“Find that word that you've been thinking about all day but just can't seem to remember”. This is something we MSers get, whether occasionally or frequently. This site might help you find that word:
http://chir.ag/projects/tip-of-my-tongue/
Hi, as you will probably know I'm still waiting for the results of my recent MRI and VEPs, so don't know if this is MS or not (argh!!). I have a question though. Whether this is MS or not, my symptoms 'appear' to be pretty similar, though of course no one really knows what another is feeling or going through.
Anyway, I digress. What I was wondering was (and I know it's probably different for everyone) does numbness usually at some stage turn to weakness? I'm getting a bit worried recently by my numb 'patches'. Today my whole spine, back, bum, left leg and foot and nose and lip have been really numb all day. At times I get the itching in these places and scratching makes them number.
The thing is that although my legs feel so weak, they don't let me down much. I have the occasional stumble, but no major falls or embarrassments. My MRC score was 5, which is normal, at my Neuro appt.
What I want to know is, though I feel weak and numb, could it be possible for these feelings to remain largely sensory, or does it usually escalate to weakness and disability?
Sorry, not a nice question, and I know how different it is for everyone anyway. Just wondered what the 'norm' is.
Thanks, Jan. xx.
Well had my second physio today! As she said last week, we focused on the back today and wow, was that an eye opener!
She tested my level of spinal movement and did weird pressing on my spine snf boy did that hurt. I didn't actually realise just how much my mobility had been compromised! Apparently, my lumbar region is extremely tight and stiff, (not to mention painful when pressed), and my hip is tilting backwards and the "S", in my spine is extremely deep and my thoracic spine is hypermobile! She has now passed meon to the consultant physio who I will see in 2 weeks.
What the hell do I make of this? If this gets worse then the spine will fuse. It's really worrying to say the least on top of all the MS suspicians.
For those out there who are diagnosed, could you tell me if this could be MS related or is it just my body giving up another previously undiagnosed, potentially serious problem? I am really confused and don't honestly know how to deal with this news as emotionally I am completely numb as the moment and I can't seem to "feel", anything. It's so frustraiting trying to remember what it was like to have a true emotional response to anything or anyone. So as a result, I don't know what to make of todays news and was looking for some input.
Thanks
Mandypie
I HAVE JUST PUT THE FIRST VIDEO THAT I TOOK LAST NOVEMBER THE DAY AFTER I WENT TO HOSPITAL WITH EYE PROBLEMS. I GOT REALLY HOT AND EXPERIENCED SEVERE BORING EYE PAIN, WHICH WAS WORSE ON MOVING MY EYES AND HAD BLURRED VISION. THE DR PUT IT DOWN TO AN OCULAR OCCLUSION POSSIBLY DUE TO MIGRAINE BUT ALSO SAID THAT IT COULD BE DUE TO MY CURRENT NEUROLOGICAL PROBLEMS (HE DIDN'T CONVEY THAT TO MY GP IN HIS LETTER THOUGH, WHICH WAS ANNOYING). I THINK MY EYE PROBLEMS WERE AS A DIRECT RESULT OF GETTING HOT! HE NEVER EVEN MENTIONED MY EYES ZIGZAGGING, WHICH I COULD CLEARLY FEEL! I REMEMBER THAT WHILST I WAS WAITING TO BE SEEN, I HAD A VERTIGO ATTACK TOO, WHICH I FEEL WAS AS A RESULT OF GETTING HOT THE DAY BEFORE? I STILL HAVE THESE EYE PROBLEMS TODAY, WITH THE ADDITION OF DOUBLE VISION.
PLEASE FEEL FREE TO HAVE A LOOK AND IF YOU HAVE HAD ANYTHING SIMILAR, CAN YOU PLEASE SHARE YOUR EXPERIENCE WITH ME.
I'M HAVING DIFFICULTY IN GETTING DR'S TAKE ME SERIOUSLY ABOUT MY EYE SYMPTOMS, ESPECIALLY ON GETTING HOT, SO ANY SIMILARITIES WOULD BE GOOD TO HEAR ABOUT.
MANY THANKS
REGARDS MIMI
http://www.youtube.com/watch?v=iTipVbPx_i8
I have been reading a very interesting article about childhood neurological problems in relation to my own family situation.
However, it states that eye muscle weakness and/or bed wetting up to age twelve could be an indication of neurological problems in later life.
This has got me thinking - I had lazy eys probs and weak bladder so am wondering if there is a link to ms. I am curious as to hear if anyone else suffered these muscle weakness probs in childhood.
Linds
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If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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