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gingermagic

A moving speech about the way forward

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gingermagic

Billion year old carbon

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Willow

Wow, that made me cry, so very moving. It should be everyones human right to have access to adequate health care no matter where you live but alas it always seems to come down to money, such a shame x

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happyandy

When I had my heart stents fitted and blood was going where it should I felt better than I had done in years.

 

Until recently I haven't been affected by MS Fatigue to often, maybe once or twice in two or three years. My MS is is characterised by limbs going completely numb, vertigo, cognitive dysfunction and neuropathic pain.

 

CCSVI from what I have read seems to help people who have fatigue.

 

We could do with a big trial to give an empiric verdict on the theory's validity. So far no trial has given positive results. I fear if a test was carried out and it proved that CCSVI was not helping, we will get the "Big Pharma" conspiracies again.

 

I think it would be worth while carrying out a trial if only so that people did not have to spend thousands getting "treatment" abroad.

 

 

Andy

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If I knew I was going to live so long I would have taken better care of my body

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gingermagic

You are right Andy that CCSVI has distinct symptoms. One of which is fatigue. However it is sad that even those with ms are calling CCSVI a 'theorey'. Clinical trails are one thing, knowing, personally many people who have found benefit from this a no-one who has not. Why not investigate hope. The best hope that we have had.......ever

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Billion year old carbon

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Bigbird

Andy

A trial is being carried out in Canada so hopefully there will be results eventually. Not sure how they do a blind trial but that for them to sort out.

 

I like the sound of his mother. She sounds like my sort of gal.

 

There have been videos on YouTube with people initially being positive but after a few months being less so. And there have been reported deaths so it can be risky, but then so can crossing the road.

We'll see what transpires but whether it'll ever be on the NHS who knows?


Edited by Bigbird

Life's too short to be subtle

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