I’m not sure if anyone can back me. I have left a message for my nurse but unfortunately it does take time for an answer. Anyway just got my latest mri report & I’m really confused by what they’ve said. Am I right in thinking it is saying they’re is signs although low my lesions have got worse🤔
also I don’t get the meaning of the comparison to my other mri🥺🙈 any help greatly appreciated💞
‘corresponding low T1 signal denoting chronicity of the lesions.
Known MS, followup, the current study shows stable supratentorial white matter demyelinating plaques, compared to March 23 scan with no MRI evidence of active plaques by diffusion criteria non contrast criteria only.’
Just thought you would all be interested in this
Self-diagnosed COVID-19 in people with multiple sclerosis: a community-based cohort of the UK MS Register
JNNP.BMJ.COM
In the early phases of the UK COVID-19 outbreak, in the absence of clear evidence about the risks for people with multiple sclerosis (pwMS) and those taking immunomodulatory disease-modifying therapies (DMT), we launched a...
Hi everyone
Spoke to the Immunologists secretary this morning, my MRI report is in however she won't tell me anything just that she is going to get him to ring me this afternoon when he gets in.... the suspense is killing me!!
Not been feeling too great over the last few days head is banging again and neck is stiff and feeling drunk again aaaarrrrrrrgggggghhhhhhhh :) xxxxx
I think coming here more regularly has helped me find the funny.
In the past I have fought my MS. I am not saying I have totally given in. It has taken a long time for me to accept it. I am one of the lucky ones and can do things so I have always been hard on myself because I have invisible symptoms.
So I try an carry on as normal, or avoid doing things out and about if not too good.
Well just this week I have found myself laughing, as I mentioned in another post I overbalanced when being nosey, I was on my own but just laughed at myself, in the past it would of made me feel down.
Yesterday, told hubby I had a hard night drinking, well i meant sleeping. well he said probably you would of been better drinking
So I am still finding that funny. Again if he had said anything like that I would not of been amused.
So any newly diagnosed people dont leave it years to find the funny like me, Just laugh and if people think your crazy who cares, they probably think you are crazy anyway, as most people dont get the illness.
The report in the Guardian today mentions the following regarding MS and brain dissection:
" In MS patients, sclerosis means hardening, and you can sometimes feel that the brain tissue has hardened just by picking it up."
"... with MS there's no strong correlation between the number of lesions in the brain as a whole and the amount of disability you suffer."
The Guardian report
T
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