Hello, have been diagnosed for a long time now, 2008. I was forced to give up work due to how bad things got symptoms wise and am struggling day to day in which leads to a very low mood and lack of motivation. I don’t really have anyone near me and yes, local groups are available, I’m just struggling with doing that. I did, yet, something happened, which led me to walking away. I think I just need guidance on how to fill my days especially on the days I just want to do nothing. I just feel sad and somewhat lost, so I thought I would reach out. Any advice will be welcomed and I am here to support also.
Thank you for taking the time to read this through and I hope your day is going well.
Hi I'm Ange and I'm 40 years old I've been suffering with chronic pins needles and numbness down my left side for almost a year I've also had very bad bouts of vertigo and balance issues along with a tremor of left arm and lately my left leg has been giving way, I've also had a bout of losing bladder control .... I'm under care of neurologist who has said my MRI showed white matter lessons but our inconclusive and I'm awaiting lumbar puncture and evoked potential test, I'm off work due to the balance problems, please has any one else been going threw this or can you tell me if you think this is MS I'm in limbo at min and have no other help from health care professionals, just a ton of meds from my GP to try mask my symptom,any advice would be greatly appreciated as I feel like a total nag.
good evening all!
i just have to ask as I'm sure a few of you have been through this and a convo made me think!?
how do you also support the significant other when going through the weirdest problem which you can't explain???
Regards as always,
M
Hello all hope today finds you well?
I'm looking for help for my partner. I have p.p.m.s and its pretty bad at times. My partner finds this so hard to deal with, and I feel for him. I have days I can't walk and he feels useless. So my question is this.. do any of you have advice or know where he can get advice!? Also I have shown him ms fact sites and they just scare him. Lol he worries a lot and I get that. So I want some advice more on emotional support as opposed to factual based support if that makes sense. I put myself in his shoes and am thankful I suffer and not watch someone I love suffer. It must be hard for them too. Thanks in advance
Luci xx
Hi everyone, I'm relatively new on here so please bear with me. I am currently awaiting results of my evoked potentials and have my MRI tomorrow which I'm very nervous about results wise. But what I wanted to ask is how people felt their support from family was during the whole 'limbo' time? My parents and my husband are generally very supportive about everything however I honestly feel they think its in my head or making more of it.
Apart from the numb patch on my back I have a number of other symptoms but the main one being fatigue currently. But I feel like they look at me as if I just want an afternoon siesta!! My husband and I seem to be arguing all the time because I feel he just doesn't understand and/or basically dismisses me. He says he isn't and doesn't mean to make me feel like that but I feel like I have enough on my plate as it. The arguing is stressing me out to the point where I just want to run away and I already have high blood pressure (I'm 32!) that I'm on tablets for.
Is it just me that goes through this time feeling somewhat alone and that even the closest of family members just don't 'get it'?? Sorry for the rant but at the min I feel the people on here are maybe the only people that would understand x
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