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Sarah6281

Hi I'm new and struggling

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Sarah6281

Hi all, I have recently diagnosed with relapsing remitting ms and am finding hard to deal with just feel I need to talk to those who actually understand

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Sleepy
Scully

Hello Sarah,

 

Being newly diagnosed can be a daunting, scary and lonely place to be for sure. it's a very difficult thing to get used to. But, there is life with MS, it isn't a death sentence, it's more a case of finding other ways to do things to make life easier.

 

Welcome to our forums here, I'm very pleased you found us :cheerleader:

 

We have many members, some of whom have been diagnosed for quite some time, so you'll always find somebody that can empathise with any particular problem and give you some tips or pointers in the right direction.

 

Never be afraid to ask a question, no matter how small or daft you think it may be. It probably isn't daft and you will find lots of us will jump in to help. So have a good look around the boards and blogs, fell free to join in with any of them, or start a new one yourself if you want to.

 

Scully

x


Edited by Scully

They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Jelly

Hi and welcome Sarah,

 

I can't give you much, if any advice as I am only just starting to have tests for MS.

 

You will find lots of friendly people here who are very supportive and helpful.

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KingGeorgia

Hi all, I have recently diagnosed with relapsing remitting ms and am finding hard to deal with just feel I need to talk to those who actually understand

 

Hi Sarah,

I do feel for you. It's been 11 years now for me and I can still remember the shock and confusion of being told. It doesn't go away overnight, to be honest, but takes a while.

 

Scully was right though in that you will eventually get to a point where you can accept that it's just a part of you and your life. You adapt, kind of learning to live your life around it. It's true that it really isnt a death sentance, I promise. I am 40 now and still working (albeit part time) and raising a child alone, not in a wheelchair, although I use my stick a little more these days. Symptoms come and go (or some stay) but I just try to deal with them when they do. It's easy to feel alone with this, as symptoms and sensations can be difficult to explain even to those who are close, not to mention your feelings and how it changes your life. Please use the lovely people here, 'cos we all "get it".

 

Take care of yourself,

Michelle.

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lisa

Hi Sarah

 

I really do no how you feel I wa. diagnosed with rr ms 16 years ago and just the not knowing anything about it was scary enough for me it takes time but you will get there in the end and ask anything here how ever silly you may think it is and someone will hopefully be able to give you a bit ac advice so hope to see ou around the forum soon

Lisa x

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cazza

Hi Sarah and welcome,

Glad you found us all on here, if nothing else we ALL understand exactly how you feel.

As others have said YOU WILL be able to cope and adapt your ways to accept yourself and any limitations you feel you have. It's amazing just how you can adapt and still do everything you want,slower or in different ways, but you can.

Try not to fight things, listen to your body and go with what it tells you.

 

I know there is always someone on here who can offer help or advice,or just make you laugh(that does help)

 

Hope to see you around.

 

Take care.

Cazza. :wavebunny: xx


*A Christmas Carole*

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fourdogs

Hello and welcome, I can not add anymore to what has been said already . It is true it takes some getting used to and all sorts of emotions will go through your head but because we all really do understand what this horrid ms feels like this is the best place to let it out .

Hope to chat to you on here again soon , take care.x

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Hezza

:welcome: from me too Sarah,

Take your time as you get used to your diagnosis and please feel free to rant, rave and ask any questions you've got. There's usually someone around who's only too happy to listen and support.

 

See you around the forum.

 

:heartraining:


Life is short. Eat dessert first. Jacques Torres

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Willow

Hello Sarah,

 

I don't understand just how you are feeling as it's my Hubby who has been dx with rrms but as his wife I am finding it hard to deal with. There are some really lovely people on here who will help you as much as they can and they are all so caring. I hope you have family and friends around you who you can talk to and have support from your GP etc, you can talk about anything you want to on here and its a great place to come to if you feel you can't cope, the support from all on here is amazing.

 

Take care, Willow xx

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Sarah6281

Thank you to everyone's kind words,I'm still trying to come to grips with it, I'm just so tired all the time and have 3 young kids my partner works so is hardly here to help me arghh sorry rant over for now.....

 

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Sleepy
Scully

Hello Sarah,

 

It may take some time for you, and your family, to come to terms with this diagnosis, so take your time.

 

If the fatigue is a real issue, your GP, Neurologist or MS Nurse may be able to help you with this, either by medications or by a fatigue management course, which helps you to plan your days around he fatigue.

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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pigeon64

Just wanted to say welcome and glad you found the site. I am of no help as I am having to work my way through different meds before GP will refer to neuro. Lots of great people on here who I am sure will offer you all the support you need

 

:cheerleader:

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Tired
PaulX

Hi Sarah,

Sorry to hear that you have had a positive diagnosis. I strangely found it a relief, a confirmation that something was actually wrong and it was not just in my imagination.

Of course now you have to get on with your life and deal with it. It is no good trying to carry on as before, you need to figure out what makes you worse and what you can do. It is not easy and it does vary from day to day, but eventually you find out what you should avoid and when to take it easy. I know this is easier said then done, especially when you have dependants to look after.

There is a whole host of drugs available to help manage relapsing remitting MS. You might discuss the options with your neurologist and see what might be best for you. From what I have read and heard, there is no great benefit by delaying using these drugs, anything that can make it more manageable has to be worth trying.

I cannot advise on any of these as the type of MS I have does not have these types of drugs available. If it did then I would be straight on to them.

 

And finally, welcome to the forum.

Paul


We're just two lost souls swimming in a fish bowl, year after year,

Running over the same old ground.

What have we found?

The same old fears.

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cathbeebop

Hi Sarah

 

Can't be much proper help (I'm in limboland myself at the mo) but I really hope this site helps you and you find the support you need ... if t'internet pages could give hugs - you'd get the biggest one from this site. I have a 2 year old who, funnily enough, does get the tiredness thing or the dizziness thing and tends not stay in one place for 2 minutes, I can imagine what it's like 'times three'!! I guess you need to work out what your limits are, what makes your symptoms worse and tweak/builld your day around avoiding them (to minimize symptoms and maximise happiness/good things)...infact..what PaulX wrote.

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