Good morning all,
I am new to this site, I have been diagnosed with MS for 3 years and on the whole I have manged the minor relapses well, I hold down a full time job am a Mum to 2 Kids (well they are now in their early 20's) and have a fantastic husband. Last month I had several areas that seemed to be attacked at the same time, to the point I was taken into hospital as they thought I was having a stroke (fortunately not!). At 50 (well nearly) I am having to walk with a zimmer frame and looking like I have drunk a liter of Vodka on an empty stomach.
My consultant is now recommending that I have a Disease Modifying Drug, I really cant remember the name of the drug he is suggesting, but I have to say that I am now terrified of this treatment. I know that they have to give you worst case scenario.... but......
I don't have anyone in my circle of friends or family who suffer with MS let alone gone through this treatment.
Can I ask if there is anyone that has gone through it and how it has improved their life with MS.
Thank you in advance for your support.
Hi Everyone, I am new here. I haven't het been diagnosed with MS although I am under investigations. Trying to keep a long story short (very hard lol!)... I am 26. When I was 15 I had glandular fever and never been well since. Three years after GF I was diagnosed with hashimotos thyroiditis. Around that time I started getting nerve pain in my right side (pelvis) that has got progressively worse ever since. 8.5 years on and its spread from my pelvis to pretty much my entire right side of my body ans still undiagnosedx I have nerve pain in my pelvis, groin, hips, bottom, leg, foot, face, head, arm and back - ALL right side. I am tired ALL THE TIME and I really mean all the time. I also have problems with both my bowel and bladder including going to the toilet to urinate about 5 times a night in average! I have lots of other weird and wonderful symptoms like tingling, feeling like my skin is crawling, that I don't want to be in my body because it's so uncomfortable, the list goes on. I finally wrote everything down and put it on a diagram. My gp has now refered me to the neurologist and wants me to have an MRI and brain scan. I'm very worried about having MS and what the future holds if it is. Does it sound like it could be MS/something related? I look forward to hearing from you all :-) xxx
i just came across something on the mss website. Three young women posting about thier experiences looking after thier mums after many years with ms. Its terrified me to be honest. Ive just been in tears to hubby but he doesnt know what to say to me. These ladies were left unable to do anything at all. It sounds horrific and now all im thinking about is my poor children and what they might have to go through. Is this how im going to end up? Im sorry im in major panic mode right now.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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