aching and twitching legs are driving me mad.

[Larisa]

Hello folks. Dont normally post but am always reading them. Advice and wise words needed please. I've had issues with my legs for some time well over a year now. They ache and twitch on a daily basis. Some days I feel like I've run a marathon where in reality I've not moved off the sofa. I'm taking pregablin .I suppose my real worry is that my ms has moved up a notch from rrms to spms. And it scares me!!! Im still driving, working and generally maintaining a house hold but im finding it difficult.

[Mal]

Hi Larisa

 

I have the same problem and not found much relief

 

though my doctor did up my dose of pregablin and it helped a bit

and has stopped me continually moving my legs all the time lol

 

maybe your doing too much?

 

hope somebody comes along with some good suggestions!

 

Mal

[Larisa]

Thanks mal, how much pregablin are you on. Im taking 500mg a day. I know I need to slow down but I dont want to feel defeated .

[davslav]

Hi all from NZ,

I had that problem untill I tried and still take 0.5 mg Clonazepam tablet, one at night.As I'm in a wheelchair I can't streach my legs.For pain I take 60mg continus 2 tablets a day ,but some people can't tolerite it.

[Mal]

Thanks mal, how much pregablin are you on. Im taking 500mg a day. I know I need to slow down but I dont want to feel defeated .

Only been on pregablin for about six weeks so i'm on the build up , i take 400mg and expect

that will go up again in two weeks time when i see my GP .......not sure what the dose will eventually go up too ?

 

I'm SPMS btw

 

Hi davlav , thanks for the heads up , ill mention Clonazepam when i next see my GP

 

Mal x

Edited 7 Oct 2013, 2:28 pm by Mal

[Larisa]

Thanks mal , I sort of self prescribe increase and decrease as an when I need to. This is the highest dosage I've been on . Guess a call to the ms nurse is called for. As im pretty new to this unpredictable thing called ms the thought of this relapse becoming permanent worries me .

[davslav]

Hi Mal,,,, have you tried Clonazepam ?? that low dose is realy great so that my GP said its to low but I haven't up it yet cose it still working OK.Spending most of the time in wheelchai is not fun especialy when my leg is jumping .

[Mal]

Hi Mal,,,, have you tried Clonazepam ?? that low dose is realy great so that my GP said its to low but I haven't up it yet cose it still working OK.Spending most of the time in wheelchai is not fun especialy when my leg is jumping .

Thanks i'm going to ask my GP about it , the next time i see her

 

Mal x