Anyone else on Copaxone

[The Dragonfly]

Hi everyone!

 

I have been using copaxone for three weeks. I don't mind the injections everyday, actually i get a kick out of finding new spots, so i can play dot-to-dot on my body, light humour, gotta keep that going.

 

What has started out fine I now get welts on my thighs. So stopped injecting into there, i now do my tummy, arms and buttocks. Again don't mind that but i spent the entire of last night scratching my injection site from yesterday on my left arm, huge welt there. Welt and redness there before scratching. Really itchy and i am using shear determination right now to not scratch. Did my tummy today, no problems. I am just running out of spots and kinda worried. I have been rotating them all aswell.

 

Has anyone else had this much trouble and what did you do to relieve it?

 

Thank you

 

Jennifer x

[Chaos]

I have been injecting Copraxone for about 7 years. Never really had any problems apart from lumps under the skin where I inject in my stomach.

I would suggest for the itching feeling you are experiencing putting ice cubes on the injection site. Put the ice cubes in a bag first so when they melt you don't have water everywhere.

[The Dragonfly]

Hi Chaos,

 

As one does with MS, I forgot I asked this question. Thank you for answering.

 

I have been icing and it has helped a bit. I still get the welts, and I bruise very badly on my thighs. Think I might have to stop doing it there completely. I read that the lumps and itching is normal so I will persevere.

[Rama]

Hi,

 

I was on Copaxone for about 3 months. I didn't get itching but did get lumps on my thighs which were very tender. If I had continued on the Copaxone I think I would have stopped injecting into my thighs. I never tried injecting into my arms. Only areas that I found ok were stomach and buttocks. If you are okay with these sites I would stick with them.

 

By the way I stopped taking it because I have now been diagnosed as SPMS and I am hoping to get on a trial for SPMS and one of the criteria is you are not taking any DMDs. Weren't doing me any good anyway.

 

Gill x

[The Dragonfly]

Ah, interesting Gill. My stomach and buttocks are my best areas, guess more fat....haha. Arms are ok. The last few on my thigh have been drawing up blood after I take the needle out, I'll stop there I think.

 

I'll give it a year and see how it goes. I have permanent numbness and a weird irky feeling that I can't explain in three fingers on each hand. Extreme tiredness still and my legs are like weights, hope the copaxone helps.

 

Jen x

[Rama]

I hope it works for you Jen.

 

X