I have lived with MS 14 years ( now SPMS), I’m housebound but I’m not in wheelchair! I walk and balance a bit dodgy !!
I try to exercise so I don’t seize up and I teach other warriors exercises too !! It’s great mentally & physically! It increases fitness, endurance, strength, flexibility, gait, posture, balance, coordination and mood ! Decreasing spasisity, pain, weight, fatigue!!
If you have MS like me ...
If your balance is not good...
If your walking is dodgy...
If your body is seizing up...
If your symptoms are exacerbating...
DO THIS, SEATED, STANDING, LYING ONLY:
“Multiple Sclerosis Fitness with Jayne MSer & Warrior “: YouTube U.K. Try if you are able to 💋Big hug 💋
Encouragement, inspiration and help is all I want to give!!!!!
has anyone had neuro physio? I can't seem to find a single post about it...just wondered what peoples experiences of it were? did it help? I've recently started it and it seems to be making me considerabley worse...all across my upper back is agony and my 'walking' is nothing but a very slow shuffle now...I'm inclined to give up on it.
I saw the neuro today and he did some tests while I was there and has pretty much ruled out MS.
I have to go for brain MRI to be sure but then a rheumatologist and a psycologist.
Feel a bit numb, stunned and confused, don't know much about these and what happens next.
My neuro appointment has finally come around. My biggest concern is not being taken seriously as I know many of you have had to go back numerous times. I was also not really taken seriously when I saw the neuro 5 years ago.
Hope everyone`s coping with the hot weather.
I saw my neuro June last year, first visit for 12 years, my notes had gone missing so he started from scratch and sent me for an mri and said he wanted to see me yearly. He also said I had spms.
I didn`t get an appointment come through for June this year, so the other day I phoned the ms nurse`s office to see if they could find out what was going on.They were very helpful, gave me results of mri, but with regards to the neuro appointment she said that the neuro had probably changed his mind!
I was gobsmacked! Thanks for letting me know! Is this a normal thing that is happening now?
I feel angry, confused and very disappointed, it just seems very strange to me. Has anyone else had the same happen?
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
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