I have previously been on Baclofen, taking it the recommended 3 times a day.
It proved to be problematic, with some unwanted side effects. Side effects I couldn't live with.
Wind on a few years and I at the point I really do need something for the spasticity and it is affecting my sleep and making the fatigue much worse.
I have spoken with my MS nurse and she has suggested taking Baclofen on an as needed basis rather then religiously taking it 3 times a day.
Has any one else tired this and has it worked?
Has it helped get round the side effects problem?
I must admit I am a bit sceptical, but prepared to give it a go, nothing to lose by it.
Paul
I had be persuaded to give Baclofen another go. I tried it in 2014 and didn't get on with it. Since then I have moved, different health authority, different MS nurse.
Since pregabalin didn't cause the same problems when i was previously on it, I figured that perhaps baclofen would be better behaved.
Wrong.
I have had quite an unpleasant month or so, with no sign of me adapting to it. Admittedly it did have some benefits. It did seem to take a bit of the spasticity from my legs, letting me sleep a bit better. Though if any thing I became more tired.
And dizzy. I suffer from dizziness as it is, but this is getting beyond a joke.
It also seemed to have a positive effect on a bit of ED that was beginning to occur.
Even allowing for those two benefits, it really has diminished my quality of life.
So I have decided to stop with the baclofen and hopefully regain some of the energy and perhaps reset back to how things were a few months ago.
I am expecting a bit of a backlash, but hopefully not too severe or long lasting.
Paul
If anyone is considering having a Baclofen pump implanted, I am on my second pump after 6 years on the first one. I can tell you all my experiences - the good and the bad and the ugly - which might help you make the best decision decision
Good afternoon everyone.
I started on my copaxone last August and have felt so well since I wished I had done it earlier. At my previous rate I should have had two relapses since then but I am relapse free and life feels good
But, I am getting increasing pain in both legs and, sometimes my arms. The muscles feel weak and without strength - for example when I was doing my daughter's hair the other day I had to keep lowering my arms due to pain. My walking is now affected and the muscles hurt at rest. They are particularly bad when I first wake up.
They feel stuff and achy but not really "spastic" if you know what I mean. The MS nurse suggested baclofen and my GP has prescribed it but I wondered if anyone had had similar symptoms to these and if the baclofen (or anything else) worked.
Any words of wisdom would he gratefully received.
Thanks, Sam
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