Pegs, feeding and swallowing

[Ruby Red]

Had a long day yesterday with Neuro, Speech and language and dieticians and feeling like death today lol

 

Short story is I'm loosing my ability to swallow and the throat goes into spasm blocking the airways so I basically I struggle for breath While the breathing thing happens maybe once, twice a month the Doctors are not over concerned about that it more about making sure I get food, outcome is they would like to introduce a Peg for feeding to supplement the soft food diet.

 

I just wanted to know if anyone has a peg and what are the pros and cons they have found ?

 

Aims x

[Scully]

Reply from CRAFTY COW, posted in wrong topic.

 

 

Hi Amy,

 

Sorry to hear you are havingnthese problems, just another thing to add to the mix unfortunately.

 

I hate seeing questions unanswered, but unfortunately other than nursing patients who have had peg tubes as a result of parkinsons disease, and the peg usually being newly inserted, (and a short stay after on the ward). Whillst they were in my care, the only problem i can highlight is possible infections and soreness of the site.

 

In light of my lack of knowledge in this area, i have had a look and found a couple of forums whereby people have asked the same question, so I have pasted the links for you to look at, in your leisure.

 

http://answers.yahoo.com/question/index?qid=20070319084507AAdw8uB

 

http://psp.healthunlocked.com/questions/33368/What-are-the-pros-and-cons-of-PEG-my-husbands-neuro-would-like-him-to-have-one-placed.

 

I hope this provides some help

 

Sam xxx

 

[Ruby Red]

Thanks Sam.

 

It was a long shot asking. I've had all the medical fact etc just wanted to talk to someone who lives with one on a daily basis. These are the people who give you far greater Knowledge than doctors.

 

I'll have a word with the MS Nurse see if he can put someone my way to talk to.

 

Aims x