in the dark

[gooner1810]

Hi all. Im 31. Originally from s/e england but lived in spain for 10 years. Over the last 3 years i have been experiencing different sensations. All started with pain in my left elbow and arm. Like a servere ache and shooting pains. I ignored it until my fingers in both hands were twitching on and off and my hands ached like mad. I went to a british gp when i had a dizzy attack and had what i call white

ghosts in my right eye. Specsavers said my eyes were fine. My gp did blood tests cause she was worried about arthritis. Everything came back fine. In the mean time my legs were now aching and i was getting the most horrendous craps in my thighs in bed at night. My gp thought i was low on magnisium, potassium and other mineral salts. Suppliments made no difference.

I went to my nhs spanish gp who was russian and horrible to have my bloods tested again and to be told ' your fine- you work'. I now have a spanish private gp who has done bloods that have come back fine and suggests i could go to a neurologist but he thinks its not ms.

So i feel at the mo like im wasting peoples time but i know that the sensations im getting dont feel normal. I get a burning in the middle left of my back the most and my legs are spasuming a couple of times a day. My hands ache and i am soooo tired even after 8 hours.

 

Does this sound like it could be ms? Should i make the neuro appointment? Or am i wasting peoples time?

 

Thanks for your advice shelley:-)

[Nick]

Hi Shelley,

 

I would think that if your GP is suggesting that you see a neurologist then that might be a good way to go. Conditions like MS are difficult to diagnose and always require specialist advice. Even within the world of neurology people specialise it specific conditions, MS being just one of many neurological conditions. Getting this better advice will perhaps clear up a few things and give you a chance to better understand the problems you are getting. You do get cramps and pains with MS but there is no way that anyone can diagnose anything without proper testing. A common train of events is to first assessed by a neurologist who would then expect to get an MRI scan followed by more and various tests. MS develops in different ways in different people and is a complicated condition with hugely differing levels of disability. At this stage don't think to much into anything but get the professionals to check you out.

 

Nick

[Mal]

Hi

 

Nick is right , you need a MRI (brain and spine )

 

Mal

 

P.S they had miss diagnosed me with all sorts until i had a MRI scan

Edited 17 Dec 2013, 3:14 pm by Mal

[gooner1810]

Thanks for your response guys. It helps alot. Im now seeing a neurologist boxing day. Nervous but fingers crossed! :-)

[Nick]

Good luck and keep us posted!

Nick

[Mal]

Thanks for your response guys. It helps alot. Im now seeing a neurologist boxing day. Nervous but fingers crossed! :-)

Good luck , i hope you find out whats going on

 

Mal x

[gooner1810]

Hi. Been to see the neurologist. Nice man. Not much to tell. Few questions. Few hammer hits. Eyes looked at and told to go for mri. Got that on the 7th jan. Hope this brings me answers one way or another. :-)

[The Dragonfly]

Hi gooner

 

Hope your being sent to have a head and spine MRI. There is no point having one if both aren't done. I was at first sent for just a head MRI and three weeks later sent for both. Hope it goes well for you and they find some answers.

 

Jen

[gooner1810]

Hi jen

 

From what i can read on the spanish doctors form i think its a head scan and if there are lesions then to be done with contrast. My neuro did say that maybe a lumber punch after but to start with the head.

I dont know what i want the outcone to be. Obviously noone wants to be diagnosed with an illness but its a case of - if i have ms at least that explains all my complaints and im not going mad- because people do look at you like your making it up- but if i dont have ms then what causes all my twitches and cramps and fatigue and spasms??! And you know you will be ignored again.

I will just have to wait and see.

Cheers for the input jen :-)

Shell

[The Dragonfly]

Hope you get the answers your looking for, it must be how they do it in Spain. I know exactly what you mean. I was in the same boat as you and finally got my answer exactly one year ago.

 

Jen

[Nindancer]

Good luck with your MRI's Shell, at least they seem to be moving things along quite quickly for you :)

Sonia x

[gooner1810]

Hi. Just thought id give you all an update.

I went for my mri this morning. Thats an experience and a half!

Very noisy but the nurse was kind.

I didnt have contrast so i am asuming that there is no lesions as im sure my paperwork said in spanish that if i had lesions then to have contrast.

Not sure what that means now.

I cant see my neuro again because insurance says im not covered in that hospital so ive got to collect scans and go to another hospital and semi start again!

I havent had any symptons since dec 20th ish so i dont know what to do yet. Im just worried noone will believe me.

Did anyone else feel like this when they still didnt know what was wrong?

I hope your all feeling well at the mo. Shell :-)