Hi, first time here. Have had relapse remitting MS for about 20yrs and after a tricky start despite the odd flare up have had very few major issues for around 15yrs. Last year or so I have had the feeling of lots of minor increases in symptoms/ mini flare ups but in the last few months I have seen a massive increase in pain, cognitive issues, fatigue etc that just seem relentless. Have undergone a variety of tests (unrelated to MS) all of which come back as without issue and GP’s current best guess is depression and or IBS. I don’t feel depressed but I am in constant pain which is sapping my energy now. MS nurse is trying to get a consultant to see me (last few yrs all appointments have been phone calls only). Anyone have any words of wisdom or comfort
Hi all. Hope everyone is doing as okay as can be! I've had these new symptoms for about .. 2-3 months now.. they're driving me insane.. My jaw/teeth clenching together. I'm not knowingly doing it. Just happens. Starting to really hurt my jaw and teeth from the strain and pressure of it. Also my eyes have been automatically squeezing closed. Sort of a similar feeling to when cutting onions (minus the tears and stinging) but that urge to squeeze the eyes shut. Does anyone else experience these? Thank you!
Here’s an explanation about heat sensitivity and raised body temperature in MS.
Heat – Multiple Sclerosis Research Blog
MULTIPLE-SCLEROSIS-RESEARCH.ORG
My thoughts are for our readers with MS who are having to live through and cope with the latest heatwave. The BBC has just reported that this is the hottest late August bank holiday on...
I must admit that I didn’t stop to think that the heat of this weekend is why I’ve been saying my vision seems blurrier than usual! Doh..!
Hello.
I was diagnosed with RRMS in 2014.
Until the last 6 months, I have been coming down with fever so bad it puts me in bed for days and nights. I'm taking Aubagio 14mg daily. It's really starting to change my life. My gp is useless and does not listen. Neither does my ms nurse . Nothing gets investigated and I feel so let down.
This is for information about some of the meds many people with MS may take.
“What is becoming clear in this extract from the UK’s supply chain of medicines is the sheer scale already affected by either physical shortages or price increases as a direct result of Brexit, currently expected at the end of October. The breadth of conditions the shortages these medicines apply to is very wide, covering all age groups and everything from birth control, diabetes and painkillers to antibiotics, Parkinson’s and cancer treatments.”
The list of Medicines affected by no-deal Brexit - TruePublica
TRUEPUBLICA.ORG.UK
the UK's supply chain of medicines is already affected by physical shortages or price increases as a direct result of Brexit, expected at the end of October
Earlier, the Epilepsy Society, being as some of our meds are primarily for epilepsy, had posted this list:
Contingency plans for epilepsy medications in case of a no-deal Brexit
WWW.EPILEPSYSOCIETY.ORG.UK
In August 2018, the Government asked pharmaceutical companies to ensure they have a minimum six week stockpile of prescription-only and pharmacy-only medicines in case of...
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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