Hi there. I’m from
the USA. So right now I am scared and so is my wife. Here’s my story.
For the last three years, I’ve noticed that my memory isn’t great (although the change is very mild). My balance didn’t seem to be what it used to be either (although that too was mild, and I was lifting heavy weights and running with no problem).
Around Dec 22, 2018, I got a weird headache in my left temple— three mild pulses every half hour or so. The left side of my face went slightly numb. A day later, the numbness subsided and I got mild lightheaded was and felt off balance. No one could see me walking different or anything but I could feel it and knew it wasn’t right. This lasted three weeks straight, with occasional tingling in my right foot and right hand.
This past Tuesday Jan 14,2019, the dizziness ended. Then my right hand and right foot started getting tingling, itching, and patches of slight numbness. The left side of my face also became slightly numb once again (although barely perceptible.) the tingling and itching moved up and down my right leg, and reappeared in my right hand, never staying in any one place. Then the tingling moved to my left hand and my right is fine. Yesterday and today I have had very mild but perceptible muscle twitches in my right leg. I think my right leg feels a little more tired than my left, although I am not sure if I’m imagining it. I can still do single legged squats and so forth with my right leg and as of today I am walking fine, although every day my right leg seems to have some new symptom/involvement. My left leg muscles may now also be twitching.
So I did a TON of googling and I really can’t find anything that fits these symptoms except MS. Other things replicate some but not all of the symptoms. It seems like at my age it would probably be PPMS too. My grandmother on my mom’s side had severe PPMS, was confined to a wheelchair, then bed, lost the use of her arms, lost the ability to speak, and died.
I have an appointment with my GP Monday. I have always been a brave man but honestly right now I am really scared. My wife is also terrified. I know I am jumping the gun but I can’t seem to help it. MS scared me so much.
Hi everyone,
Hope it's ok for me to post here?? Quick Intro - I'm a 50 ish Mum of 2 plus husband and neurotic Border Collie! Currently under investigation for 'Neuro Inflammation'
Acute symptoms earlier this year saw me in A&E,eventually ended up on Neuro Ward for 5 days, was given 3 days IV Steroids & discharged with MRI results of 1 x non enhanced and 1 x enhanced spinal cord lesions, 'non specific' white matter changes in brain and Lumbar Puncture results pending.
Got letter today from Neuro, part of which reads:
"The lumbar puncture demonstrated 6 white cells, no red cells, a CSF protein in the normal range at 0.72 and a normal CSF glucose at 3 with a blood glucose of 4.5. There were oligoclonal bands seen in the CSF only which is supportive of an inflammatory explanation for your neurological problems, and suggests that the area of abnormality seen in the spinal cord was due to demyelination.
I will arrange for you to be seen in my next available follow-up appointment so we can see how you are recovering from your symptoms since you have had the intravenous steroids, and then we can decide whether or not further treatment will be required."
Thoughts anyone?? Have appt in October, not sure how I'm feeling , don't like the phrase "suggests the area of abnormality due to demyelination" .....consultant hedging his bets I guess??
I would welcome opinions based on others' diagnosis/non diagnosis experiences!!
Thankyou :)
Hello everyone... well as in the title I dont have a diagnosis yet but enough pointers to suggest possible ms... hence visiting here :-D .
I am Laura and I am a grandma to six wonderful young people from 1 year old to 16 years old ... so no spring chicken lol. I am privileged to work with rescue animals and people who have challenges in their lives so keep quite busy... oh and I "do " panto as well so def up for a laugh.
The reason I am hear rather obviously I suppose is that I have symptoms that might.lead to that diagnosis of ms. The latest that led to at last having referral for mri and neuro appt was two separate episodes of foot drop and leg weakness (one three years ago left leg and one now right leg) as well as in last three months transient double vision, cold sensations in leg / abdo, bowel leakage, tics ans cramps in right leg , facial neuralgia and hot flushes. Of course looking back over the past years can now see other possible more minor issues possibly symptomatic so this may be have been on the go as it were for years .
Scan on thursday.. have had bloods done but no results yet... waiting for neuro appt to arrive. So the limbo challenge proceeds... just feeling the need to connect with others who will understand now.... thanks.
Hi everyone just to introduce myself I am 40. First developed burning pain to arm 4years ago had nerve testing and told normal was also getting words wrong sent to neuro who told me all those symptoms were normal everyone got them. The burning continued intermittently lasting a few weeks then would go. Might be any arm or leg but only 1 at a time. Also started with chronic daily migraine so told these could be symptoms of that and would clear along with migraines on meds-well head pain went the rest didn't. About a year or more ago I developed urge incontinence and I assume incomplete bladder emptying as several times I go to the loo stand up and legs are wet. Earlier this year I started falling a lotwwith tingling/ice cold sensation to rt leg and getting words wrong again or *stuck*. Sent back to neuro who found increased reflexes, positive rombergs and some reduced sensation to feet, undetermined babinski so ?? Ms and sent for head and spine mrion t1.5 w/o contrast took about 45mins total. Haven't seen report but told normal. Bloods normal except low vit d. Past 2mths I developed numbness to lt gt toe and ice cold sensation to that leg and feeling that a tight band is round it causing pain. Very tired unable to get upstairs now without being exhausted and can sleep for England and I used to be extremely fit doing marathon etc. Back to neuro next week but not sure what will happen, what to think etc
Anyway that's my story so big hello
Hi everyone! I'm a 39 year old married mum of one. I work from home. Just over a year ago I noticed that I was getting a collection of random symptoms, including dizziness, stiff calves, shakiness, pins and needles and odd sensations on my scalp. I was clumsy, forgetful and had trouble getting words out.
I went to my doctor who advised keeping a symptom diary (I may have had a blood test at the time but I've forgotten).
So, a year later I was still experiencing these things. They vary from day to day but the fatigue, dizziness and twitching are persistent. My GP tried meon Betahistine for the dizziness but that didn't help. He suspects M.E. but I agree with my Shiatsu practitioner who doesn't think so. Nobody has said MS to me but I strongly suspect it. I'm due to see a Neurologist in late November.
Waiting is hard, so I choose to talk about this!
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
