Hi everyone
Just to clarify. I saw a neurologist back in the early 90s as my GP suspected I had a problem with my central nervous system but the Neurologist, without pursuing any investigations, told me all of my symptoms were down to anxiety.
Since then I have never managed to convince any GP to refer me to anyone else about my continuing symptoms so I am self-diagnosed.
I have finally managed to get referred to a memory clinic and am also waiting for the results of a head scan that happened in June. The referrals were not connected to any mention of M.S. as I asked due to deterioration in my cognitive functioning which wasn't great anyway.
A privately funded clinical psychologist picked up on all of these issues + ADD and Dyslexia but NHS doctors dismissed the report and continued to put things down to anxiety, which thankfully I don't suffer with.
Hi everyone,
Has anyone experienced Advanced Hyperbaric Oxygen Therapy? I'm always on the look out for different therapies and I understand some MS centres offer this. I would be interested to hear your thoughts.
Many thanks,
Catherine
Hi all
I get a lot of pain with my ms, have tried many drugs - gabapentin, amitriptyline, pregablin, duloxitine etc and nothing has helped. Finally convinced my neuro to refer me to a pain specialist back in September, and have an appointment in August.
Ive just received my copy of the referal letter and in it he suggests i may be a good candidate for a dorsal coloumn stimulator. Does anyone have any idea what this is? Im a bit scared to google it!
Any input on this would be appreciated, its freaked me out a bit!
Thank you
Laura x
ok. Had my first experience of Reiki today. For the uninitiated, this is the laying on of hands (although she held hands over me most of the time) in order to re-energise your aura (natural energy field). I went in looking to find a way to relax/ de-stress. Wasn't sure if/ what I believed but as a friend pointed out that simply the music, the calm, the candles, the music couldn't hurt, could it?? Couldn't argue with that. Other therapies didn't appeal given current condition - didn't want massage, wasn't up to yoga, can't meditate alone so Reiki won.
Have to say it was not what I was expecting. Had a 30 min conversation before even starting where we discussed problems and she explained what would happen. Then wrapped warmly on a bed - no removal of any clothes - and we began. Almost instantly I began to experience different sensations round the body (not MS ones) sometimes warmth, sometimes cold, occasional twinges - not painful. Burning feeling inside, again tho I was very conscious of it, it was not painful in anyway. Then it was as if someone had hooked me up to a socket and a mild current ran thru me. She barely touched me but at one stage she put her hands under my head and told me to just rest on them. No massage, no movement. I had expected to find this uncomfortable but found it strangely comforting. It lasted 30 minutes but felt about 15 (no she hadn't switched the clock!) and tho I definitely didn't fall asleep, I felt when I sat up as if I had just woken up. We then chatted for another 30 mins about the experiience and I drank water. She warned me that experience was different every time; that I might be emotional or very tired later; that it was a good idea to have a quiet peaceful time afterwards (so don't do it before kids sleepover!). Since then I've been feeling I suppose pensive, thoughtful, slightly sad. A little tired too and without doubt not the nervy/ hyper character I've been these last few weeks. Having said that, coming down off steroids, so it could be just natural reaction to that. No idea what to think, folks, just wanted to let you know about it. It's hard to articulate but I feel it's been beneficial and I will definitely be returning next week. x Lottie
Hi All,
WellI had my first session of hyperbaric oxygen therapy ( HBOT) last night. Basically I sat in a small chamber while they compressed the chamber to the equivalent of being at a depth of 16 feet. Felt a bit like going up in a plane and I had to release the pressure in my ears every now and then by swallowing. Once we were at the correct pressure we put on masks and breathed in pure oxygen for an hour. I didn't feel any different after the session but I am assuming I will need to have several sessions before I see any benefit - assuming I see any benefit at all. The most disappointing thing was I couldn't take my kindle into the chamber - I was looking forward to a good read. So I'll need to take a magazine or a real book next time.
I was wondering if anyone else has tried HBOT and if they have seen any improvement in their symptoms as a result.
I have got to the stage that I am now willing to try anything.
Cazza - you said you had tried it - how did you find it? What a shame they closed it down.
Gill x
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