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Marina

NHS "care.data" scheme, and how to opt out

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Crappy
Marina

You may already received this leaflet; if not, you should receive it soon:

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Documents/NHS_Door_drop_26-11-13.pdf

 

This is the NHS webpage about it:

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx

 

This site explains it and gives you forms to opt-out (if that's what you'd prefer):

http://medconfidential.org/

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Marina

(belated DX in June '05, SPMS)

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Depressed
Eastendgirl

Hi

Am wondering if this also applies to Wales, as I know the laws in England and Wales are usually the same. We've not received any such letters from our practice here.

 

Eastendgirl

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Crappy
Marina

Hi Eastendgirl (and welcome!)

 

If you live in Wales, according to this site: http://www.patient.co.uk/health/caredata-sharing-your-information

 

"This will happen across England. It will not affect you if you live in Scotland, Wales or Northern Ireland. If you live in Scotland or Wales, but are looked after by a GP in England, your data will be shared in the same way. You have the same right to opt out."

 

Hope that helps :flowerface:


Marina

(belated DX in June '05, SPMS)

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Bambi19

Hi

 

I'm a little confused by this and wonder if you could help, when I last visited my gp (xmas) I was told by the receptionist that on agreeing to something that sounded very simillar to this article that you've posted that my information would only be shared by other health proffesions eh hospitals etc. is this not the case and would it be too late for me to opt out now?

 

Hoping you can assist me

 

Regards

 

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Crappy
Marina

Bambi, if you go to this link: http://brief.care-data.info/, it will explain in detail what it's about and exactly how the information they share about you isn't as "anonymous" as they claim, and with whom it would be shared.

 

In the meantime, the uploading of information (if you haven't opted out) has now been delayed for 6 months, but it's still recommended to opt out as soon as possible (using the forms supplied here: http://medconfidential.org/ )

 

I've opted out, but must admit I have to wonder how I can be sure if my GP surgery did so or not...


Marina

(belated DX in June '05, SPMS)

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Bambi19

Thank you for this information

 

Sue x

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