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Trellis

Intrathecal Baclofen

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Trellis

I've been on Baclofen for 30 years now and am not even sure it's even working now, having become complacent in some ways. I suffer spasms during the night whenever I wake which is not nice for my partner as the bed then shakes with me! My legs are very, very stiff and heavy and go into spasm when they're handled by my partner or carers when I need shoes on for example. I am considering having a BACLOFEN PUMP inserted and wondered what other MS ers experiences were with this?

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shepp

I'd never heard of a baclofen pump until i was in hospital just before xmas when another patient came in to have a baclofen pump removed after being mugged while in his wheelchair, anyway I've spoken to him since he's come out of hosp all went well with the op and he's going back to hosp on 20th feb to have a new pump fitted and he says he can't wait, says that the way the pump delivers the medication is far superior than taking the baclofen oraly. hope this helps a little

Tony

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Trellis

Thanks for that Tony.

 

I must admit though that it's got me wondering why he had to have the pump removed after his very sad experience.

 

Reports of the pump that I read on the internet are favourable but it's the operation that fazes me - wimp that I am!

 

Carol

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Sleepy
Scully

Hello Carol,

 

I've no experience of a Baclofen pump at all, although I do know of one person in our local MS Group who has one.

 

I sincerely hope that having the pump fitted is a simple procedure for you and that you get much relief from your troublesome spasms.

 

Scully

x

 

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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shepp

Thanks for that Tony.

 

I must admit though that it's got me wondering why he had to have the pump removed after his very sad experience.

 

Reports of the pump that I read on the internet are favourable but it's the operation that fazes me - wimp that I am!

 

Carol

 

Hi-ya Carol the reason he had the pump removed was that the pump was disloged during the mugging

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Bigbird

Having a pump fitted isn't a simple procedure initially. My rehab consultant said he only recommends it when nothing else works. He said however that his brother had one and thought it was great. However I met a woman when I was in hospital about 18 months ago and tho she found benefits from it she dreaded having the reservoir filled. my understanding was that this was only injected through the skin. Mind you I dread my botox injections and they are only through the skin. And they are happening in Thursday, dread dread.

Guess if you think it might be helpful it's worth discussing with your MS team.


Life's too short to be subtle

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