Jump to content
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

Neurologist Letter

5 posts in this topic Last Reply

Recommended Posts


I received the neurologists letter earlier this week.


He clearly listened and understood me very well and relays that in the letter.


He says that I fulfil all the criteria for CFS. He says he is unsure if the pain etc would fall within the spectrum of Fibromyalgia but in view of the severity he would like me to be referred to rheumatologist to exclude a significant rheumatological condition.


He said there were inconsistent distal sensory changes to pinprick and temperature.


He says in view of the patchy, unilateral nature of the neurological symptoms he is referring me for an MRI of the brain.


He's recommending I try Duloxetine?


Any comments appreciated.


Generally though, I feel that at least I am being taken seriously and they are covering all areas.

Share this post

Link to post

Hi Katie


I really do hope they are listening to you ,SOME YEARS i was DX

with Fibromyalgia and all the way through the following years i was presenting

classic MS symptoms to doctors and they were putting it down to fibro, i knew there

was something else going on but couldn't get anyone to listen , i was DX with MS after

a lot of the damage had already been done and could have been prevented .

im just saying you know your own body best !



Share this post

Link to post

Hello Katie,


Well, your neurologist is certainly covering bases and yes, he clearly listend to you.


By referring you to a Rhumatologist he is asking them, in effect to check for fibromyalgia and any related conditions, and the Rhumatologist is the best placed person to rule this in or out, so that's good news.


Duloxetine, although primarily an anti-depressant can be used to control pain, like many other drugs its uses are many fold, pain control is just one of them. Example is Gabapentin, primarily used in epilepsy but can also control pain. The duloxetine may well help your pain and help you sleep too.


He's also recommending an MRI, which, is something else that will assist him in getting all the jigsaw pieces in place.


I'd say this letter is a positive one and you are on the right road in finding out what is going on with you.



Edited by Scully
  • Like 1

They are not brain lesions..........they are just bright ideas


"The truth is out there"

Share this post

Link to post

All positive news Katie,


I can't add much, only to say that learning and understanding more about your condition will help you massivly

Just another Warrior...........

Share this post

Link to post

Hi Katie


Looks like he has listened and taken you seriously, by ordering an MRI and referring you to a Rheumy, so in my opinion I take that as a positive.


Good luck with your appointment.



Live for today.......never have regrets

Share this post

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Waiting to see neurologist.

      Hi I have had various health problems over the past 8 years. (Migraines, cluster and thunder clap headaches). last few years have hands cramping, tiredness, muscle pain, burning lower legs and few, severe feet and legs cramps, tightness in lower rib cage, feeling cold water running in ankles/legs, spot of vibrating in thigh. I thought I might have fibromyalgia. GP has now referred me to neurologist to 'rule out ms'. My sister and cousin both have ms. I am not afraid I just would like a diagnosis but know it can take years. Can anyone please advise if my symptoms are more fibro or ms? Thank you. 

      in General Discussion about MS

    • just been referred to a neurologist for suspected ms

      Hi I'm being referred to a neurologist from my gp as she seems lost now as to what is wrong and after a chat today she suspects it's ms. For 12 weeks now I've had tingling in my lower half with numbness/wet feeling in my knees but over the last 6 weeks ish it is now in my arms and face. I've been on every pain relief going and nothing is stopping it plus With my vision it's as if I'm in a trance all the time and with some new tabs I feel drunk . I've had neck and lumbar X-rays and an bloods done for nearly everything and they were all fine. I've had over 4 weeks ago a lumbar mri and still waiting for results but the doc has said today if I had a herniated dics I would of heard back by now so she has to think of what step to take next. She said for a while she has thought it has been early ms signs but didn't want to worry me. She now is going to see if I need to go for a brain mri before seeing a neurologist as I could be waiting months for an appointment. I'm scared but unsure what to think at the moment. These seem to be my main symptoms,   Tingling all over Get pins and needles very easily Feels like Sciatic pain mainly right leg Vision seems like I'm in a trance Sometimes feel very woozy Go light headed quite abit Ringing in ears(tinnitus) Left Eye twitch on and off Slight hand tremors but worse in the morning Stiffness in my lower back I do get rather low in myself quite abit but would not say depressed and I can't handle any kind of stress, I seem to loose my temper very quickly.   Any kind of advice would be appreciated. Thanks

