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PaulX

South Coast Support and Care

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Lurking
PaulX

This is for those of you out there that may live somewhere on the south coast, particularly in the Worthing to Brighton area. I am trying to get a feel for the quality of the support available for us MSer's. The medical support and any other general support.

I may be in a position that could eventually entail a move towards the the south coast and it would be helpful to get any opinions. Unfortunately it is something I have to consider these days.

We are not too badly off here in the Peterborough area as far as that sort of thing goes, so it would be good to know what I might be letting myself in for.

 

I am sure I will get chance to find out myself, but any useful nuggets would be most welcome

 

Paul


We're just two lost souls swimming in a fish bowl, year after year,

Running over the same old ground.

What have we found?

The same old fears.

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Procrastinating
Stumbler

Paul, with that catchment area, you could be in East Sussex, under Brighton. Or in West Sussex, under Worthing & Southlands.

 

I'm about equidistant between Worthing and Brighton. I fall under West Sussex, just. So, I can only speak of them. They have a mobile MS Nurse, as well as some based at Worthing. They seem to be easily accessible.

 

There is also a unit to support those living with neurlogical problems, e.g. continence, neuro-physio, etc. They are normally pretty quick to respond.

 

Additionally, the MS Treatment Centre for Sussex is equidistant as well, offering complementary therapies, plus social activites.

 

The NHS down here is cash-strapped like any other area.

 

Hope this helps

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Lurking
PaulX

By my reckoning that puts you around Shoreham by Sea, which be coincidence is where I will be plying my trade in a month or so. For the short term home will still be Peterborough but eventually it may be in that area.

 

Yes it does help, it sounds like you have more on your door step then we do here.

Thanks.

Paul


We're just two lost souls swimming in a fish bowl, year after year,

Running over the same old ground.

What have we found?

The same old fears.

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Sleepy
Scully

Hello Paul,

 

I come under West Sussex. There is a specialist Neurological centre ( Hurstwood Park ) and also a centre, headed up by an MS Specialist based at Brighton and also a centre at Hove. The main MS specialist is running various trials and research at the Hove Centre.

 

I try to avoid Brighton, as its impossible to park, and I'm not near enough to use public transport, choosing to see my Neuro at Hurstwood Park. Or even at my local hospital where he runs a clinic.

 

My own MS Nurse has just retired, but there are a few others covering the areas too.

 

Scully

xx


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Procrastinating
Stumbler

By my reckoning that puts you around Shoreham by Sea.............

Thanks.

Paul

 

Paul, fairly close to Shoreham. You'll have to give me a shout when you're down here.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Lurking
PaulX

Hi Scully,

it certainly does sound like the south coast does fairly well for coverage.

I have already experience parking in Brighton and the cost of it.

 

Hi John,

Will do when I am down and settled.

 

Paul


We're just two lost souls swimming in a fish bowl, year after year,

Running over the same old ground.

What have we found?

The same old fears.

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