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Sam1974

Does Baclofen help with muscle aches? If not, what does?

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Sam1974

Good afternoon everyone.

I started on my copaxone last August and have felt so well since I wished I had done it earlier. At my previous rate I should have had two relapses since then but I am relapse free and life feels good

But, I am getting increasing pain in both legs and, sometimes my arms. The muscles feel weak and without strength - for example when I was doing my daughter's hair the other day I had to keep lowering my arms due to pain. My walking is now affected and the muscles hurt at rest. They are particularly bad when I first wake up.

They feel stuff and achy but not really "spastic" if you know what I mean. The MS nurse suggested baclofen and my GP has prescribed it but I wondered if anyone had had similar symptoms to these and if the baclofen (or anything else) worked.

Any words of wisdom would he gratefully received.

Thanks, Sam

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Nick

Hi Sam,

 

I take baclofen and do find it helps to a point. I still get pains unfortunatly and have tried differing doses but tend to stick to a constant amount these days. I also think that proper and regular exercise can help.

I had been attending a good weekly group specialising in people with various difficulties, unfortunately the local NHS decided to cut funding so that has now ended. So it's now down to swimming which is generally very good but difficult to keep up.

 

Nick


Just another Warrior...........

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Sam1974

Thanks for your reply.

I am definitely finding it difficult to find a suitable exercise. I wish I could go back to dancing but the vertigo put a stop to that.

I shall give the baclofen a try then. The GP has prescribed a tiny dose so shall see how it goes.

Thanks again, Sam

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Nick

Sam,

 

I still take a very small dose of Baclofen and as I said it is effective. The exercise 'problem' is difficult, the group I was with consisted mainly of much older people and this can be a district barrier , however the most important thing is the quality of the person conducing the exercise. I was very fortunate in having an excellent teacher and I am very miffed (to say the least) that the local NHS saw fit to cut the very small amour of funding that was needed to keep us going. In the meantime my wife and I have joined a local health club and make use of the swimming pool, this is OK but I miss exercising as a group as this forces you to not only to go along with the group but is also a very nice social event which is also not to be underestimated when it comes to your well being.

Anyway I hope you find something yourself.

Nick


Just another Warrior...........

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Crafty Cow

Hi Sam,

 

I have had problems with finding regular exercise after two back ops have left so much scar tissue and neurological side effects. I need something gentle but not high impact. Recently, the local gym opened up a facility with toning tables. They are amazing. They have certainly helped me to be more flexible and I am not as rigid when I walk. It has enabled me to meet people of all ages and tone up and strengthen my muscles. I might be an option for you.

 

Sam x


Follow me, you can follow me....and I, I will not desert you..............

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dawnhooley

I came off back often after many years as my joint pain was getting worse, on checking the small print joint pain is a side effect !!!!!

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dawnhooley

We used to have a local gym with toning tables, they were wonderful and many users of them had ms

 

I really miss those tables :-/

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dawnhooley

Whoops sorry folks ' baclofen ' stupid spell checker

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Sam1974

Great, I will check out my local leisure centre.

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suzysue

Hi sam, i take baclofen i take between 4 and 5 tablets a night time,they relax me so i can sleep as i was getting terrible cramps that would wake me up, i to was on copaxone for about a year but it didnt agree with me i was relapseing on it so now on gilenya, this seems to be working been on it a year now and all is well, it did take about 8mths to get used to the tablet, i still have trouble with my legs i have a slight limp which tends to be more noticeable when my legs get tired, hope copaxone works for you as were all different take care :wave: susan xx

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