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Saw a new Neurologist following Trigeminal Neuralgia

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Morning everybody,


As some of you know, I used to be under the care of Queens Square in London, where I was first diagnosed. Unfortunately, of late, I found the train, tube, cab trip to London all too much so, it was decided, that as there was nothing they could do for me anyway. I would be referred to a local unit if a new symptom or major deterioration develop.


Well, Trigeminal Neuralhia developed just after Christmas ( all info on another post). So I was referred to a local unit.


Saw a very nice chap, who apologised and announced that he would have to start all over again, which I'd sort of expected anyways. So, much to his glee, I took along copy MRI scans, and all the copy letters from London, he was ever so pleased. Nevertheless, he wanted, understandably, to do all his own assessments, which I'd expected anyway.


Anyways, the usual poking, prodding, pin sticking, stand up, sit down, push, pull.....you all know the drill by now.


He said very little about the TN really, only to start dropping the Gabapentin and see if the TN comes back again, if it does, then increase the dosages once again.


He couldn't read the scan on his PC so he asked if he could hang on to it for a week, and he would be able to review it with other neurologists and radiologists very soon. He ordered the usual battery of blood tests, I was slightly worried that one of the tests said ' ALS' but I'm sure London ruled that beast out before.


On my way out I asked the nurse if I should have a follow up appointment? She said ' oh the Dr. will send for you when he has all the results' So that was that really.


My MS Nurse and Neuro-physio have always said that I should be under the care of a neurologist, despite myself and my GP feeling that it wasn't ever going to be very beneficial, but the TN sort of forced the issue .


So that's me, back on the Neurologist lists !




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They are not brain lesions..........they are just bright ideas


"The truth is out there"

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I'm glad to hear he's being thorough, Scully.


Fingers crossed that the TN stays away for now and that if it does return they'll be able to suggest something to help.



Life is short. Eat dessert first. Jacques Torres

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