      in General Discussion about MS

    • Got Neurologist Appointment

      Hi.   So I have my appointment. My doctor wrote that it's urgent, so I am being sent to a hospital quite far away, because the local hospitals has a 6 months plus waiting list. I'm being seen in July, the 12th. There was a closer date, but it was during one of my exams, which I can't miss.   What can I expect? This is my first appointment with a neurologist, though I have had an MRI before because about 15 years ago they thought I was epileptic. They found something on my brain then which resembles a lesion, but nothing ever came of it and I was diagnosed with type one diabetes which kind of took over.   All my symptoms after I've put down to diabetes, or over working, or whatever. (I did wrote all this in the introduction). But I am on the insulin pump now so I don't hypo all the time like I used to, but I still get dizzy spells and vertigo. And I've been tested for damage to nerves from diabetes, and my pulse and reactions and that are fine. Diabetic consultant says I haven't been diabetic long enough or had bad enough control to cause damage, and the tiny blip on my eye (one burst blood vessel) wont cause my blurry vision.   Thing is, I've been scared to tell anyone that I've been getting numbness, pins and needles, and pain, in my right arm and hand, because I was scared I would be told it's diabetic damage.   I've been seen by rheumatology because they thought I had rheumatoid arthritis, but the only thing the rheumatology people found was that I'm hypermobile. They did point out that by grip is weak, but when I pointed out my claw hand (my fingers wont straighten in my right hand unless I force them to by my other hand) they just said they didn't know what caused it and gave me some exercises to do (which make it worse).   A few years ago I was diagnosed with trigenimal neuralgia. But they did a scan of my head to look for nerves touching blood vessels and found nothing. I never got to see a specialist for that, and I didn't really push it because I decided it was probably tooth pain (it went to my forehead but I figured it was probably caused by tooth ache). My GP wasn't so sure. She's lovely, and really listened to my symptoms. All the stuff, blurry vision, hand issues etc, tends to be on my right side mostly.   I fall over a lot. Sometimes it's because I trip. Sometimes I have no clue.   I have no balance whatsoever. My husband is doing a degree is psychology and so has to do some neurology in it. He has done some of the tests onme already like getting me to stand still then close my eyes. Apparently I sway, but last week or so I actually fall over. And I can't do the putting one foot in front of the other.   Anyway, what can I expect from this first appointment? And what do I do? Schedule

      in General Discussion about MS

    • Referred to neurologist

      Hi.   I'm a type one diabetic with other autoimmune diseases, so I was reluctant to go to my doctor with the numbness because I was concerned she would say it's diabetes related. But it isn't.   When I was about 19 they found an abnormality on my brain. They called it a mass on my forth ventricle, but no follow up was done on it and it was about the same time I got diagnosed with diabetes, so that took priority.   I've been being seen by rheumatology who tell me I have joint hypermobility, but that doesn't explain the weakness I feel and the numbness.   About 6 or 7 years ago I was diagnosed with trigenimal neuralgia. My doctor believes this to be a potential sign of MS.   I had an appointment with her today and she has decided to refer me to neurology.   So, just really wanted to know what to expect.

      in General Discussion about MS

    • Awful neurologist appt. What next?

      Ok, nothing to see here...I'm feeling sorry for myself, so just need to offload :)   The worst of my symptoms started 6 months ago. It took 3 months to convince a doctor that, yes, this was serious, and then 3 months from referral to finally seeing a neurologist.   The neurologist was running 30 mins late, it was obvious he was trying to rush through and make up time. He hadn't read my notes, didn't have a clue what I was there for.   Within 15 mins he'd declared that I was fine ('You seem to be walking ok') and that I definitely didn't have 'anything serious like ms' and that he was going to discharge me. He wasn't even watching most of the time he was performing the tests. :/   When I described the mobility issues I'd had and how for the first time in months I was finally now able to leave the house on my own and drive, he said 'Well, you seem to be getting better, it's not a neurological problem'. He declared that my 24/7 muscle tightness/spasms couldn't be neurological. I saw him write down 'stress' on his notes :/ ( stress can contribute to disease, but I've not seen it cause a person to lose their pincer grip or be too uncoordinated to walk!) His only recommendation ws that I should exercise little and often. He asked how far I could walk and I said to the corner shop, 3 minutes away. He said ' well do that several times a day'. { sigh}   As he was trying to shove me the discharge paper, I kept pushing him by saying 'well what about x symptom...what about this?' In the end he conceded to me having two blood tests (one of which the doctor had already done, twice). When I pushed him again he begrudgingly said 'Oh, well, I suppose it could be something like fibromyalgia, I'll write a note to your doctor.' And with that, he ushered me out of the door.   I felt so let down, I ended up pouring out my frustration to the nurse doing the blood test, whose sympathy and kindness was probably the only reason I didn't leave the hospital sobbing.   To make matters worse, I phoned straightaway to get an appt with the doctor I've been seeing for the past 6 months, only to find out that they've left the surgery. Feel like I'm back where I started 6 months ago.   So...what do folks recommend I do next? I never want to see that neurologist again (I can't anyway, as he's discharged me!). I've had 6 batches of blood tests, which have shown nothing and excluded quite a few other possible diseases. I never use the doctors unless it's serious (I.e. cant walk/can't breathe). I know I'm not imagining things. MS or not, most of my symptoms could well be explained by something neurological in origin. And yes, I might be a little better, but I'm not a fraction of the person I was 7 months ago. My(ex) doctor said he couldn't authorise a MRI, only via the neurologist.   Apologies for whinge. Having to put a brave face on for family, but needed to offload.   Moving on...

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.

The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.