Hi,
has anyone had neuro physio? I can't seem to find a single post about it...just wondered what peoples experiences of it were? did it help? I've recently started it and it seems to be making me considerabley worse...all across my upper back is agony and my 'walking' is nothing but a very slow shuffle now...I'm inclined to give up on it.
Fran x
At the start of my problems (before the more obvious neurological problems) I was referred to rheumatology.
After xray came back clear and on hearing I'd had depression in the past the rhumy diagnosed fibromyalgia.
While that was going on I'd had an admission to hospital, mri (waiting results) and neurology are arranging evp test.
I saw my Gp yesterday as I'm struggling at home, work just everything. I had a lessening of symptoms for a few weeks but 3 days ago felt like something was coming on..I was right. Spinning sick feeling, tremor hands that don't feel like they are mine and drop things, back pain, and broken feeling ankles.
My GP doesn't agree with rhumy at all and so won't refer me to the fibromyalgia specialist as she is worried everything will end up blamed on that. So she won't prescribe me anything to help me feel better until all neurological tests have been done and reported on.
I'm wondering how many of you were told fibromyalgia but it turned out to be MS or both?
Also are there any hairdressers on here? If so did you manage to continue work for a while with the right medication and physiotherapy?
Would it be wise to get life insurance before any further diagnosis or will I have to tell insurance I'm having these tests?
Sorry for all the questions I'm just trying to get my head around things xx
Hi Everyone,
My neuro appointment has finally come around. My biggest concern is not being taken seriously as I know many of you have had to go back numerous times. I was also not really taken seriously when I saw the neuro 5 years ago.
Any advice?
Thanks,
Katie x
Hope everyone`s coping with the hot weather.
I saw my neuro June last year, first visit for 12 years, my notes had gone missing so he started from scratch and sent me for an mri and said he wanted to see me yearly. He also said I had spms.
I didn`t get an appointment come through for June this year, so the other day I phoned the ms nurse`s office to see if they could find out what was going on.They were very helpful, gave me results of mri, but with regards to the neuro appointment she said that the neuro had probably changed his mind!
I was gobsmacked! Thanks for letting me know! Is this a normal thing that is happening now?
I feel angry, confused and very disappointed, it just seems very strange to me. Has anyone else had the same happen?
Linda x
I wish you all we'll and hope you can help me... I am waiting for a neurology appointment as we speak because for the past 3 years I have been getting some really awful symptoms, have been back and forward to dr's and rheumatologist and pain clinic for really painful legs and feet. Constantly aching and feet feel like I am walking on stones al the time, even when I am not on them. Having also been getting twitching feeling on the bottom lid of right eye. I have also had aching arms and wrists and muscle jerks/spasms in my right leg. Blurry vision and tired dry gritty eyes. I know will probably all be fed up of newbies asking these sort of questions but I just would like to know what this is? My dr is suggesting MS. I have had numerous tests, MRI, EMG, echo and ECG as I also have had the occasional palpitations too, I am keeping a symptom diary/journal to take to neuro with me , I am glad to be being taken seriously now as have been fobbed of so many times before, all test and bloods have come back normal and negative. Does this sound like MS to any of you? Thank you in anticipation.
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