rheumatology people found was that I'm hypermobile. They did point out that by grip is weak, but when I pointed out my claw hand (my fingers wont straighten in my right hand unless I force them to by my other hand) they just said they didn't know what caused it and gave me some exercises to do (which make it worse).
A few years ago I was diagnosed with trigenimal neuralgia. But they did a scan of my head to look for nerves touching blood vessels and found nothing. I never got to see a specialist for that, and I didn't really push it because I decided it was probably tooth pain (it went to my forehead but I figured it was probably caused by tooth ache). My GP wasn't so sure. She's lovely, and really listened to my symptoms. All the stuff, blurry vision, hand issues etc, tends to be on my right side mostly.
I fall over a lot. Sometimes it's because I trip. Sometimes I have no clue.
I have no balance whatsoever. My husband is doing a degree is psychology and so has to do some neurology in it. He has done some of the tests onme already like getting me to stand still then close my eyes. Apparently I sway, but last week or so I actually fall over. And I can't do the putting one foot in front of the other.
Anyway, what can I expect from this first appointment? And what do I do?
Schedule
Hi.
I'm a type one diabetic with other autoimmune diseases, so I was reluctant to go to my doctor with the numbness because I was concerned she would say it's diabetes related. But it isn't.
When I was about 19 they found an abnormality on my brain. They called it a mass on my forth ventricle, but no follow up was done on it and it was about the same time I got diagnosed with diabetes, so that took priority.
I've been being seen by rheumatology who tell me I have joint hypermobility, but that doesn't explain the weakness I feel and the numbness.
About 6 or 7 years ago I was diagnosed with trigenimal neuralgia. My doctor believes this to be a potential sign of MS.
I had an appointment with her today and she has decided to refer me to neurology.
So, just really wanted to know what to expect.
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