Hi there, im struggling to get much enjoyment out of life as I can't go anywhere without a toilet. Would love to go for walks, to gigs etc.
Does anyone else have this problem? Does anything help?
Rachey
Am having real difficulty with taking the steroids. They aren't coated and start dissolving in the mouth before you can swallow them - the taste is unbelievably foul. Day 1, I eventually managed to swallow all 5 pills but vomited afterwards and felt ill for the rest of the day. Day 2, I only managed to get 1 out of 5 tablets down. I don't think I'm going to be able to finish the course.
Wimp.
Hello Everybody,
Well, the 'silly season ' is almost upon us..I have 8 grandchildren to buy for, plus the added bonus of some 6 birthdays all through December....so my Amazon driver is visiting daily, with armfuls of packages, for which I am eternally grateful.
Talking of grandchildren...I picked up the usual cold from the ankle biters a few weeks ago...cold tunred nasty, very nasty, resulting in sinusitis ( ouch ) and a deep chest infection.and very high temps...I struggled on, using Vick, flu capsules and the like....till I could cope no more....mainly because I could also barely walk, and most definitely no stairs....
Saw the GP! Who went nuts, coz I left it too long...and left his office with penicillin and a huge course of steroids, to shift the infections, and to give the MS a swift kick..
Well....the first dose of steroids found my head swimming, balance gone....and generally felt I'd been hit by a truck....next day, felt much better, by the third I was a veritable superwoman....not much sleep so spent many of the wee hours, working though my birthday and Christmas lists and ordering the lot!
Written Christmas cards....and have almost been marching round the house !
Sinus and chest infection have almost given up and cleared off......but I know, as we all do, that come Tuesday or Wednesday.....the crash and burn will arrive...albeit briefly.....but hey....Christmas and birthdays are all organised....
As the title says....the highs and the lows of steroid treatment!
Scully
x
Hi all
Sorry I've not been around much but I've been really awful. I only had oral steroids about 5 weeks ago and initially they worked. They got meon my feet and walking albeit terribly but over the last 3 weeks I feel shocking again, walking is worse by the day and my speech is really really slurred, worsening as the day goes on.
Is it possible to have more steroids so soon?
My consultant said that we could discuss tysabri when I see him again, his suggestion, but I'm scared that this seeming relapse so soon after the last one night go against me. I will be seeing him tomorrow, I'm very worried because I'm on holiday next week.
last day today ,of a 4 day course,of high dose steriods.Yesterday i managed to stand for 2 secs UNAIDED !!! first time in three weeks.could this be a temp improvement because of steriods ? or is this the kick start my body needed ? iam really pleased ,excited,about standing unaided ,only for 2 secs ,but its a start tho isnt it ? ms nurse has said there is no gurantees with steriods,..she cant tell me if i will ever walk again tho.. tc xx
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