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back with new concerns

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smile

I know I left the board last month, but things have got worse and im finding it hard to function.ive now been having bad head pains for the last 5 weeks,I've no energy,also have a weakness in my face,meaning I can't smile onon side of face.I've been to 4 different GPs,also seen a neurologist who said nothing is wrong,my head hurts to touch,pain comes and goes,but it has been there everyday for the last 5 weeks.its another waiting game.ive been comfort eating,just sleeping and no exercise.has anyone experienced this type of head pain or facial weakness with me.ive been told there is prob nothing medically wrong.

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Nick

Hi Smile,

 

Sounds like you are having a tough time! It's difficult to answer your questions. With MS there are so many differing symptoms and different people experience differing aches and pains. Even where people do have a firm diagnosis of MS it is all to easy to attribute everything to their MS something that is not helpful.

The only advice would be that clearly as you do have a problem you need to go back again to the GP! Many of us on the forum have had the experience of 'difficulty' with their GP, however it is well worth persevering. The more accurate information you can provide the better, sometimes it's good if you can take somebody else along who knows you very well. Partners for example will often point out something that you may feel was unimportant. It can be hard going and you are not alone in feeling frustrated over it all.

 

Hope that is a little helpful for you

 

Nick


Edited by Nick

Just another Warrior...........

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kizzy

Hi , i saw your post and just had to answer i am diagnosed but have exactly the same symptoms as you , I get shooting pains in my head and also my face is ever so slightly dropped to One side not that bad that anyone would notice unless i pointed it out and feels numb right in the corner . I was told by my neuro that my numb mouth is my ms and the shooting pains are signals that are misfiring probably due to damage from the ms. However migraines Can also cause the exact same symptoms aswell including dropping of the mouth. I hope you get some help soon, Tracy x x

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smile

thanks for the responses, I guess Im a bit frustrated. Ive been told that because my MRI taken 3 months back was fine, that nothing would be different since then, that if I wanted another scan it wouldn't be for medical purposes, but to aleviate my anxieties. They cannot suggest a scan, because there is no medical basis for it. Ive heard back that another request for a neurology appointment has been made, but I am not convinced they will see me. With my mouth weakness, it is if obvious if I point it out, but got told by doctor at hospital there is no weakness and in discharge paper it says "she thinks her leg and mouth are 'weak' ". Its because my mouth is able to function eg chew, speak, whistle etc. On top of that, Ive been having leakage of the bladder at times, Ive not felt like I needed to go, but when I have gone to the toilet, Ive noticed wetness, Ive had to change during the day at times. It doesnt always happen. Once again it was dismissed as "I wouldnt know whats causing that".Thanks for listening, Ive hardly anyone to sound off from, because sadly hardly any of my symptoms are physical, so its "all in the head" so to speak.

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Procrastinating
Stumbler

Smile, keep a record of all these symptoms with the date. Just summary details so that it's clear and concise.

 

The Neuro has only a couple of tools to help him diagnose a condition, so what you can tell him is all part of the jigsaw, which they are trying to solve.

 

And, take a copy of the list of symptoms, so they can keep it on your file.

 

Try not to stress/worry too much (I know, who am I kidding!) as this makes things worse.

 

:moonieman:.


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Great Dane

Hi Smile

 

I too have a lopsided smile, but the side of my face that droops is the side that feels normal. The side that is more animated feels like someone is gently pulling my cheek down ie a bit heavy- it is really weird, but again only people close to me have noticed it. It started when I at the same time was experiencing problems with my eye.

 

The function as such is completely normal and I can chew, whistle the lot, it only feels weird and gives me a lopsided smile which if I think about it - can compensate for.

 

Hope you get sorted out. Stumbler has given you some very good advice regarding keeping a record of symptoms.

 

Great Dane

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Sleepy
Scully

Hello Smile,

 

You poor thing, you certainly seem to being going through a tough time right now.

 

As your scan was clear the neurologists are unable to give you a diagnosis of MS right now, but it is important that they keep on trying to figure out what is going on with you.

 

It can be a long and hard road to finding out what the problems are. Definitely keep a record of when and for how long these troublesome symptoms occur and do try to twke someone along to your next appointment if you can.

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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