Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Rama

Starting Copaxone

5 posts in this topic Last Reply

Recommended Posts

Rama

Well after 2 years of taking Rebif I have just been swapped over to Copaxone. The nurse has just left after training me to use the auto-injector. Also have the option of using the syringes without the help of the auto-injector but I prefer not to see the needle before it goes into me.

Fingers crossed I see some improvement over the next few weeks or months.

Gill xx

Share this post


Link to post
lala

Good luck with the copaxone Gill, hope it works well for you.

 

If you don't mind me asking why are you coming off Rebif? I am waiting to start it, it's sitting in the fridge, just waiting for the nurse!

 

Laura x

Share this post


Link to post
Rama

Hi Laura,

 

The only reason I am coming off Rebif is because a possible side effect of Rebif is muscle stiffness. Over the past six months my walking has deteriorated and I am now struggling to walk even short distances. So my neurologist thought we could try swapping to a dmd that wasn't an interferon and see if that helps. I guess only time will tell.

I have to say I found Rebif very easy to use. I used the Rebismart injector. I was a bit nervous when I first started it but after the first injection I was so relieved at how easy and painless it was.

I hope the Rebif works well for you. I'd be interested to hear how you get on.

Gill xx

  • Like 1

Share this post


Link to post
Mal

Not up to speed on DMD'S yet , so don't know anything about them , so all these

little snippets are helping me !

 

Good luck with the Copaxone Gill , i hope you see some changes for the good , real soon.

 

Mal x

  • Like 1

Share this post


Link to post
lala

Thanks for that Gill. I hope coming off helps ease the stiffness for you, sounds like you have a pro-active neurologist there.

 

I can't believe how much stuff there is for two tiny vials of medicine! It looks very easy and you don't have to see the needle at all do you, unless you want too - which i don't! Getting very impatient waiting for the nurse though, had the meds for two weeks now and still no contact as to when anybody is coming, thank goodness it's not chocolate medicine or I may have started already!

 

Will let you know how it goes, if it ever gets going. Let us know how you get on too.

Best of luck

 

Laura x

  • Like 1

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Copaxone - Lloyds Pharmacy Clinical Homecare

      Has anyone else had personal data issues with this NHS contractor? They appear to withhold medication deliveries unless patients agree to sending answers to intrusive personal medical questions over non-secure email services. 

      in General Discussion about MS

    • Starting Copaxone

      I am going to start Copaxone but I’m worried about the side effects. Can anyone tell me their experience on the drug?

      in General Discussion about MS

    • Anyone else on Copaxone

      Hi everyone!   I have been using copaxone for three weeks. I don't mind the injections everyday, actually i get a kick out of finding new spots, so i can play dot-to-dot on my body, light humour, gotta keep that going.   What has started out fine I now get welts on my thighs. So stopped injecting into there, i now do my tummy, arms and buttocks. Again don't mind that but i spent the entire of last night scratching my injection site from yesterday on my left arm, huge welt there. Welt and redness there before scratching. Really itchy and i am using shear determination right now to not scratch. Did my tummy today, no problems. I am just running out of spots and kinda worried. I have been rotating them all aswell.   Has anyone else had this much trouble and what did you do to relieve it?   Thank you   Jennifer x

      in General Discussion about MS

    • Thoughts/experiences of Copaxone & Avonex?

      Hi I hope you are all doing well? I am looking for some advice as usual!   I have been on Rebif 44mcg since August this year. It has been up and down in terms of side effects, some days I have none and others I am bed ridden, other days split the difference! It's also been upsetting my blood test results and my nurse wants me to try something else,I asked about gilenya but she wants me to stay on an injectable for now.   So my choices are Avonex which is very similar to Rebif and carries the risk of side effects (although only once a week) ,so could be easier to manage than 3x a week on Rebif. Or capoxone which is a daily injection, with very few side effects apart from site reactions and lipoatrophy (sp?) The downside I can see of the daily injection is that it has shown no long term affect on disability, the beta interferons have done much better in trials, which is a major consideration for me as I'm still youngish! If anyone has experience of these drugs I'd really appreciate your thoughts/experiences.   I know I have to chose what's best for me and I'm lucky to have a choice, since so many have no choices at all, but I would appreciate any advice you can throw my way.   Thank you Laura x

      in General Discussion about MS

    • Copaxone

      Hi all I've had MS 13 years but avoided dmds up till now....after more relapses recently I've finally been persuaded to start - thinking it's got to be copaxone cos of the (possibly) fewer side fx....but injecting every day and the issues that brings, well, I'm very anxious....also I'm alone so got noone to hold my hand (if you know what i mean)...I'd totally appreciate anyone's experience and opinions, tho I know everyone's different.....THANKS!!!

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×