Do any of you get this symptom?

[KingGeorgia]

Hi all,

I feel guilty as I only seem to post on here when I need advice, but I don't know who else to ask.

I very often suffer from aches. My whole body hurts, but it's not like any MS pain I have ever read about. I literally feel like i am getting the flu where every muscle aches. It used to happen occasionally, in the evenings but is happening alot lately. I take gabepentin on and off (not consistently) for more acute neuropathy (freezing or shooting pain generally). I really need to start keeping a diary with meds & symptoms, i know. Does this sound like MS or should i be heading to the docs, do you think? Any advice extremely welcome.

[KingGeorgia]

Btw, I should state that i have had MS for about 11 yrs.

[Scully]

Hello KingGeorgia,

 

I can certainly relate to what you describe. I actually feel like the way you describe right now in fact.

 

It's like a complete body ache, as though I've been through a mangle or a mincer. It's a sort of extreme aching.

 

I also take gabapentin, like you as a top up. I am aware that Gabapentin should be taken in a regular therapeutic dose, but when I spoke to the MS nurse about it, she said that lots of patients take it as a sort of 'top up' med. I also take Baclofen and Nortriptyline. Do you have Baclofen as well? ( Baclofen is a muscle relaxant )

 

I'm just recovering from surgery, so I've put it down to that, although I've experienced it before without anything else going on. Are you sure you don't have anything else like a cold or infection as this can make everything else more acute?

 

It may be worth speaking to your MS nurse about it, or taking your gabapentin in its regular dosage to see if it will help.....even if it dose make you sleep a lot !

 

By the way. Please don't apologise for posting when you need advice. The cool thing about this forum is that you can come and go exactly as you please.

 

Scully

x

Edited 31 Oct 2012, 7:47 am by Scully

[Hezza]

Hi KingGeorgia,

I can relate to what you are describing as well. My nagging, aching pains arrived as part of a relapse a couple of years ago and decided to hang around. I remember going to my GP and having a conversation that went something like:

 

Me: I hurt, all the time.

GP: Where?

Me: Everywhere, a deep, nagging ache.

 

He immediately said he thought it was Neuropathic pain and prescribed me a low dose of Amitryptline. Bless him I remember thinking at the time that he seemed really pleased that he could actually offer me something to help. The Amitryptline did the trick and still does mostly keep the pain at bay for me.

 

I think it's definitely worth a trip to the doctors or a chat with your MS Nurse, if you have one. Even if it does sound like an MS symptom it's always better not to just assume and check it out and, even if it is MS, they may be able to suggest something to help with it.

 

[Lindylou]

Hi KingGeorgia,

 

I can relate to the `achey` feeling as well! In the early years of my MS before I was diagnosed, I used occasionally come home early from work feeling like I had flu coming on,I`d go to bed for a while then when I woke up I felt fine! Now though, 30 years on I feel achey most days!

 

I take Pregabalin daily and Amitrypiline at night and this has helped with the neuropathic pain, I don`t know if there`s any medication that would help the achey feeling, but it`s always worth asking if you`re finding it hard to cope with.

 

Good luck and hope you feel better soon.

 

Linda x

[suzysue]

Hi kingGeorgia im feeling pretty bad myself today i got up at 6 this morning feeling like ive been run over my whole body was sore im having problems with my left arm at moment its had the tingling sensation worse over last few days althow its been there for a while i try to ignore it,ive had the tears while trying to get ready for work but im only there for a couple of hrs so il just plod on,hubby told me to ring in sick but ive only just gone back from being off ive got a few days hol so i think il just take them,i sometimes wish there was another tablet just to make me feel normal, i was diagnosed 2yrs ago with RRMS,i take baclofen,gabapentin,and currently on copaxone injections hope you feel beter soon suzysue xx

[PaulX]

I feel a bit like that at the moment, but having recently had some minor surgery, I put it down to the immune system struggling to cope with the anaesthetic hanging around in the liver and putting a strain on it (the immune system).

Hopefully it will pass.

 

Perhaps it is a sign that your body is feeling a bit of extra strain.

 

I hope you find a suitable remedy.

Paul

[KingGeorgia]

Thank you all so much for taking the time to reply. It helps to know I am not alone although I really feel for those of you who are also struggling.

I started being more disciplined with my gabepentin but mysteriously felt alot better yesterday even though i had been pushing myself and, if the aches were fatigue related, should have been worse. Ah, the unpredictability of MS!

I have another condition which doesn't normally cause me any real issues but my nurse wrote to say that one of my blood tests wasn't "right" so i will investigate that, of course. If that has nothing to do with the aches and soreness, I shall stop worrying about it & ascribe it as another part of the MS roller coaster!!

Thank you all again and I will keep hoping that you all find a little relief soon. I can't tell you how much this forum helps me. x